Wie geht es einem Patienten mit Fibromyalgie und wie kann er ihm helfen?

Chronisches Müdigkeitssyndrom (CFS) und Fibromyalgie (FMS) sind schwächende und schlecht verstandene chronische Erkrankungen, die Menschen beiderlei Geschlechts und Alters treffen können. Paare, Freunde und Verwandte von Menschen mit CFS oder FMS fühlen sich möglicherweise verwirrt und hilflos, weil sie nicht wissen, was sie sagen sollen oder wie sie Hilfe anbieten können.

Es ist sehr schwer, die Schmerzen und die Einschränkungen, die diese Krankheiten hervorrufen, nur ungern zu beobachten, was zu den Stimmungsschwankungen, dem Schlafmangel, der Reizbarkeit, die chronische Schmerzen auslöst, und dem Mangel an gesunder Ruhe, dem Alltag kranker Menschen und Familienmitglieder in einem ständigen Kampf um das Gleichgewicht und die Einheit der Familie.

Nicht jeder ist in der Lage, sich dieser Situation zu stellen. Bis zur Akzeptanz ist ein langer Weg erforderlich, an dem psychologische Unterstützung erforderlich ist, und berücksichtigt diese Reihe von Schlüsseln, die sehr wichtig sind:

Wie geht es einem Patienten mit Fibromyalgie und wie kann er ihm helfen?

Versetzen Sie sich in Ihre Familie und versuchen Sie es zu verstehen

Die meisten Leute wissen wenig über CFS und FMS, wenn sie etwas wissen. Beide Krankheiten beinhalten viel mehr als nur “ein wenig Müdigkeit” oder “ein paar Schmerzen”. Wenn Sie einen Freund oder einen Freund mit CFS oder FMS haben, sollten Sie so viel wie möglich über diese Krankheiten lernen. Je mehr Sie über die Krankheit Ihrer Angehörigen wissen, desto mehr können Sie sie unterstützen.

CHRONISCHE FATIGINE SYNDROME (CFS)

Das chronische Ermüdungssyndrom (CFS) ist eine chronische und schwächende Erkrankung, die das Gehirn und mehrere Körperregionen betrifft. Dies führt zu extremer Ermüdung, die die Ruhe im Bett nicht verringert und sich oft durch körperliche oder geistige Aktivität verschlechtert. Die Symptome dauern mindestens sechs Monate und sind schwer genug, um die täglichen Aktivitäten zu beeinträchtigen oder zu beeinträchtigen. Die Symptome variieren von Person zu Person und können Folgendes umfassen:

· Chronische Müdigkeit, die die Bettruhe nicht verringert und sich oft durch körperliche oder geistige Aktivität verschlechtert

· Schwäche im Allgemeinen

· Muskelschmerzen

· Gelenkschmerzen ohne Entzündung oder Rötung

· Kopfschmerzen

· Probleme mit dem Kurzzeitgedächtnis oder der Konzentration

· Vergesslichkeit oder Verwirrung

· Reizbarkeit, Angstzustände, Stimmungsschwankungen oder Depressionen

· Niedriges Fieber, Hitzewallungen oder Nachtschweiß

· Halsschmerzen

· Empfindliche Lymphknoten

· Schlafstörungen oder Unwohlsein nach dem Schlafen

· Längere Müdigkeit, die 24 Stunden oder länger nach dem Training anhält

· Empfindlichkeit in den Augen gegenüber Licht

· Allergien

· Schwindel

· Schmerzen in der Brust oder Atemnot

· Übelkeit

FIBROMIALGY (FMS)

Die Fibromyalgie ist eine chronische Erkrankung, die weit verbreitete Schmerzen und Steifheit in Muskeln, Sehnen und Bändern sowie nicht-beruhigenden Schlaf und Erschöpfung verursacht. Die Symptome variieren von Person zu Person und können Folgendes umfassen:

· Müdigkeit oder allgemeine Ermüdung

· Verringerung des körperlichen Widerstands

· Generalisierte Schmerzen und Beschwerden der Muskeln, Sehnen und Bänder

· Muskelsteifheit oder -krämpfe

· Schmerzen in bestimmten Bereichen des Körpers, insbesondere:

Hals

Schultern

Brust

oder zurück (oben und unten)

o Hüften und Oberschenkel

· Schlaflosigkeit oder Schlafmangel

· Taubheitsgefühl oder Entzündung (auch wenn keine Entzündung vorliegt)

· Chronische Kopfschmerzen, einschließlich Migräne

· Morgensteifigkeit, es ist schlimmer, wenn es zum ersten Mal auftritt

Machen Sie sie nicht ungültig, lassen Sie sie sich nicht schlechter fühlen

Einige Leute denken, dass Personen mit CFS oder FMS faul sind, ihre Symptome übertreiben oder an einer psychiatrischen Erkrankung leiden. Diese Leute glauben fälschlicherweise, dass ihre geliebte Person nur ein bisschen härter gestoßen werden muss. Menschen mit CFS oder FMS fühlen sich oft entlassen, wenn sie Folgendes hören:

– “Ich sehe gut aus” (zugrunde liegende ungültig machende Nachricht: “Sie sehen nicht krank aus, also müssen Sie übertreiben oder vorgeben”)

– “Oh, ich hatte solche Symptome.” “Ich werde genauso müde” (zugrunde liegende entwertende Nachricht: “Was ist das Problem? Jeder wird müde, ruhen Sie sich ein wenig aus”)

– “Haben Sie … versucht (eine vorgeschlagene Behandlung)?” (Ungültige Nachricht: “Wenn Sie dieses Mittel nicht einnehmen oder etwas tun, um sich selbst zu helfen, ist es Ihre Schuld, dass Sie immer noch krank sind”).

– “Bist du noch krank? (zugrundeliegende ungültigmachende Nachricht: “Was ist los mit dir? Es ist deine Schuld, dass du immer noch krank bist”).

Erkennen Sie den Schmerz Ihres Familienmitglieds oder Freundes

Die Tatsache, dass Sie die Krankheit leugnen, lässt sie nicht weit davon verschwinden.

Menschen mit CFS oder FMS stehen häufig vor vielen Herausforderungen, darunter:

· Von Familienmitgliedern, Freunden, Chefs und sogar ihren Ärzten und anderen Angehörigen der Gesundheitsberufe nicht ernst genommen werden

· Die Ungewissheit Ihrer Krankheit

· Verringerung der Fähigkeit, an früheren beruflichen, sozialen, pädagogischen und persönlichen Aktivitäten teilzunehmen

· Abhängigkeit und Gefühl der Isolation

Viele Menschen nutzen die Leugnung, um mit einer chronischen Krankheit eines Angehörigen fertig zu werden. Anstatt zuzuhören, zu glauben und Mitgefühl für das, was die Person durchmacht, zu zeigen, diskutieren sie die Fakten und verringern die Schwere der Situation.

Wenn Sie die Situation Ihrer geliebten Person vollständig erkennen, lassen Sie sie wissen, dass Sie sie wirklich lieben, lieben und unterstützen. Die folgenden Tipps können helfen:

-Erkennen Sie die Schwierigkeit: “Ich kann mir nicht vorstellen, wie schwierig all diese Änderungen für Sie sein sollten”

– Erkennen Sie Verluste, Trauer und Ärger: “Ich habe das Gefühl, dass Sie Ihren Job aufgeben müssen.” “Es muss schrecklich sein, dass Sie nicht die Kraft haben, Ihre Ausbildung fortzusetzen”

– Bitten Sie und hören Sie mit Mitgefühl: Wenn Sie Ihren Angehörigen fragen, wie er sich fühlt, fühlen sie sich möglicherweise krank, müde, schmerzhaft oder depressiv. Wenn Sie nur hören möchten, dass sich Ihr Geliebter gut fühlt, hören Sie auf, ihn zu fragen, wie er sich fühlt. Andernfalls können sie Ihre Erwartungen, Enttäuschung, Desinteresse oder Unfähigkeit zu verstehen spüren. Stattdessen fragen Sie vielleicht: “Wie geht es Ihnen heute?” Oder “Wie läuft es?”

Sei verständnisvoll und mitfühlend

Chronische Krankheiten stellen viele Herausforderungen in Beziehungen dar, in denen Komfort und soziale Unterstützung von größter Bedeutung sind. Hier sind einige Möglichkeiten, wie Sie helfen können:

· Seien Sie geduldig Denken Sie daran, dass Ihr Geliebter viele Anpassungen vornehmen musste und das Beste tut, was er oder sie kann.

· Bieten Sie häufig Trost und Unterstützung.

· Bieten Sie praktische Hilfe an, z. B. Besorgungen erledigen, bei Hausarbeiten und beim Einkaufen helfen.

· Nehmen Sie Ihre Liebste zu medizinischen Terminen mit. Zeigen Sie Interesse an Ihrer Pflege und bieten Sie emotionale Unterstützung.

· Suche nach Möglichkeiten, Zeit miteinander zu verbringen, bei Aktivitäten mit geringer Intensität, z. B. Filme oder Videos anschauen, etwas essen, aufs Feld gehen, ein Spiel spielen, im Park sitzen oder eine Massage geben.

· Sie haben nicht das Gefühl, dass Sie Probleme “beheben” oder Empfehlungen geben müssen. Oft reicht es aus, nur dort zu sein und Mitgefühl zu zeigen.

· Drücken Sie Ihre Wertschätzung für alles aus, was Ihre geliebte Person Ihnen unabhängig von Ihren Grenzen geben kann.

· Fragen Sie, wie Sie Ihrem Angehörigen helfen können.

· Bewundern Sie Ihre Bewunderung für die Stärke und den Mut, die Sie an Ihrer geliebten Person schätzen, während Sie die Herausforderungen der Krankheit meistern.

· Ihr geliebter Mensch kann sich aufgrund von Stress und den Herausforderungen einer chronischen Erkrankung in seiner Stimmung ändern. Nehmen Sie emotionale Reaktionen nicht als persönlich an.

· Versuchen Sie, empfindsam auf die Gefühle Ihrer Angehörigen zu reagieren. Hören Sie zu und lernen Sie, aufmerksam zu sein.

· Bleiben Sie in Kontakt mit Ihrer geliebten Person. Selbst wenn er nicht mehr so ​​aktiv und in gegenseitige Interessen oder Begegnungen wie früher involviert ist, sollten Sie ihn trotzdem einladen.

Akzeptieren Sie die Änderungen

Insbesondere das CFS ist eine sehr unvorhersehbare Krankheit. Die Symptome können variieren, so dass Ihre Angehörigen möglicherweise nicht vorhersagen können, wie sie sich Stunden oder sogar Minuten nach einem Ereignis fühlen werden. Versuchen Sie, dies zu verstehen, und warten Sie auf die folgenden Situationen:

· Manchmal dauert es länger als gewöhnlich, bestimmte Dinge zu tun.

· Es wird für ihn schwierig sein, endgültige Pläne zu machen.

· Sie haben manchmal nicht die Energie, Zeit mit Ihnen zu verbringen.

· Sie erinnern sich möglicherweise nicht an bestimmte Dinge (CFS kann kognitive Probleme und “Gehirnnebel” verursachen.)

· Könnte unvorhersehbare emotionale Höhen und Tiefen haben.

Passen Sie auf sich auf, um für Sie Sorge und Unterstützung zu leisten

CFS und FMS sind schwierige Krankheiten, nicht nur für diejenigen, die darunter leiden, sondern auch für diejenigen, die für sie sorgen. Es ist normal, sich enttäuscht, ungeduldig, schuldig, frustriert, hilflos und betrogen zu fühlen. Es ist wichtig, dass Sie sorgfältig auf sich selbst aufpassen, damit Sie Unterstützung leisten können. Dies bedeutet, dass Sie angemessen essen, regelmäßig Sport treiben, Ihren Stress kontrollieren und mit einem Familienmitglied, einem Freund oder einem professionellen Berater offen über Ihre Gefühle sprechen. Sprechen Sie mit Ihrem Angehörigen darüber, wie die Krankheit Ihre Beziehung beeinflusst. Fragen Sie, wie sie sich gegenseitig helfen können. Denken Sie daran, dass die Unterstützung von Familienangehörigen und Freunden für das Wohlbefinden von Menschen mit CFS und FMS unerlässlich ist.

Sie kennen Ihre Angehörigen, Sie wissen, wie es ihnen geht, wie hart und aktiv sie waren, lassen Sie sich nicht wie ein paar faule Menschen behandeln, Sie kennen sie besser als jeder andere, lassen Sie sich von keinem Gesundheitsfachmann schlechter fühlen Sie fühlen sich schon.

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