La fibromialgia, una enfermedad ampliamente incomprendida, confunde y frustra a los pacientes y los médicos. Lo sé porque lo he visto desde ambos lados – como un médico y una mujer con la enfermedad misma.
Esta enfermedad crónica común caracterizada por dolor muscular generalizado, fatiga y niebla del cerebro. Se estima que 5 millones de estadounidenses sufren actualmente de la enfermedad, y el 90 por ciento de los diagnosticados son mujeres.
Aún así, sigue habiendo mucha confusión acerca de lo que realmente es la enfermedad y cómo se trata. Aquí hay cinco verdades acerca de la fibromialgia que no son muy conocidos, incluso por la mayoría de los médicos:
1. La fibromialgia es real y puede ser tratada – pero requiere un enfoque holístico.
La investigación sobre la fibromialgia muy por detrás de otras enfermedades, sumido por la controversia y un siglo de discusiones sobre si se trata de una enfermedad “real”.
Eso cambió en 2002 cuando un innovador estudio mostró anormalidades en la forma en que el cerebro procesa el dolor en la fibromialgia. Estos estudios de imágenes del cerebro tienen datos objetivos para demostrar que la fibromialgia es “real” y desencadenó una década de investigación intensiva que resulta en tres medicamentos aprobados por la FDA que las señales de dolor sordo.
Sin embargo, estos fármacos no tratan los síntomas a menudo más fatiga debilitante y pensamiento confuso llamado “Fibroniebla”. Para ello, los médicos y los pacientes deben ser conscientes acerca de las diferentes opciones de tratamiento – especialmente los enfoques holísticos como hacer cambios en la dieta para reducir la inflamación o la adición de suplementos para aumentar la producción de energía celular.
2. No es un completo misterio.
A menudo escucho repitió el mito de que “no sabemos qué causa la fibromialgia.” Investigaciones médicas recientes muestran que la mayoría de los médicos todavía no saben cómo ayudar a sus pacientes con fibromialgia – aunque hay algunos tratamientos muy eficaces. La fibromialgia es descrito a menudo en revistas médicas como “confuso”, “misterioso” y “confusa”.
comerciales de televisión que dicen que la fibromialgia es una condición de dolor nervios hiperactivos no cuentan toda la historia. De hecho, los problemas de procesamiento del dolor son sólo la punta del iceberg. Un factor mucho más grande es una respuesta de estrés (o peligro) que se convirtió en vergüenza y está constantemente en “alerta roja”, lo que lleva a una reacción en cadena que resulta en fatiga, niebla del cerebro y el dolor muscular.
La única manera de lograr una mejora duradera de todos estos síntomas son abordar sistemáticamente los efectos negativos en el cuerpo de una respuesta de estrés crónico hiperactivos. Una respuesta al estrés crónico causa estragos activado la prevención de sueño profundo y mantener los músculos tensos, dando lugar a dolor y sensibilidad; perjudicar la digestión y la producción de energía; y jugando hormonas fuera de equilibrio. También causa nervios de detección de dolor aumentan el volumen de sus señales.
3. La fibromialgia es principalmente un trastorno del sueño.
Por desgracia, muchos médicos especialistas, incluso duermen no son conscientes de los problemas de sueño que acompañan a la fibromialgia. Sin embargo, la fibromialgia es en muchos aspectos un trastorno del sueño de un estado de sueño profundo privación crónica. Los estudios han demostrado una y otra vez que los pacientes sufren de un profundo sueño inadecuada suele verse interrumpida por las ondas cerebrales “acordaron”. Este sueño profundo el hambre contribuye a la fatiga, dolor muscular y característico pensamiento brumoso de la condición.
El tratamiento de dormir es la clave para el tratamiento de la fibromialgia, y ahí es donde veo el mayor beneficio en la reducción del dolor, la fatiga y la confusión mental. El sueño siempre debe ser mejorado antes de cualquier otro tratamiento funciona, por lo que es vital para hacer frente a esto con su médico para tratar problemas ocultos del sueño como la apnea obstructiva del sueño y luego añadir los medicamentos y suplementos para ayudar a restaurar el sueño profundo normal.
4. La mayoría de los médicos no saben mucho acerca de la fibromialgia – y no es su culpa.
La fibromialgia es una enfermedad huérfana, que no es reclamado por cualquier especialidad y, en cambio, se encadena extraña en el campo de la medicina reumatología, neurología, el sueño y el dolor. La mayor parte de la atención recae en los médicos de atención primaria con exceso de trabajo que no tienen tiempo para buscar tratamiento nuevo las ideas de las publicaciones médicas al mar. La principal revistas médicas negligencia fibromialgia. De hecho, desde 1987, sólo un estudio fibromialgia fue publicado en la revista New England Journal of Medicine, la revista médica más leído en el mundo.
Una vez que el médico de atención primaria que trabajan no tienen tiempo para buscar activamente nuevos tratamientos para la fibromialgia, la investigación debe ser traído a su atención de alguna otra manera – es decir, por sus pacientes. Así que en mi nuevo libro, La FibroManual, incluye una guía profesional de la salud con el consejo médico con el apoyo de la investigación para los pacientes para llegar a la atención del médico.
5. No existe cura para la fibromialgia, pero hay tratamientos eficaces.
Todavía no existe una cura para la fibromialgia. Pero no tenemos cura para muchas enfermedades crónicas como la diabetes y la hipertensión arterial. Lo que sí hay tratamientos eficaces que generan estas enfermedades con la fuerza suficiente que son mínimamente perjudicial para la salud. Y también hay tratamientos de gran alcance para la fibromialgia.
Cuando la gente me pregunta si me he recuperado de la fibromialgia, digo, “Sí”. He encontrado maneras de sentirse mucho mejor y minimizar su impacto en mi vida. En última instancia, todavía tengo fibromialgia, y no hay una varita mágica que elimina completamente todos los síntomas. Esto requiere trabajo, y he aprendido que la coherencia en mi rutina de auto-cuidado es esencial para mantener los síntomas bajo control.
Fibromialgia, olvidé las palabras que iba a decir, olvidé lo que iba a hacer, olvidé a dónde iba … Para aquellos que no entienden la fibromialgia
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