Se o seu amado tem fibromialgia, é difícil entender exatamente o que eles estavam passando por menos que você tenha experimentado isso por si mesmo. Eles provavelmente exigir muito mais tempo dormindo ou descansando do que você e não pode sentir-se a sair muito frequentemente. Fibromialgia também pode inibir a capacidade de uma pessoa para trabalhar, realizar agregado familiar trabalha ou até mesmo fazer coisas cotidianas como tomar banho e comer.
Se você tem um cônjuge de apoio ou outro significativo faz toda a diferença. Não é que nós temos dor e estão esgotados. Ele muda sua vida. Você não é mais o mesmo fisicamente ou mentalmente (minha ansiedade) tantas coisas sumiram. Eu sei que todo mundo se sente da mesma maneira.
Se uma pessoa é cronicamente doente, mas o outro é saudável, isso pode facilmente colocar pressão sobre mesmo o mais forte dos relacionamentos. Embora possa ser mais difícil de se colocar no lugar do outro ou encontrar um equilíbrio em que você quer se sentir como parceiros iguais no relacionamento, ele certamente não é impossível – e para muitos casais, que enfrentam obstáculos em conjunto, como doença crônica pode realmente reforçar a sua vínculo e aprofundar o seu amor um pelo outro.
Pedimos a nossa comunidade “Viver com Fibromialgia e Doença Crônica” e “Viver com Fibromialgia” para compartilhar maneiras para as pessoas para ajudar seu cônjuge ou parceiro com fibromialgia. Se o seu amado é afetado por uma doença crônica, como fibromialgia, FCs, talvez os seguintes maneiras pode ajudá-lo a entender melhor o que eles experimentam e fornecer algumas idéias de coisas que você poderia fazer isso pode significar o mundo para eles.
Aqui está o que a nossa comunidade nos disse:
1. Quando eles estão tendo um colapso, mantê-los, deixá-los chorar e sei que você está lá para eles.
2. Saiba o máximo que puder sobre ele. Seja paciente. Você pode não entender o que é, mas trazer empatia e ouvir o seu parceiro ou cônjuge é tão importante. Amor incondicional.
3. Peça ao seu parceiro para te ouvir e ler a partir de pessoas que também têm fibromialgia.
4. Evite fazer com que se sintam culpados. Dar confiança e amor. Deitar na cama e mantê-los, dizer-lhes que você está nele para o longo curso. E dizer isso!
5. Acredite-los em primeiro lugar, ser o segundo suporte, ser gentil em todos os momentos terceira e puxar o seu peso no relacionamento de uma forma prática. Eles não planejar mais isso do que você fez e você está tanto nessa coisa juntos para ajudar tanto de você fazer a maior parte da viagem. O maior apoio que eles têm quanto mais cedo eles vão encontrar o seu próprio nível de fitness e saúde, mas é preciso algum tempo e você terá de apoiá-los e diminuir sua carga física e emocional, tanto quanto você puder.
6. Mostrar Amor e Não fazer muitas perguntas em um flare-se vezes
7. Desenhe-lhes um bom banho quente, lavar os cabelos, ajudá-los para fora, seca e escovar os cabelos. Em seguida, basta ouvir seria bom.
8. Seja compreensivo, paciente, compartilham as tarefas domésticas, ser solidário quando outros questionam a veracidade da doença, lembre-se que esta doença é de ninguém culpa ou punição para você. Acima de tudo, nunca parar de amar a pessoa aflita.
9. Não exatamente o que você quer que seu amor um para fazer para você se os papéis foram invertidos.
Acima de tudo, ser gentil, amoroso, paciente e engraçado
10. Sem culpa, uma simpatia lil e auto manutenção. Às vezes eu só posso cuidar de mim … fazer o jantar uma vez por semana. Vac ou um chuveiro limpo. Lembre-se que não pode pegar as coisas da mesma, ou eu não posso, dez libras e eu sou tudo, mas desgastou
11. Não apenas ouvir o que eles estão dizendo, mas realmente ouvir!
12. Pergunte muitas vezes sobre diferentes aspectos da dor, trazê-los de pequenas coisas que pacotes de ajuda-gelo, medicamentos, bebidas, almofada de aquecimento … .lay com eles lhes dizer o quanto vc quiser tirá-lo. Entenda suas lutas, fazer pesquisas
13. Encher as lacunas .. diferentes formas de suporte em que existem deficiências. É expectativas expressas profundas para que eles sejam conhecidos e compreendidos, então, entender como isso pode ser impossível de alcançar. Seja criativo. Ajudar com a dor ou dormir precisar nos fins de semana, mas eu quero limpar, pente praia, olhar para o vidro do mar, Kayak ainda que seja limitado, jogar voleibol (não posso mais) Pessoalmente acredito movimento é necessário para se recuperar até o formigamento em minhas pernas começam a começar a dor. Se ele se sente como uma tala de canela eu empurrei porque me senti muito bem. Estou pintando a guarnição e janelas que levaria uma pessoa normal e saudável um verão. Ele vai me dois tomar. Estou ok com ele. Este é um exemplo de expectativas baixou ainda me ajudando atingir metas que constrói a minha estima e força.
14. Nunca diga que você é preguiçoso
15. Nunca cortá-las por não se sentir bem ou não ser capaz de fazer as coisas que uma vez poderia fazer. Ser solidário, mesmo se você não entender tudo.
16. Mantenha-os fora de situações estressantes. Permita-lhes para descansar quando eles precisam.
Se possível viver em algum lugar a pressão barométrica não muda muito muito- EWH a dor!
17. Há um livro maravilhoso chamado fibromialgia para manequins. Meu filho lê-lo Eu não sei quantas vezes. Ele realmente queria compreender e ajudar. Meu marido por outro lado deixou dentro de um mês.
18. Quando eu digo que eu posso sentir a energia que está sendo drenado para fora de mim como um sangue agulha tomando por favor deixe-me descansar, porque a dor suores gripe e névoa do cérebro estão ao virar da esquina.
19. Certifique-se de que eles entendem que, embora eles não podem funcionar como antes que eles ainda são um valioso membro da família e que eles não são um fardo.
20. Peça ao seu cônjuge o que eles gostariam de você e que eles saibam que você quer ajudar de qualquer maneira que puder . Cada pequeno favor ou assistência faz a diferença para mim, mas somos todos diferentes. Alguns preferem o máximo de independência possível. Muitos preferem a ser feita antes de assumir automaticamente o que é desejado ou necessário. Ofereça-se para ajudar ou fazer coisas para ajudar em torno da casa sem pedir depois que você sabe o que está queria e precisava. Alguns de nós se sentir culpada por colocar o fardo para os outros.
Tranquilizando seu cônjuge que você está lá para eles e não se importa ajudando podemos e queremos apoiar e compreender da melhor forma possível pode ser um tremendo alívio para o seu cônjuge. Eu, pessoalmente, só gosto de meus pés massageados com loção. Outras áreas são muito sensíveis para a massagem. Preciso de ajuda ao redor da casa, com as compras etc. Preciso ambiente tranquilo para descansar.
O que ajudaria seu cônjuge? O que ajudaria seu cônjuge sentir -a pouco melhor ou mais confortável. Sei que você não pode corrigir ou alterar a doença, mas você pode oferecer ajuda e conforto. Muitas vezes as pessoas oferecem conselhos não solicitados e que pode piorar as coisas, colocando expectativas e pressão mais irrealistas em mim. Então eu posso tornar-se mais deprimido ou sentir culpa desnecessária e vergonha.
Espero que isto ajude. 💜
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