Een van de leden van onze besloten groep heeft dit verhaal met ons gedeeld en ons gevraagd het te publiceren om onze ziekte te verspreiden. Dit is wat u moet weten over mensen met fibromyalgie.
1. Mijn pijn
Mijn pijn is niet jouw pijn. Het wordt niet veroorzaakt door een ontsteking. Het nemen van je medicijn voor artritis zal me niet helpen. Ik kan mijn pijn niet verzachten of schudden. Het is niet eens een pijn die overblijft. Vandaag ligt op mijn schouder, maar morgen is het misschien op mijn voet of weg. Er wordt aangenomen dat mijn pijn wordt veroorzaakt door onvoldoende signalen die naar de hersenen worden gestuurd, mogelijk als gevolg van slaapstoornissen. Het is niet goed begrepen, maar het is echt.
2. Mijn vermoeidheid
Ik ben niet alleen moe. Ik ben vaak in een ernstige staat van uitputting. Misschien wil je deelnemen aan fysieke activiteiten, maar ik kan het niet. Neem dit alsjeblieft niet persoonlijk op Als je me gisteren zag winkelen in het winkelcentrum, maar vandaag kan ik je niet helpen met het werk in de tuin, het is niet omdat ik het niet wil. Hoogstwaarschijnlijk betaal ik de prijs voor het benadrukken van mijn spieren buiten hun bereik.
3. Mijn vergeetachtigheid
Degenen die eronder lijden, noemen we fibrofog. Ik herinner me je naam misschien niet, maar ik herinner je. Misschien herinner je je misschien niet meer wat ik je beloofde te doen, hoewel je me dat een paar seconden geleden hebt verteld. Mijn probleem heeft niets met mijn leeftijd te maken, maar het kan te maken hebben met een gebrek aan slaap. Ik heb geen selectief geheugen. Op sommige dagen heb ik helemaal geen kortetermijngeheugen.
4. Mijn onhandigheid
Als ik vijf keer op de tenen loop of struikel met je in een menigte, richt ik je niet opzettelijk. Ik heb daar geen spiercontrole voor. Als je achter me op de trap staat, wees geduldig. Tegenwoordig neem ik stap voor stap het leven en de trap op.
5. Mijn gevoeligheden –
Ik kan het niet uitstaan! “Dit” kan een aantal dingen zijn: fel zonlicht, harde of scherpe geluiden, geuren. FMS wordt de ‘verzwarende aandoening van alles’ genoemd. Laat me dus niet de gordijnen openen of je zoon horen gillen. Ik kan het echt niet uitstaan.
6. Mijn intolerantie
Ik kan ook niet tegen de hitte. Of vochtigheid Als ik een man ben, zweet ik … overvloedig. Als ik een dame ben, transpireer ik. Beide zijn even beschamend, dus voel je niet verplicht om op dit ongemak te wijzen. Ik weet. En wees niet verbaasd als ik ongecontroleerd bibber als het koud is. Ik tolereer ook de kou niet. Mijn interne thermostaat is gebroken en niemand weet hoe ik hem moet repareren.
7. Mijn depressie
Ja, er zijn dagen dat ik liever in bed of thuis zou blijven of zou sterven. Ernstige en niet aflatende pijn kan depressie veroorzaken. Uw oprechte bezorgdheid en begrip kunnen me van de rand raken. Uw sarcastische opmerkingen kunnen me tot het uiterste halen.
8. Mijn stress
Mijn lichaam kan de stress niet goed aan. Als ik moet stoppen met werken, parttime werk of mijn verantwoordelijkheden vanuit huis moet beheren, ben ik niet lui. De dagelijkse spanningen verergeren mijn symptomen en kunnen me volledig uitschakelen.
9. Mijn gewicht
Ik kan dik zijn of ik kan mager zijn. Hoe dan ook, het is niet uit vrije keuze. Mijn lichaam is niet jouw lichaam Mijn appestat is gebroken en niemand kan me vertellen hoe ik het moet repareren.
10. Mijn goede dagen
Als je me glimlachend ziet en normaal functioneert, neem dan niet aan dat het goed gaat met me. Ik lijd aan een chronische pijn en een vermoeidheidsziekte zonder genezing. Ik kan mijn goede dagen of weken of zelfs maanden hebben. In feite zijn goede morgen degenen die me vooruit helpen.
11. Mijn uniekheid
Zelfs degenen die last hebben van FMS zijn niet hetzelfde. Dat betekent dat ik niet alle bovengenoemde problemen kan hebben. Ik heb pijn boven en onder de taille en aan beide kanten van mijn lichaam, die lang heeft geduurd. Je hebt mogelijk migraine, heuppijn of schouder- of kniepijn, maar ik heb niet dezelfde pijn als welke andere persoon ook.
12. Mijn handicap
Mijn handicap is onzichtbaar maar bestaat nog steeds. Het is hetzelfde dat je geen lucht ziet, maar het is aanwezig, hetzelfde gebeurt met fibromyalgie, het bestaat, het is echt. Niet alles zit in onze hoofden, als het toen was, waarom zet ik dan niet iets op mijn hoofd dat herkenbaarder is als kanker, enz. We plaatsen dit decal van Fibromyalgia-beperkingen in hun auto’s en verspreiden awareness fibro.
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