Wer leidet an Fibromyalgie: “Es ist, als hätten wir täglich 20 Esslöffel Energie.”

Die Künstlerin Anjie Mailey teilt ihre Erfahrungen mit dem missverstandenen chronischen Zustand, der Millionen von Menschen schmerzt.

Fibromyalgie ist eine chronische Langzeiterkrankung, die Millionen Menschen schmerzt, aber wenig bekannt und wenig erforscht ist, sagt Jo Waters

Kirsty Youngs Entscheidung, im letzten Sommer aufgrund der Probleme mit Fibromyalgie eine Pause von Desert Island zu machen, rückte die schlecht verstandene Situation in den Mittelpunkt.

Doch der Moderator von BBC Radio ist nicht der einzige bekannte Name, der langfristig gegen diese Krankheit kämpft.

Lady Gaga ist ein weiteres Opfer von hochkarätigem Fibro. Die Sängerin war so betroffen, dass sie im letzten Jahr die letzten 10 Termine einer Welttournee absagen musste.

Der Schauspieler Morgan Freeman hat auch darüber geredet, wie er mit dem Schmerz des ganzen Körpers umgeht.

Ein kürzlich vom Parlament vorgelegter Bericht schätzt, dass fast zwei Millionen Briten an Fibromyalgie leiden, die wahrscheinlicher zwischen 20 und 50 Jahren auftritt. Und Frauen sind sieben Mal häufiger betroffen als Männer.

Zu den Symptomen zählen eine erhöhte Schmerzempfindlichkeit, Müdigkeit, Muskelsteifheit, Schlafstörungen, kognitive Probleme und Gedächtnisstörungen, Kopfschmerzen und Reizdarm.

Kirsty Young entschied sich im letzten Sommer aufgrund ihrer Probleme mit Fibromyalgie, eine Pause von Desert Island zu machen.

Dann gibt es Nadeln, ein brennendes Gefühl in der Haut, Krämpfe in den Beinen, unruhige Beine, Kribbeln und Depression. Schmerz kann überall oder in bestimmten Bereichen erlebt werden und dies kann sich ändern.

“Durch die Übung fühlte ich mich wieder gut”

Anjie Mailey, 49, Künstlerin und Spezialarbeiterin in East London, hat seit 15 Jahren Fibromyalgie:

Meine Symptome begannen mit ungewöhnlichen Schmerzen und Schmerzen. Wenn mich jemand leicht anrührte, hatte ich das Gefühl, als hätten sie mich geschlagen.

Ich war erschöpft, als hätten meine Muskeln keine Energie und mein Gehirn wurde langsamer. Ich würde die ganze Zeit Dinge vergessen. Später erfuhr ich, dass dies als Fasernebel bezeichnet wurde.

Es dauerte ungefähr drei Jahre, bis er eine Diagnose erhielt. Ich ging zum Hausarzt und hatte Tests, um Krankheiten wie Lupus und Multiple Sklerose auszuschließen, aber alle waren negativ. Schließlich wurde ich an einen Rheumatologen überwiesen, der eine Fibromyalgie diagnostizierte.

Mein Durchbruch gelang mir, als mir im Great Ormond Street Hospital in London ein Selbstverwaltungskurs in Fibromyalgie empfohlen wurde, wo wir Gruppentherapie erhielten und sanfte Übungskurse erhielten.

Die Übung war wirklich das letzte, was ich fühlte, da ich übergewichtig war, nicht in Form war und mit so vielen Schmerzen zwei Stöcke benutzte, aber ich entschied mich für ein Fitnessstudio.

Anjie Mailey (Bild: Unbekannte Sammlung)

Es tat zuerst weh, aber ich nahm Schmerzmittel und ging weiter. Es tat den ganzen nächsten Tag weh, aber nach und nach erhöhte ich meine Muskelkraft und meinen Widerstand und meine Muskeln tun weniger weh.

Bald war ich fit genug für Karate- und Frauenboxen. Ich besuchte auch einen Schlankheitsclub und verlor sieben Steine.

Sie sagten mir, dass Sie 20 Esslöffel Energie an einem Tag verwenden müssen und jede Aktivität kostet Sie eine davon.

Die Herausforderung besteht darin, zu planen, wie Sie diese Energie aufwenden. Mein Schmerz ist immer noch da, aber ich habe gelernt, damit umzugehen und jetzt die Kontrolle zu übernehmen.

Was verursacht es?

Der Zustand wird jetzt als Fehlfunktion des Schmerzschwellensystems erkannt. Es wird angenommen, dass sich ein Fehler in der Verarbeitung von Schmerzsignalen entwickelt, obwohl noch nicht klar ist, was dies auslöst.

Studien mit Gehirnbildgebung haben zunehmend Hinweise auf eine Beteiligung des Zentralnervensystems gefunden.

“Die Patienten werden zu empfindlich für äußere Reize und ihre Schmerzschwelle sinkt sofort ab. Die leichte Berührung kann sehr schmerzhaft sein”, erklärt Dr. Rod Hughes, Rheumatologe-Spezialist im St. Peter’s Hospital. in Chertsey, Surrey.

“Fibromyalgie wird oft als Folge eines belastenden Ereignisses betrachtet, wie etwa einer Operation, eines Unfalls oder eines großen emotionalen Traumas wie der Scheidung.

“Oft gab es einen kritischen Punkt an Stress, und die Patienten haben in der Vergangenheit Migräne oder IBS-ähnliche Symptome.”

Schwierigkeiten bei der Diagnose.

Da sich so viele Symptome mit anderen Bedingungen überschneiden und es keine endgültigen Diagnosetests gibt, kann es einige Jahre dauern, in einigen Fällen, um eine Diagnose zu erhalten.

Hazel Borland von Fibromyalgia Action UK des Vereinigten Königreichs, der größten Wohltätigkeitsorganisation von Fibro im Vereinigten Königreich, sagt, wenn Patienten einen befreundeten Arzt sehen können oder nicht, liegt dies an ihrer Postleitzahl.

“Viele Patienten sagen uns, dass ihre Symptome verschwinden oder dass ihnen gesagt wird, dass sie depressiv sind”, sagt sie.

“Obwohl das stimmt, sind sie oft aufgrund ihrer Fibrosymptome depressiv.

“Die Patienten berichten auch, dass sie sich zwischen Ärzten und Spezialisten von einer Säule zur nächsten bewegt haben, und es gibt nur eine Handvoll Kliniken, die auf Fibrose spezialisiert sind.”

Sie fügt hinzu: “Die Auswirkungen der Fibromyalgie werden unterschätzt. Wenn sich Menschen nicht unterstützt fühlen, kann dies zu Depressionen und Isolation und sogar zum Selbstmord führen. “

Hazel empfiehlt, eine zweite Meinung einzuholen oder eine Überweisung an ein auf Fibromyalgie spezialisiertes Zentrum anzufordern …

128 thoughts on “Wer leidet an Fibromyalgie: “Es ist, als hätten wir täglich 20 Esslöffel Energie.”

  1. First off I would like to say great blog! I had a quick question that I’d like to
    ask if you do not mind. I was curious to find
    out how you center yourself and clear your thoughts before writing.
    I have had difficulty clearing my mind in getting my thoughts out.

    I truly do take pleasure in writing but it just seems like the first 10 to 15 minutes are generally wasted just trying to
    figure out how to begin. Any recommendations or hints? Many thanks!

  2. Great blog you have here but I was wondering if you knew
    of any message boards that cover the same topics talked about in this article?

    I’d really like to be a part of community where I can get comments from other experienced people that share the same
    interest. If you have any recommendations, please let me know.

    Appreciate it!

  3. I just couldn’t depart your website before suggesting that I actually loved the standard info a
    person supply in your visitors? Is gonna
    be back steadily to check up on new posts

  4. Pretty nice post. I just stumbled upon your blog and wanted to say that I’ve really enjoyed browsing your blog
    posts. In any case I will be subscribing to your rss feed and I
    hope you write again soon!

  5. Hi would you mind letting me know which web host you’re utilizing?
    I’ve loaded your blog in 3 completely different internet browsers and I must say this blog loads
    a lot quicker then most. Can you suggest a good web hosting provider at a reasonable price?
    Kudos, I appreciate it!

  6. May I simply just say what a comfort to uncover a person that genuinely understands what they’re talking about online.
    You actually understand how to bring a problem to light and make it important.
    More people have to look at this and understand this side
    of your story. It’s surprising you’re not more popular since you surely possess the gift.

  7. Unquestionably believe that which you stated.
    Your favorite reason appeared to be on the web the easiest thing to be aware of.
    I say to you, I definitely get irked while people think about
    worries that they just don’t know about. You managed to hit
    the nail upon the top and defined out the whole thing without having side effect , people
    could take a signal. Will likely be back to get more.
    Thanks

  8. great put up, very informative. I’m wondering why the other specialists of this sector don’t understand this.
    You should continue your writing. I am confident, you have
    a great readers’ base already!

  9. We’re a group of volunteers and opening a brand new scheme in our community.
    Your website provided us with valuable information to work on.
    You’ve done a formidable task and our whole neighborhood will be grateful to
    you.

  10. It is in point of fact a great and helpful piece of
    information. I’m satisfied that you shared this useful info with
    us. Please stay us up to date like this. Thank you for sharing.

  11. I loved as much as you’ll receive carried out
    right here. The sketch is attractive, your authored subject matter stylish.
    nonetheless, you command get got an impatience over that you wish
    be delivering the following. unwell unquestionably come further formerly again since exactly the
    same nearly very often inside case you shield this hike.

  12. I know this if off topic but I’m looking into starting my own weblog and was wondering what all is required to
    get setup? I’m assuming having a blog like yours would cost a pretty penny?
    I’m not very web smart so I’m not 100% certain. Any suggestions or advice would be greatly appreciated.
    Thanks

  13. Hello There. I found your blog using msn. This is a very well
    written article. I will be sure to bookmark it and return to read more
    of your useful info. Thanks for the post. I’ll definitely comeback.

  14. I’m really enjoying the design and layout of your blog.
    It’s a very easy on the eyes which makes it much more
    enjoyable for me to come here and visit more often. Did you hire out a developer to create your theme?
    Outstanding work!

  15. Hello! I’m at work surfing around your blog from
    my new iphone! Just wanted to say I love reading your blog and look forward to all your posts!
    Keep up the excellent work!

  16. My spouse and I stumbled over here coming from a different
    page and thought I might check things out. I like what I
    see so i am just following you. Look forward to going over your web page
    again.

  17. It is the best time to make a few plans for the future and it’s time to
    be happy. I have learn this put up and if I may I wish to counsel you some interesting things or suggestions.
    Maybe you could write next articles referring to this article.

    I wish to read more issues about it!

  18. Does your website have a contact page? I’m having problems locating it but, I’d like to send
    you an email. I’ve got some recommendations for your blog you might be interested in hearing.
    Either way, great website and I look forward to seeing it improve over time.

  19. My developer is trying to persuade me to move to .net from PHP.
    I have always disliked the idea because of the expenses. But he’s tryiong none the
    less. I’ve been using WordPress on a number of websites
    for about a year and am worried about switching to another platform.
    I have heard good things about blogengine.net. Is there
    a way I can import all my wordpress posts into it?
    Any help would be greatly appreciated!

  20. Hi! This is my first visit to your blog! We are a team of volunteers and starting a new initiative
    in a community in the same niche. Your blog provided us beneficial information to work on. You have done a marvellous job!

  21. May I simply say what a comfort to uncover an individual
    who genuinely understands what they are talking about on the internet.
    You actually know how to bring an issue to light and make it important.
    A lot more people should check this out and understand this side of the story.

    It’s surprising you are not more popular since you surely have the gift.

  22. hi!,I like your writing so a lot! proportion we be in contact extra approximately your article on AOL?
    I require an expert on this house to resolve my problem.
    Maybe that’s you! Taking a look forward to peer you.

  23. Hello I am so happy I found your weblog, I really found you by mistake, while
    I was looking on Digg for something else, Regardless I
    am here now and would just like to say thanks for a
    fantastic post and a all round exciting blog (I also love the theme/design),
    I don’t have time to browse it all at the minute but I have book-marked it and also added your RSS feeds,
    so when I have time I will be back to read a
    great deal more, Please do keep up the excellent jo.

  24. Heya i’m for the first time here. I came across this board and I find It really
    useful & it helped me out a lot. I hope to give something back and help others like you aided me.

  25. Whats up are using WordPress for your site platform?
    I’m new to the blog world but I’m trying to get started and set up my
    own. Do you require any html coding knowledge
    to make your own blog? Any help would be greatly appreciated!

  26. Thanks for one’s marvelous posting! I definitely enjoyed reading it,
    you happen to be a great author.I will always bookmark your blog and will come back at
    some point. I want to encourage that you continue your great
    work, have a nice holiday weekend!

  27. I’ve been surfing on-line more than three hours
    lately, but I never found any fascinating
    article like yours. It is lovely value sufficient for me.

    Personally, if all web owners and bloggers made good content as you probably did, the web shall be a lot more
    helpful than ever before.

  28. Pretty part of content. I just stumbled upon your blog and in accession capital to say that I acquire
    actually loved account your weblog posts. Any way I’ll be subscribing for your augment or
    even I success you get right of entry to consistently quickly.

  29. I’m more than happy to find this web site. I want to to thank
    you for ones time due to this wonderful read!!

    I definitely appreciated every part of it and I have you bookmarked to look at new things on your
    blog.

  30. Thanks on your marvelous posting! I truly enjoyed reading
    it, you’re a great author.I will be sure to bookmark
    your blog and definitely will come back from now on. I want to encourage that you continue your great
    writing, have a nice day!

  31. I am really loving the theme/design of your weblog. Do you ever run into any browser compatibility issues?
    A handful of my blog visitors have complained about my website not working correctly in Explorer but looks great in Firefox.
    Do you have any suggestions to help fix this problem?

  32. Awesome website you have here but I was curious if you knew
    of any user discussion forums that cover the same topics talked about in this article?
    I’d really like to be a part of community where I can get feedback from other knowledgeable individuals that share the same interest.
    If you have any recommendations, please let me know.
    Cheers!

  33. Howdy! I understand this is kind of off-topic however I had to ask.
    Does managing a well-established website like yours take a massive
    amount work? I am completely new to writing a blog however I do
    write in my diary everyday. I’d like to start a blog so I can easily share
    my experience and thoughts online. Please let me know if you
    have any kind of ideas or tips for new aspiring bloggers.
    Appreciate it!

  34. After looking into a number of the blog articles on your site, I honestly like your way of writing a blog.

    I book-marked it to my bookmark site list
    and will be checking back in the near future. Please visit my website as well and tell
    me how you feel.

  35. hello!,I like your writing so much! share we keep up a correspondence more approximately your post on AOL?
    I require a specialist on this space to solve
    my problem. Maybe that is you! Taking a look ahead to peer you.

  36. Magnificent site. Lots of useful information here. I am sending it to a few friends ans additionally sharing in delicious.
    And naturally, thanks on your effort!

  37. Amazing issues here. I am very satisfied to peer your
    article. Thanks so much and I am looking forward to touch you.
    Will you please drop me a e-mail?

  38. I was more than happy to find this site. I want to to thank you for ones time just for this wonderful read!!
    I definitely appreciated every part of it and i also have you saved to fav
    to look at new things on your site.

  39. Hello, i think that i saw you visited my site thus i came to “return the favor”.I am trying
    to find things to enhance my website!I suppose its ok to
    use a few of your ideas!!

  40. This is the perfect site for anyone who wants to understand this topic.
    You understand a whole lot its almost tough to argue with you
    (not that I really will need to…HaHa). You definitely put a fresh spin on a subject that’s been discussed for decades.
    Great stuff, just excellent!

  41. You really make it seem so easy along with your presentation however I find this topic to be really something which I
    feel I’d by no means understand. It kind of feels too complicated and extremely large
    for me. I’m looking forward on your next put up, I will attempt to
    get the grasp of it!

  42. Attractive portion of content. I simply stumbled upon your blog and in accession capital to say that I get in fact enjoyed account your blog posts.
    Anyway I will be subscribing in your augment or even I success you get admission to consistently rapidly.

  43. Wonderful beat ! I would like to apprentice at the same time as
    you amend your web site, how could i subscribe
    for a blog site? The account aided me a acceptable deal.

    I had been tiny bit familiar of this your broadcast provided bright
    clear idea

  44. Right here is the right webpage for anyone who wishes to understand this topic.

    You know a whole lot its almost tough to argue with you (not that I personally will need to…HaHa).
    You certainly put a new spin on a topic that has been written about for ages.
    Great stuff, just wonderful!

  45. Its like you read my mind! You seem to know a lot about this, like you wrote
    the book in it or something. I think that you could do with
    some pics to drive the message home a little bit, but other than that, this is great
    blog. A fantastic read. I will certainly be back.

  46. Everything is very open with a clear explanation of the challenges.
    It was definitely informative. Your website is very useful.
    Thanks for sharing!

  47. I’m not sure exactly why but this blog is loading incredibly slow
    for me. Is anyone else having this problem or is it a
    issue on my end? I’ll check back later on and see if the problem still
    exists.

  48. Whats up are using WordPress for your site platform?

    I’m new to the blog world but I’m trying to get started and create my own. Do
    you need any html coding expertise to make your own blog?
    Any help would be greatly appreciated!

Leave a Reply

Your email address will not be published. Required fields are marked *