The fibromyalgia chart: “How to explain fibro to your family and friends”.

Hello family, friends and anyone who wants to know me.

How do I explain this to my family and friends? This is very difficult to do since my illness is “invisible”. So let me start by thanking you for taking the time of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and theirs is appreciated.

{{{Fibromyalgia is a chronic condition characterized by widespread pain in the muscles, ligaments and tendons, as well as fatigue and multiple tender points: places in the body where mild pressure causes pain. Myofascial pain syndrome is a chronic form of muscle pain. The pain of myofascial pain syndrome centers around sensitive points in your muscles called trigger points. The trigger points in your muscles can be painful when touched. And pain can spread throughout the affected muscle.}}}

I want to talk with you about fibromyalgia (FM) and chronic myofascial pain syndrome (MPS). Many have never heard of these conditions and for those who have done so, many are misinformed. And because of this, judgments are made that may not be correct. So I ask you to keep an open mind as I try to explain who I am and how FM / MPS has attacked not only my life but also those I love.

I can not show you a physically open wound to show how much pain I feel. If I could, you could take a look, tell me to sit down, bring me a pillow, offer me something to eat or drink and have that worried and understanding look on your faces. However, with fibromyalgia, many people will hear that they prefer to have a broken leg at any time instead of suffering the kind of pain that these disorders cause. For me, a broken leg is even a bad example to compare suffering with these disorders and an insult to those of us with those disorders.

You see, I suffer from a disease that you can not see; a disease for which there is no cure and which keeps the medical community confused about how to treat and fight this demon, whose attacks are implacable. My pain works silently, stealing my joy and replacing it with tears. On the outside we resemble you and me; You will not see my scars as you would with a person who, for example, suffered a car accident. You will not see my pain in the way I would with a person receiving chemotherapy for cancer; however, my pain is just as real and debilitating. And in many ways, my pain can be more destructive because people can not see it and do not understand it …

You must see with your ears and your heart what your eyes can not see. You must listen carefully to what I say. It is possible that what I describe does not make much sense and it is difficult for you to understand it. Sometimes it may seem like a different universe from the one I speak. Know that it probably is. You do not have to fully understand my universe and you can not. However, listen to my pain, listen to the warning signs whenever there is any sign of danger in which you may need additional help. I like to call it “send troops”. At any moment I do not seem to be in touch with reality.

Please, do not be upset by my apparent lack of interest in doing things; I punish myself enough, I assure you. My tears spill many times when there is no one around. My shame is covered by a joke or a laugh, but inside I want to die. You will hear many things about me that seem easy to solve. You may wonder why I make the same “wrong” decisions over and over again. Why have not I learned at this time? Why can not I see the lack of sense of my behavior? It may seem that I am putting my life together and that they hit bottom again …

Please understand the difference between “happy” and “healthy”. When you have the flu, you probably feel miserable with it, but I’ve been sick for years. I can not be miserable all the time, in fact, I work hard not to be miserable. So if you talk to me and I sound happy, it means that I am happy. That is all. I can be tired. I may have pain. I may be sicker than ever. Please do not say, “Oh, you’re sounding better!” I’m not sounding better, I’m sounding happy …

What is hapening here? Am I lazy, stupid, etc? No My brain and my physical body is very different from yours. I experience life differently from the way you do it. I feel different from you. Most of my “friends” are gone; Even members of my own family have abandoned me. I have been accused of “playing games” because of the sympathy of another. I have been called unreliable because I am forced to cancel the plans I made at the last minute due to burning and pain in my legs or arms and shoulders. The pain can be so intense that I can not put on my clothes and I’m left with tears because I lose another activity that I used to love and once I participated enthusiastically. Do I experience mood swings? If it hurts, I can be angry, sad, depressed or any of the hundred moods of the world. I will never know with what mood I will wake up. I can treat you cruelly and tell you horrible things; I can ignore you completely, or cry on your shoulder without stopping when I’m in Fibro Flair. Maybe you wonder what you said or did that you did to me this way. Well, you did not do anything, it’s Fibromyalgia and all its underlying factors that cause this.

{{{While the most predominant symptoms of fibromyalgia include generalized pain and persistent fatigue, the cognitive deterioration resulting from this condition can be its most maddening. Commonly known as fibro fog, this symptom is a conglomerate of cognitive challenges. It is understood that fibrous fog is a physical symptom of fibromyalgia, not a psychological one. Just as there are not two people who experience fibromyalgia in the same way, foggy fibrous fog also has a variable range of indications, which include: mental confusion, confused thinking, short-term memory loss, inability to concentrate or pay attention and language failures}}}

That’s why I feel like a child sometimes. Just the other day I put the eggs that I bought in the pantry, on the shelf, instead of in the refrigerator. When I talk to people, I often lose the thread of my thoughts in the middle of a sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have me behind me again at home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the keys, only to find them in the freezer. While I try to maintain my dignity, the Devil assails me at all times. I have a physical illness and it’s not my fault and I did not ask for it. I do not love her and I do not deserve her.

{{{Occurring at the deepest level of the sleep cycle, people with fibromyalgia generally lack sufficient restful sleep. We know that in the deepest levels of sleep, called delta wave sleep, a person’s mind carries out internal domestic tasks. During delta wave sleep, newly acquired information is assimilated and integrated into the brain. The inability to get enough delta wave sleep affects the ability to remember information and operate at a normal level of mental efficiency.}}}

I sleep, when I get something, is restless and I wake up often because of the pain of the sheets on my legs or because I contracted uncontrollably. I go through many of my days, dazed, with Fibro-fog laughing at me as I stumble and cling to clarity.

Just because I can do something one day, that does not mean I can do the same thing the next day or next week. Maybe I can take that walk after dinner on a warm July night; It is possible that the next day, or even the next hour, I can not walk to the fridge to have a cold drink because my muscles have started to get cramp and block or suffer spasms without control. There are those who say “but that’s what you did yesterday!” “What is your problem today?” The pain I feel for those words scares me so much that I have disappointed my family and friends; and even then they do not understand.

On the positive side, I want you to know that I still have my sense of humor. If you take the time to spend with me you will see that. I love telling that joke to make someone else’s face light up and smile at my wit. I find it fun to be with you if you spend time with me on my own playground; this is a lot to ask? I do not want anything more than being part of your life. I have discovered that I can be a strong friend in many ways. I am your friend, your supporter and many times I will be the one who investigates your last project; Many times I will be your biggest fan and the world will know how proud I am of your achievements and how much I am honored to have you in my life.

All I ask is that you educate yourself about fibromyalgia. I am someone in your life who suffers from fibromyalgia. You may think you know everything there is to know about it, but there is more information than you think. It’s more complicated than you think, and it’s more of a life change than you think.

{{{Lend a helping hand. If you want to be helpful to someone with fibromyalgia, just ask what you can do. Be flexible with invitations and plans that you have made. Understand that sometimes the pain of fibromyalgia is overwhelming. Be active. Accompany them to a doctor’s appointment and take an active interest in their treatment. You can take notes at the doctor’s office and then review your notes together at home. Don’t take things personally. Some people with fibromyalgia suffer from sudden mood changes. Try not to take these mood swings personally as they are part of the syndrome.}}}

So you see, you and I are not very different. I also have hopes, dreams, goals and this devil. Do you have an invisible demon that assaults you and nobody else can see? Have you had to fight a fight that crushes you and puts you on your knees? I will be by your side, win or lose, I promise; I will be there the way I can. I will give everything I can, I promise. But I have to do this my way. Please understand that I am in such a struggle myself and I know that I have little hope of a cure or effective treatments, at least now.

Thanks for spending your time with me today. I hope we can work through this, you and me. Please, understand that I am like you.

So I need you to understand me please. Unknown author through the notes of Fibro Color

129 thoughts on “The fibromyalgia chart: “How to explain fibro to your family and friends”.

  1. I think this is one of the most important info for
    me. And i am glad reading your article. But should remark on few general things, The site style is great, the articles is
    really great : D. Good job, cheers

  2. My brother suggested I would possibly like this blog.

    He was once entirely right. This publish truly made my day.
    You can not imagine just how so much time I had spent for this info!

    Thank you!

  3. Hi, Neat post. There’s a problem along with your web site in internet explorer,
    may test this? IE still is the market chief and a large part of people will omit your magnificent writing due to this problem.

  4. Hey there! Would you mind if I share your blog
    with my twitter group? There’s a lot of folks that I think would really appreciate your content.

    Please let me know. Thanks

  5. Hey, I think your blog might be having browser compatibility issues.
    When I look at your blog site in Ie, it looks fine but when opening in Internet Explorer, it
    has some overlapping. I just wanted to give you a quick heads up!
    Other then that, superb blog!

  6. Heya! I realize this is kind of off-topic but I had to ask.
    Does building a well-established website such as yours take a lot
    of work? I’m completely new to writing a blog however I do write in my journal
    on a daily basis. I’d like to start a blog so I will be able to share
    my personal experience and views online. Please let me know if you
    have any ideas or tips for new aspiring blog owners.

  7. It’s remarkable to pay a quick visit this site and reading the views
    of all mates regarding this piece of writing, while I am also keen of getting know-how.

  8. Hello There. I found your blog using msn. This is an extremely well written article.
    I’ll be sure to bookmark it and come back to
    read more of your useful info. Thanks for the post.
    I will definitely return.

  9. Somebody essentially lend a hand to make critically articles I might state.

    That is the first time I frequented your website page and to this point?

    I surprised with the research you made to create this actual submit extraordinary.
    Excellent activity!

  10. Somebody essentially lend a hand to make severely articles I might state.

    That is the first time I frequented your web page and so far?
    I amazed with the analysis you made to create this actual post amazing.
    Magnificent activity!

  11. Great blog! Is your theme custom made or did you download it from somewhere?

    A design like yours with a few simple adjustements would
    really make my blog jump out. Please let me know where you got your theme.
    Bless you

  12. Hi every one, here every person is sharing these knowledge, so it’s
    nice to read this website, and I used to go to see this website daily.

  13. Nice post. I learn something new and challenging on sites I stumbleupon on a daily basis.
    It will always be helpful to read through articles from other writers and practice something
    from their web sites.

  14. Great beat ! I wish to apprentice while you amend your web site, how can i subscribe for
    a blog site? The account aided me a acceptable deal.
    I had been tiny bit acquainted of this your broadcast offered
    bright clear idea

  15. Good day! I know this is kind of off topic but I
    was wondering which blog platform are you using
    for this site? I’m getting tired of WordPress because I’ve had
    issues with hackers and I’m looking at alternatives for another platform.
    I would be fantastic if you could point me in the direction of a good platform.

  16. Thank you a bunch for sharing this with all people you actually know what you’re speaking approximately!
    Bookmarked. Please additionally consult with my site =).

    We may have a link exchange arrangement between us

  17. Hello there I am so happy I found your blog page,
    I really found you by accident, while I was looking on Askjeeve for something else,
    Regardless I am here now and would just like to say kudos for a tremendous post and a all round interesting blog (I also love
    the theme/design), I don’t have time to read it all at the minute but I have book-marked
    it and also added in your RSS feeds, so when I have
    time I will be back to read a lot more, Please do keep
    up the awesome jo.

  18. I’ll right away grab your rss as I can not in finding your e-mail subscription link or e-newsletter service.
    Do you’ve any? Please permit me know in order that I could subscribe.

  19. It’s not my first time to go to see this web page, i am browsing this web site dailly and get pleasant facts from
    here everyday.

  20. I’m not that much of a internet reader to be honest but your blogs really
    nice, keep it up! I’ll go ahead and bookmark your website to come back
    later. Many thanks

  21. My partner and I stumbled over here different page and thought
    I may as well check things out. I like what I see so i am just following you.
    Look forward to looking over your web page

  22. Hi, i think that i saw you visited my web site thus i came to “return the favor”.I am
    trying to find things to enhance my web site!I suppose its ok to use a few of your ideas!!

  23. Does your site have a contact page? I’m having a tough time locating it but, I’d like to shoot you an email.
    I’ve got some suggestions for your blog you might be interested in hearing.
    Either way, great blog and I look forward to seeing it grow over time.

  24. Link exchange is nothing else except it is only placing the other
    person’s webpage link on your page at proper place and other person will also do same
    in support of you.

  25. Hello! This is kind of off topic but I need some guidance from an established blog.
    Is it tough to set up your own blog? I’m not very techincal but I can figure
    things out pretty fast. I’m thinking about creating my own but I’m not sure where to begin.
    Do you have any points or suggestions? Thanks

  26. Very great post. I just stumbled upon your weblog and wanted to
    say that I have truly loved surfing around your blog posts.

    In any case I will be subscribing on your rss feed and I’m hoping you write
    once more soon!

  27. Hey there would you mind stating which blog platform you’re working with?
    I’m looking to start my own blog soon but I’m having a
    tough time making a decision between BlogEngine/Wordpress/B2evolution and Drupal.

    The reason I ask is because your design seems different then most blogs and I’m looking for
    something unique. P.S My apologies for being off-topic but
    I had to ask!

  28. Hey would you mind sharing which blog platform you’re working with?
    I’m going to start my own blog soon but I’m having a difficult time selecting between BlogEngine/Wordpress/B2evolution and Drupal.
    The reason I ask is because your layout seems different then most blogs and I’m
    looking for something completely unique.
    P.S Apologies for being off-topic but I had to ask!

  29. hello!,I really like your writing very much! share
    we keep in touch extra approximately your article
    on AOL? I require a specialist on this space to
    solve my problem. May be that’s you! Having a look forward to
    see you.

  30. I want to to thank you for this wonderful read!! I certainly loved every
    little bit of it. I have got you book marked to look at
    new stuff you post…

  31. Hi this is somewhat of off topic but I was wondering if blogs use WYSIWYG editors or if you have to manually
    code with HTML. I’m starting a blog soon but have no coding experience so I
    wanted to get advice from someone with experience. Any help would be enormously appreciated!

  32. Hi there! This is my first visit to your blog!
    We are a group of volunteers and starting a new initiative in a community in the same niche.
    Your blog provided us valuable information to work on. You have done a extraordinary job!

  33. Your style is really unique compared to other people I have read stuff from.
    Thanks for posting when you’ve got the opportunity, Guess I’ll just bookmark this page.

  34. Excellent blog you have here but I was curious about if you knew of any community forums that cover the same topics
    talked about here? I’d really like to be a part of online community where I can get feed-back from other experienced people that share the same interest.

    If you have any suggestions, please let me know.
    Thanks a lot!

  35. Howdy excellent blog! Does running a blog similar to this take a lot of work?
    I have virtually no understanding of programming but I was hoping to start my own blog soon.
    Anyways, should you have any suggestions or tips for new blog owners please share.
    I understand this is off topic but I simply needed to ask.

  36. Thank you for the good writeup. It in fact was a amusement account it.

    Look advanced to more added agreeable from you! By the way, how could we communicate?

  37. Hi there! Do you know if they make any plugins to
    safeguard against hackers? I’m kinda paranoid about losing everything I’ve worked hard on. Any suggestions?

  38. I believe everything published was actually very reasonable.
    But, what about this? suppose you typed a catchier title?
    I mean, I don’t want to tell you how to run your blog,
    however what if you added a title that grabbed a person’s attention? I mean The fibromyalgia chart: “How to explain fibro
    to your family and friends”. – HEALTHY LIVING AT HOME is a little vanilla.

    You ought to peek at Yahoo’s front page and see how they
    create article headlines to grab viewers to click. You might try
    adding a video or a related pic or two to get people interested about what you’ve
    written. Just my opinion, it might make your posts a little livelier.

  39. Thanks for finally writing about >The fibromyalgia chart: “How to explain fibro to your family and friends”.

  40. Wow, wonderful blog layout! How lengthy have you ever been blogging for?
    you make running a blog look easy. The whole look of
    your website is fantastic, let alone the content

  41. Fine way of explaining, and pleasant paragraph to take information on the topic of my presentation subject, which i am going to present
    in university.

  42. I know this if off topic but I’m looking into starting my
    own blog and was wondering what all is needed to get set up?
    I’m assuming having a blog like yours would cost a pretty penny?
    I’m not very internet smart so I’m not 100% sure. Any tips or advice
    would be greatly appreciated. Appreciate it

  43. Attractive section of content. I just stumbled upon your
    website and in accession capital to assert that I get actually enjoyed account your blog posts.
    Any way I will be subscribing to your feeds and even I achievement you
    access consistently quickly.

  44. Appreciating the hard work you put into your website and detailed information you present.
    It’s awesome to come across a blog every once in a while that isn’t the same unwanted rehashed information. Wonderful
    read! I’ve saved your site and I’m adding your RSS feeds to my Google account.

  45. Hey! This post could not be written any better! Reading through this post reminds me of my old room mate!
    He always kept chatting about this. I will forward this page to him.
    Fairly certain he will have a good read. Thank you for sharing!

  46. You could definitely see your enthusiasm within the article
    you write. The sector hopes for even more passionate writers such as you who are not afraid to say how they believe.
    Always follow your heart.

  47. Pingback: Google
  48. Pingback: Google
  49. Pingback: virtual Mastercard
  50. Write more, thats all I have to say. Literally, it seems as though you relied on the video to make your point.
    You obviously know what youre talking about, why throw away your
    intelligence on just posting videos to your site when you could be giving us something enlightening
    to read?

  51. Hi there would you mind letting me know which hosting company
    you’re utilizing? I’ve loaded your blog in 3 completely different
    browsers and I must say this blog loads a lot quicker then most.
    Can you recommend a good internet hosting provider at a reasonable price?
    Many thanks, I appreciate it!

  52. Hi there! This is kind of off topic but I need some advice from an established blog.
    Is it difficult to set up your own blog? I’m not very techincal but I
    can figure things out pretty fast. I’m thinking
    about making my own but I’m not sure where to begin. Do you have any ideas or suggestions?


  53. I blog often and I genuinely appreciate your content. This great article
    has truly peaked my interest. I will bookmark your
    website and keep checking for new details about once a
    week. I opted in for your RSS feed as well.

  54. Definitely assume that that you simply stated. Your best
    justification seemed to be in the net the easiest
    thing to be familiar with. I say for your needs, I certainly get annoyed while people consider worries which they just
    don’t find out about. You managed to hit the nail upon the best and
    also defined out the whole thing without the
    need of side-effect , people can require a signal.

    Will probably come back to obtain more. Thanks

    Look at my homepage – AntwanUKarsh

Leave a Reply

Your email address will not be published.