Detaljerad intervju av 40 fibromyalgi patienter från tre länder (USA, Tyskland och Frankrike) visar att trötthet är det näst störst symptomet efter smärta.

Forskningen var förevänd av tidigare studier som inkluderade patientens kommentarer att trötthet var ett symptom värt att utvärderas i behandlingsförsök. För närvarande beror framgången av en terapi främst på hur bra det minskar smärtan vid fibromyalgi, med liten eller ingen uppmärksamhet på trötthet. Dessutom finns det ingen klar förståelse för de viktigaste egenskaperna hos trötthet som måste mätas.
Under intervjuerna frågades patienterna öppna frågor, såsom: “Berätta om din erfarenhet av att ha fibromyalgi.” Därför var syftet med intervjuerna inte att fråga specifikt om utmattning, eftersom forskarna ville höra vad patienterna hade. Säg spontant om dina symtom.
Den genomsnittliga varaktigheten av fibromyalgi symptom för de 40 deltagarna var 6,6 år, deras genomsnittliga ålder var 49 år och 70% av dem var kvinnor. När de frågades om deras erfarenhet av fibromyalgi rapporterade de följande symptom, utan någon indikation:
- smärta (78%)
- trötthet (43%)
- svårigheter att sova (18%)
- rörlighetsproblem (10%)
Kom ihåg att detta var baserat på dina oönskade kommentarer om fibromyalgi. När du bad om att betygsätta de tre huvudsymptomen var ordern i princip densamma men procentsatserna var mycket högre.
“Trötthet fibromyalgi beskrivs som en överväldigande känsla av trötthet som inte lindras genom sömn eller vila och ofta inte i proportion till den kraft (dvs. deltagarna beskrivs trötthet efter att ha gjort mycket lite)” , bekräftar författarna. Deltagarna gjorde också klart att deras trötthet relaterade till fibromyalgi inte bara var “normal trötthet”.
Deltagarna beskrev deras trötthet mer detaljerat i följande åtta kategorier som många av dig kan troligen relatera till:
- Överväldigande känsla av trötthet (43%): Ibland till den punkten att de inte kunde göra någonting.
- Inte lindrad av vila eller sömn (38%): Trötthet kvarstod även efter det att patienten tyckte att det var en god natts sömn
- Det är inte proportionerligt med den ansträngda ansträngningen (63%): det tar inte mycket för att utlösa detta symptom
- Känsla av svaghet eller tyngd (28%): kroppen känner sig tung, svag eller saknar styrka
- Det är svårt att känna sig motiverad (83%): det krävs mycket för att få saker gjorda, precis som att gå ut ur sängen och “gå” på morgonen
- Svårighet att göra saker de vill göra (60%): trötthet / trötthet gör det svårt att göra vad de vill eller behöver göra.
- Att göra saker långsammare (38%): det tar mer tid att göra saker och vissa patienter kände att det var relaterat till känslan av tyngd eller svaghet
- Koncentrationssvårigheter, tänker eller komma ihåg saker (68%): trötthet / trötthet påverkar förmågan att koncentrera sig, svårt att komma ihåg saker, svårt att tänka klart eller vistas fokuserad
“Män och kvinnor beskrev erfarenheten av trötthet och dess inverkan på ett mycket liknande sätt,” skriver författarna. Sammanfatta sina resultat i fibromyalgi “trötthet verkar vara den näst viktigaste symptom och en som har en betydande inverkan på patienternas liv.” Eftersom det finns så många symtom på trötthet i samband med fibromyalgi kommer det att bli en utmaning. Utvärdera effekterna av detta symptom vid behandlingstester. Men resultaten av denna studie kan leda till bättre verktyg för att exakt mäta “trötthet” hos patienter med fibromyalgi.
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