Vermoeidheid door fibromyalgie is meer dan moe zijn.

Uit gedetailleerde interviews met 40 fibromyalgiepatiënten uit drie landen (Verenigde Staten, Duitsland en Frankrijk) blijkt dat vermoeidheid na pijn het tweede meest vervelende symptoom is.

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Het onderzoek werd ingegeven door eerdere onderzoeken waarin patiënten opmerkingen maakten dat vermoeidheid een symptoom was dat geëvalueerd kon worden in behandelingsonderzoeken. Momenteel hangt het succes van een therapie voornamelijk af van hoe goed het de pijn van fibromyalgie vermindert, met weinig of geen aandacht voor vermoeidheid. Bovendien is er geen duidelijk begrip van de belangrijkste kenmerken van vermoeidheid die moeten worden gemeten.

Tijdens de interviews werden de patiënten open vragen gesteld, zoals: “Vertel me over je ervaring met fibromyalgie.” Daarom was het doel van de interviews niet om specifiek te vragen naar vermoeidheid, omdat de onderzoekers wilden horen wat de patiënten hadden. Spontaan over uw symptomen zeggen.

De gemiddelde duur van fibromyalgiesymptomen voor de 40 deelnemers was 6,6 jaar, hun gemiddelde leeftijd was 49 jaar en 70% van hen was vrouw. Gevraagd naar hun ervaring met fibromyalgie meldden zij de volgende symptomen, zonder enige aanwijzing:

  • pijn (78%)
  • vermoeidheid (43%)
  • moeilijkheden om te slapen (18%)
  • mobiliteitsproblemen (10%)

Vergeet niet dat dit was gebaseerd op uw ongevraagde opmerkingen over fibromyalgie. Toen werd gevraagd om de drie belangrijkste symptomen te beoordelen, was de volgorde in principe hetzelfde, maar de percentages waren veel hoger.

“Fibromyalgiemoeheid werd beschreven als een overweldigend gevoel van vermoeidheid dat niet verlicht werd door slaap of rust en vaak niet evenredig is aan de inspanning (dwz deelnemers beschreven vermoeidheid na heel weinig te hebben gedaan)” , bevestigen de auteurs. Deelnemers maakten ook duidelijk dat hun vermoeidheid gerelateerd aan fibromyalgie niet alleen “normale vermoeidheid” was.

De deelnemers beschreven hun vermoeidheid in meer detail in de volgende acht categorieën die velen van jullie waarschijnlijk kunnen relateren aan:

  • Overweldigend gevoel van vermoeidheid (43%): soms tot het punt dat ze niets konden doen.
  • Niet opgelucht door rust of slaap (38%): vermoeidheid hield aan, zelfs na wat de patiënt voelde als een goede nachtrust
  • Het is niet evenredig aan de inspanning (63%): er is niet veel voor nodig om dit symptoom op gang te brengen
  • Gevoel van zwakte of zwaarte (28%): het lichaam voelt zwaar, zwak of ontbreekt aan kracht
  • Het is moeilijk om gemotiveerd te zijn (83%): het kost veel moeite om dingen voor elkaar te krijgen, zoals gewoon opstaan ​​en ‘in de ochtend’ opstaan.
  • Moeilijkheden met de dingen die ze willen doen (60%): moeheid / moeheid maakt het moeilijk om te doen wat ze willen of moeten doen.
  • Langzamer dingen doen (38%): het kost meer tijd om dingen te doen en sommige patiënten voelden dat het gerelateerd was aan het gevoel van zwaarte of zwakte
  • Moeite met concentreren, denken of herinneren (68%): vermoeidheid / vermoeidheid beïnvloedt het concentratievermogen, problemen om dingen te onthouden, moeite met helder denken of gefocust blijven

“Mannen en vrouwen beschreven de ervaring van vermoeidheid en de impact ervan op een zeer vergelijkbare manier”, schrijven de auteurs. Samenvatting van hun bevindingen, in fibromyalgie, “vermoeidheid lijkt het tweede belangrijkste symptoom te zijn en een die een aanzienlijke invloed heeft op het leven van patiënten.” Omdat er zoveel symptomen van vermoeidheid gerelateerd zijn aan fibromyalgie, zal het een uitdaging zijn. Evalueer de impact van dit symptoom in behandelingsonderzoeken. Maar de resultaten van deze studie kunnen leiden tot betere hulpmiddelen voor het nauwkeurig meten van “vermoeidheid” bij patiënten met fibromyalgie.

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