Dit is hartseer dat sommige mense dink dat ons voorgee as ons sê dat ons fibromialgie het.

Soms sê hulle dit is omdat hulle dit nie kan sien nie, maar dit is in werklikheid die lelikste verskoning wat ek nog ooit gehoor het … Kan u kanker of MIV of diabetes sien? Kan u Alzheimersiekte of hartsiektes sien? Nee. Ten minste, nie sonder gevorderde mediese toerusting nie. En miskien vra fibro-skeptici om magnetiese resonansbeelding of laboratoriumresultate van mense met hierdie siektes te sien? Natuurlik nie. Hulle glo, periode.
Ek dink een van die dinge wat dit vir hulle moeilik maak om te verstaan dat ons regtig verkeerd is, is dat baie van ons dramatiese veranderinge in die manier waarop ons voel, is die sogenaamde krisisse. epidemies, verergerings en remissies. Ons kan ‘n paar weke relatief ordentlik voel, net om inmekaar te val en ‘n paar dae, ‘n week of ‘n maand ongelukkig te wees. Ons kan dikwels nie eens die op-en-afritte van die achtbaan wat ons self ervaar, verstaan nie, so dit is moeilik vir ander om te verstaan hoe siek ons is, veral as hulle ons waarskynlik net sien as ons nie in ‘n krisis is nie.
As iemand in u lewe u toestand bevraagteken, is hier ‘n paar antwoorde wat u kan gee:
- Fibromialgie by iemand wat u ken, kan beslis verwarrend wees. Mense is meer gewoond daaraan om chroniese siektes wat elke dag min of meer dieselfde is, beter te verstaan of beter te verstaan - waarin die pasiënt funksioneel is of nie. Vir die meeste mense is fibromialgie egter nie so nie. Inteendeel, dit word gekenmerk deur verskeie state wat krisisse of epidemies of remissies genoem word. Tydens remissie voel mense met fibromialgie redelik goed of aanvaarbaar. Dit lyk asof hulle in staat is om te doen wat hulle wil en nie baie kla oor die simptome nie. Dit is die beste sigbaar as u weg van die huis is of kuier. Maar dan val ‘n krisis aan en neem hulle ‘n rukkie weg van die wonderlike lewensritme. U kan hulle miskien nie veel sien gedurende hierdie periode van verergerde simptome nie. Tydens ‘n uitbraak, Dit kan wanfunksies hê of kan glad nie in staat wees om te funksioneer nie. Sommige gevalle is so ernstig dat selfs om ‘n stort te neem te veel moeite kan wees. Krisisse kan ‘n wye verskeidenheid simptome insluit, insluitend erge pyn en moegheid.
- Geestesmis, ook fibro-mis genoem, is nog ‘n algemene probleem in hierdie toestand. Dit kan daartoe lei dat die persoon nie in staat is om helder te dink nie, nie ‘n gesprek kan volg, ‘n sin voltooi of selfs verstaan wat hy lees nie. Hulle het min of geen korttermyngeheue nie en kan verward en gedisoriënteerd raak. Dit kan sonder twyfel baie frustrerend en verleentheid wees.
- Krisisse of epidemies kan skielik voorkom en daar is ontelbare situasies of situasies wat dit kan veroorsaak. Dit kan byvoorbeeld die feit wees dat die persoon getroud is om te gaan inkopies doen of om dagroetes te beoefen, wat tot ‘n epidemie lei. Dit kan ook wees as gevolg van hormone, ‘n stresvolle gebeurtenis, ‘n sterk bespreking, of dit kan ook gebeur dat ons nie ‘n aanloklike gebeurtenis vir die krisis kon identifiseer nie.
- Baie mense wonder of fibromialgie vervals kan word, veral omdat daar geen bloedtoets is om fibromialgie te diagnoseer nie. Pasiënte moet egter voldoen aan sekere diagnostiese kriteria wat deur ‘n reumatoloog beoordeel is (‘n volledige batterye laboratoriumtoetse om ander moontlike siektes uit te sluit, kliniese ondersoek van die dokter, onderhoud, snellerpunte, ens.) Om met fibromialgie gediagnoseer te word.
Die meeste mense met fibromialgie is baie lus om pret te hê of iets nuttigs te doen as om op die bed te lê of dae lank op die bank te lê.
Ongelukkig gebeur dit dikwels dat vriende verdwaal omdat hulle planne gereeld moet kanselleer, maar dit is nie omdat hulle nie tyd met mense wil spandeer nie, maar omdat hulle dit nie kan doen nie.
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