Si votre proche a la fibromyalgie, il est difficile de comprendre exactement ce qu’ils traversent à moins que vous avez fait l’expérience par vous-même. Ils ont probablement besoin de beaucoup plus de temps à dormir ou se reposer que vous et ne se sentent pas à sortir très souvent. La fibromyalgie peut aussi inhiber la capacité d’une personne à travailler, accomplir fonctionne ménage ou même faire des choses quotidiennes, comme se doucher et manger.
Si vous avez un conjoint de soutien ou autre significatif, il fait toute la différence. Ce n’est pas que nous avons la douleur et sont épuisés. Il change votre vie. Vous n’êtes plus le même physiquement ou mentalement (mon anxiété) tant de choses ont disparu. Je sais que tout le monde ressent la même chose.
Si une personne est une maladie chronique, mais l’autre est en bonne santé, cela peut facilement mis à rude épreuve sur même le plus fort des relations. Bien qu’il puisse être plus difficile de vous mettre dans l’autre de chaussures ou de trouver un équilibre dans lequel vous tous deux se sentent comme des partenaires égaux dans la relation, il est certainement pas impossible – et pour de nombreux couples, face à des obstacles ensemble comme une maladie chronique peut effectivement renforcer leur obligations et leur amour pour approfondir les uns les autres.
Nous avons demandé à notre communauté « Vivre avec la fibromyalgie et la maladie chronique » et « Vivre avec la fibromyalgie » pour partager des moyens pour les aider à leur conjoint ou partenaire avec la fibromyalgie. Si votre bien-aimé est affecté par une maladie chronique comme la fibromyalgie, cfs, peut-être les moyens suivants peuvent vous aider à mieux comprendre ce qu’ils vivent et de fournir quelques idées de choses que vous pouvez faire cela pourrait signifier le monde à eux.
Voici ce que notre communauté nous a dit:
1. Quand ils sont une dépression, tenez, laissez – les pleurer et que vous êtes là pour eux.
2. Apprenez autant que vous le pouvez à ce sujet. Sois patient. Vous pourriez ne pas comprendre ce qu’il est comme , mais faire preuve d’ empathie et l’ écoute de votre partenaire ou conjoint est si important. Amour inconditionnel.
3. Demandez à votre partenaire de vous écouter et de lire des gens qui ont aussi la fibromyalgie.
4. Évitez les culpabiliser. Rassurer et de l’ amour. Rester au lit et les tenir, dites – leur que vous êtes là pour le long terme. Et dire qu’il!
5. Croyez – les d’ abord, appuyer seconde, être gentil en tout temps troisième et tirez votre poids dans la relation d’une manière pratique. Ils ne prévoient pas plus que ce que vous avez fait et vous êtes à la fois dans cette chose ensemble pour aider à vous deux pour tirer le meilleur parti du voyage. Plus le soutien dont ils ont le plus vite ils trouveront leur propre niveau de condition physique et de la santé , mais il prend un certain temps et vous aurez besoin de les soutenir et de diminuer leur charge physique et émotionnelle autant que vous le pouvez.
6. Show Love et à ne pas poser trop de questions dans un temps flare up
7. Dessine un bon bain chaud, se laver les cheveux, les aider à sortir, sèche et se brosser les cheveux. Ensuite , il suffit d’ écouter serait bien.
8. Soyez compréhensif, patient, partager les tâches ménagères, appuyer alors que d’ autres remettent en question la véracité de la maladie, rappelez – vous que cette maladie est de vous la faute ou la peine de personne. Surtout, ne jamais cesser d’ aimer la personne atteinte.
9. Faites exactement ce que vous voulez que votre amour un à faire pour vous si les rôles étaient inversés.
Par- dessus tout, être gentil, affectueux, patient et drôle
10. Pas de culpabilité, une sympathie lil et auto entretien. Parfois , je ne peux prendre soin de moi – même … faire le dîner une fois par semaine. Vac ou une douche propre. Rappelez – vous que nous ne pouvons pas prendre les choses de la même chose, ou je ne peux pas, dix livres et je suis tout sauf usaient
11. Non seulement entendre ce qu’ils disent , mais en fait écouter!
12. Demandez souvent sur les différents aspects de la douleur, leur apporter de petites choses que les paquets aide-glace, médicaments, boissons, coussin chauffant … .lay avec eux leur dire combien tu veux l’emporter. Comprendre leurs luttes, faire des recherches
13. Remplissez les lacunes .. différentes formes de soutien où il y a des lacunes. Il est des attentes express profondes afin qu’ils soient connus et compris alors comprendre comment il peut être impossible à réaliser. Sois créatif. Aide à la douleur ou le sommeil besoin le week – end, mais je ne veux nettoyer, peigne plage, chercher le verre de mer, kayak mais il est limité, jouer au volley – ball (ne peut plus) Je crois personnellement le mouvement est nécessaire de récupérer jusqu’à ce que le picotement dans mes jambes commencent à partir de la douleur. Si elle se sent comme une attelle de tibia je poussais parce qu’il se sentait très bien. Je peins la garniture et les fenêtres qui prendrait une personne en bonne santé d’ un été. Il va me prendre deux. Je suis ok avec elle. Ceci est un exemple d’attentes encore baissées me aider à atteindre les objectifs qui renforce mon estime et la force.
14. Ne dites jamais que vous êtes paresseux
15. Ne jamais les couper pour ne pas se sentir bien ou ne pas être en mesure de faire les choses qu’ils pourraient faire une fois. Soyez poli, même si vous ne comprenez pas tout.
16. Ne laissez jamais des situations stressantes. Leur permettre de se reposer quand ils en ont besoin.
Si possible en direct quelque part la pression barométrique ne change pas trop much- ewh la douleur!
17. Il y a un livre merveilleux appelé Fibromyalgie pour les nuls. Mon fils a lu je ne sais pas combien de fois. Il voulait vraiment comprendre et aider. Mon mari d’autre part à gauche dans un mois.
18. Quand je dis que je peux sentir l’énergie drainée hors de moi comme une aiguille prise de sang s’il vous plaît me laisser reposer parce que la douleur des sueurs de la grippe et le brouillard du cerveau sont juste autour du coin.
19. Assurez – vous qu’ils comprennent que , bien qu’ils ne peuvent pas fonctionner comme avant qu’ils ne soient encore un membre apprécié de la famille et qu’ils ne sont pas un fardeau.
20. Demandez à votre conjoint ce qu’ils aimeraient de vous et leur faire savoir que vous voulez aider de quelque façon que vous pouvez . Chaque petite faveur ou l’ aide fait une différence pour moi, mais nous sommes tous différents. Certains préfèrent le plus d’ indépendance possible. Beaucoup préfèrent être demandé avant d’ assumer automatiquement ce qui voulait ou avait besoin. Offre d’aider ou de faire des choses pour aider autour de la maison sans demander une fois que vous savez ce qui voulait et avait besoin. Certains d’ entre nous se sentent coupables d’avoir mis le fardeau pour les autres.
Rassurer votre conjoint que vous êtes là pour eux et ne me dérange pas d’aider peut et que vous voulez soutenir et comprendre le mieux possible peut être un énorme soulagement pour votre conjoint. Personnellement, je ne aime mes masser les pieds avec une lotion. D’autres zones sont trop sensibles pour le massage. Je besoin d’aide autour de la maison, avec des magasins, etc. J’ai besoin environnement paisible pour se reposer.
Ce qui aiderait votre conjoint? Ce qui aiderait votre conjoint se sentent peu mieux ou -a plus confortable. Sachez que vous ne pouvez pas corriger ou modifier la maladie, mais vous pouvez offrir une assistance et de confort. Trop souvent , les gens offrent des conseils non sollicités et qui peuvent faire empirer les choses, mettre les attentes et la pression plus irréalistes sur moi. Ensuite , je peux devenir plus déprimé ou le sentiment de culpabilité et de honte inutile.
J’espère que cela t’aides. 💜
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