fibromyalgie
Heb je ooit gehoord van fibromyalgie? Voor een lange tijd, heeft deze aandoening over het hoofd gezien door de medische wereld sinds de oorzaak is onbekend en daarom moeilijk te diagnosticeren. Echter, door het borstelen opzij dit onderwerp, zijn veel mensen die leven met chronische pijn en andere symptomen zonder farmaceutische hulp; Immers, zelfs hun artsen misschien niet weten. Toch is deze aandoening treft ongeveer 10 miljoen mensen in de VS en ongeveer 3-6% van de wereldbevolking. (1) Dat is een hoop mensen die lijden aan een medisch erkende aandoening. Echter, een land besloten om dat te veranderen.
Fibromyalgie in Noord-Ierland
In Noord-Ierland, is fibromyalgie steeds erkend als een langdurige aandoening door gezondheidswerkers, na drie jaar van de klachten wordt afgegeven aan de patiënt en de Cliëntenraad in Noord-Ierland. Dedicated leden geïnterviewd patiënten, lobbyde politici en gezondheidswerkers tot medische diensten stellen over de gezondheid trusts.
Eén slachtoffer, Martina Marks, merkt is het een verademing serieus genomen te worden. “Ik heb met de pijn woont sinds 1997. Op sommige momenten is chronisch kan worden, met pijn in mijn spieren en gewrichten,” zegt ze. Ze was niet gediagnosticeerd voor 10 jaar.
Louise Skelly, directeur van de operaties op de Patiënt en Cliëntenraad, zegt: “Wat we zijn verbaasd over is hoeveel patiënten naar voren zijn gekomen, de wil om hun verhalen te delen. Ze voelden zich erg geïsoleerd en erg alleen en wat we ook ontdekt is dat de artsen hebben ook dit een moeilijk gebied om in te werken gevonden, zodat ze het delen van kennis en informatie hebben verwelkomd.”
fibromyalgie Symptomen
Over leven met fibromyalgie, Marks legt uit: “Vaak is de pijn is ondraaglijk en dan heb je te maken met een slaapstoornis, hoofdpijn en gewoon niet in staat om te gaan met het dagelijks leven.” (2)
Behalve voor de pijn en tederheid in het lichaam, kunnen andere symptomen van fibromyalgie zijn onder meer:
- hoofdpijn
- Moeite met slapen
- ochtendstijfheid
- Cognitieve en geheugenproblemen
- IBS
- Pijnlijke menstruele krampen
- Gevoelloosheid of tintelingen in handen of voeten
- Temperatuurgevoeligheid
- Rusteloze benen syndroom
- De gevoeligheid voor harde geluiden of fel licht (3)
Fibromyalgie kan dagelijks leven een strijd te maken, soms stoppen van een patiënt niet in staat om goed te functioneren in een baan als de symptomen zijn onbehandeld. Vaak is de afwezigheid van werk kan leiden tot isolement, eenzaamheid en depressie.
“Het was belangrijk dat ik kreeg een diagnose, want ik had het doorlopen van verschillende behandelingen, het zien van verschillende artsen en niets gaf me opluchting”, zegt Marks. “Sommigen van hen niet begrijpen van de ziekte en ik denk dat we een bewustmakingscampagne nodig heeft voor de medische professie om de verscheidenheid van de symptomen met fibromyalgie en de ernst van het te begrijpen.”
Aan de Fibromyalgie Erkend als een chronische ziekte
De opkomst van het bewustzijn van fibromyalgie in Noord-Ierland is het brengen van deze ziekte op de voorgrond te genezen en verbeteren van de levens van mensen die lijden aan het. Zonder deze opleiding, zou medische professionals niet in staat zijn om vast te stellen en de juiste behandeling van deze patiënten, ongeacht door middel van medicatie, oefeningen, of alternatieve therapieën.
Als je in een land waar fibromyalgie niet als een chronische ziekte wordt erkend woont, kan dat betekenen dat er zijn talloze burgers die bij chronische pijn met geen idee van hoe het te behandelen. Gelukkig zijn er vele manieren waarop u kunt het bewustzijn te verspreiden, waaronder:
- Het plaatsen van feiten, statistieken en levensverhalen over fibromyalgie op sociale media
- Betrokken te raken bij de lokale fibromyalgiavoorlichting evenementen
- Hosting van uw eigen evenement om fondsen voor onderzoek te verhogen
- Doneren aan fibromyalgie organisatie of liefdadigheid
- Het hosten van een Facebook-pagina voor de mensen in uw omgeving met fibromyalgie
- Contact opnemen met uw senator of congreslid over extra financiering van onderzoek en behandeling
- Printondersteuning posters en opknoping ze op het werk / school /
- Draag een fibromyalgia paars lint en uitleg over de ziekte aan mensen die vragen waarom je het te dragen (4)
Voor degenen die lijden of sympathisanten van fibromyalgie, het is een opluchting om te weten dat Noord-Ierland uiteindelijk neemt een stand in het te erkennen als een lange-termijn probleem. Hopelijk zal deze verklaring verspreid naar andere landen en geven de gediagnosticeerde patiënten de behandelingen die ze verdienen. In de tussentijd, het verspreiden van kennis en het opleiden van onszelf op deze ziekte zal de patiënten dichter bij verlichting van de chronische pijn te brengen.
Als je worstelt met fibromyalgie, kijk dan op deze artikelen die alternatieve methoden te geven aan het overwinnen van de ziekte: 8 natuurlijke behandelingen voor Fibromyalgie Pain Relief en de 4 meest voorkomende oorzaken van fibromyalgie Dat niemand weet
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