Door: melissa erickson
Lijden aan fibromyalgie betekent het omgaan met pijn, slaapstoornissen, depressie, problemen van denken en geheugen.
Even moeilijk is de scepsis van vrienden, familie en de medische gemeenschap die twijfelen aan de validiteit van de ziekte zelf.
Fibromyalgie, weinig bekend en vaak onjuist gediagnosticeerd, treft ongeveer 2% van de bevolking, volgens de Centers for Disease Control and Prevention.
Dit nummer wordt betwist door anderen die zeggen treft meer dan 10 miljoen Amerikanen, of ongeveer 6% van de bevolking, zei Dr. Bruce Gillis, oprichter van Epicgenetics, een biomedisch bedrijf dat de FM / een bloedonderzoek heeft ontwikkeld dat volgens hem wordt hij gediagnosticeerd met fibromyalgie.
Wat?
Fibromyalgie is een chronische aandoening gekenmerkt door wijdverspreide spierpijn en gezamenlijke en gevoeligheid op het niveau van het lichaam of in gelokaliseerde gebieden, samen met andere symptomen zoals frequente hoofdpijn, slecht slapen, rusteloze benen of krampen, gevoelloosheid of tinteling .
Ongeveer 60 procent van de vrouwen en 40 procent van de mannen worden getroffen door de zieken, zei Gillis.
Al honderden jaren is fibromyalgie verkeerd begrepen, zei Gillis. Patiënten – meestal vrouwen – werden als neurotisch gemarkeerd. Een eeuw geleden konden vrouwen worden geïnstitutionaliseerd. In de jaren ’70, voorgeschreven artsen Valium uitgebreid om het te behandelen, bovengenoemde Gillis.
Het is geclassificeerd als een syndroom of een reeks symptomen in plaats van een ziekte, zei Gillis, die eerder in een particuliere praktijk was die fibromyalgiepatiënten behandelde.
Om fibromyalgie te testen, hebben veel patiënten drie tot vijf jaar artsen bezocht voor ‘uitsluitingstesten’, zei Gillis. Ze werden bijvoorbeeld getest en uitgesloten voor lupus of een verkeerde diagnose gesteld van reumatoïde artritis.
Met de hulp van grote medische universiteiten, waaronder de University of California, Los Angeles; University of Illinois aan het Chicago College of Medicine en Harvard Medical School, de FM / a-test is ontwikkeld. Diagnose van fibromyalgie door identificatie van de aanwezigheid van specifieke witte bloedcelafwijkingen die zijn gedocumenteerd bij deze patiënten. De test voldoet aan FDA en is in 2013 geïntroduceerd.
De test vereist minder dan een vloeibaar greintje bloed. Gillis analyseert de bewegingspatronen van chemokinen en cytokines van de witte bloedcellen van het immuunsysteem.
Fibromyalgiepatiënten hebben een onregelmatig patroon met betrekking tot deze eiwitten. Beroepsbeoefenaren in de gezondheidszorg kunnen de test bestellen, die wordt gedekt door Medicare en vaak door een verzekering.
“Ik geloof dat we een voortrekkersrol vervullen bij het bevorderen van wetenschappelijke informatie over fibromyalgie en het reageren op deze kritische vragen voor patiënten: 1) Heb ik fibromyalgie? 2) Hoe en waarom heb ik fibromyalgie ontwikkeld? en 3) Bestaat er een directe behandeling voor fibromyalgie? “Zei Gillis.
In een poging om niet alleen de oorzaak van fibromyalgie te onderzoeken, maar om een effectieve behandeling te ontwikkelen, zoekt campagne 250 250.000 vrijwilligers om gratis FM / A te nemen.
Patiënten die een positieve diagnose krijgen, kunnen ervoor kiezen om deel te nemen aan een klinisch onderzoek naar het specifieke fibromyalgievaccin dat zal proberen fibromyalgiegerelateerde symptomen te verlichten.
Het onderzoek zal worden uitgevoerd door dr. Denise Faustman, directeur van immunologie Laboratory, Massachusetts General Hospital / Harvard Medical School, die studeert markten en de gemeenschappelijke kenmerken van het DNA in zijn zoektocht naar een vaccin FM.
“Mensen met fibromyalgie hoeven niet langer te luisteren naar anderen die zeggen ‘het zit allemaal in je hoofd’ of ‘ziet er prima uit’. Je kunt het immuunsysteem niet aan het werk zien, “zei Gillis.
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