När jag sätter mig ner och skriver för att förespråka mina sjukdomar, känner jag detta tryck att jag alltid måste vara positiv. Att om jag inte är, om jag inte ser de positiva sakerna jag fortfarande kan göra, ja, jag är inte tacksam eller positiv nog.
Det är kraften i stigma. Och låt mig berätta, jag är trött på det.
Jag var inte diagnosen lupus, fibromyalgi, Raynauds sjukdom eller Sjögrens syndrom tills jag var 28. Men jag hade medicinska problem i flera år, utan att veta eller förstå varför. Jag kan inte säga att jag har svar eller diagnostiskt du har gjort lättare. Jag känner mig som en del dagar gjort saken värre.
Du skulle tro att att ha ett svar betyder att ha en behandling, behandlingen förbättrar det, möten med doktorslutet, livet fortskrider äntligen. Som någon som också har en posttraumatisk stressstörning, lärde jag mig tyvärr bättre när jag diagnostiserades.
Det är inte fallet med autoimmuna störningar. Jag fastnar i den här kroppen som en dag eller för en längre tid samarbetar, och sedan i en månad eller så gör det inte något som jag behöver det. Jag är besviken Testa mitt tålamod. Det skjuter mig in i ett hål som jag inte kan komma ifrån. Och många gånger är det hålet mycket mörkt.
Efter min diagnos beklagade jag personen jag brukade vara. Jag gör det fortfarande. Det är ännu svårare att acceptera det liv du behöver anpassa när du är i ett utbrott. Knopparna är onda för mig. Jag kommer aldrig att kunna förklara smärtan som går igenom min kropp varje dag.
För närvarande kan jag inte äta fast mat, och jag har varit i en flytande diet i mer än en månad. Jag har försökt att fortsätta med att gå till gymmet, för om jag inte gör det, är smärtan i lederna ännu värre, men även när jag är där känner jag mig som att jag inte kan göra någonting. Jag kan inte sova eftersom jag ligger på sängen och klagar på smärtan. Jag gråter för att jag är ensam.
Jag är så trött att du inte kan förklara det för någon. Min metotrexat, som jag tar två gånger i veckan, gör mig sjuk mer än vanligt. Jag vet inte varför. Jag började sakna arbete på grund av det. Och det betyder att jag är besviken människor.
Min kropp gillar mig. I sin tur, nöjer alla andra. I slutändan finns det dagar när jag ligger i sängen och jag kan inte tänka mig att fortsätta så här.
Jag har obotliga och smärtsamma sjukdomar, där behandlingarna är mindre än idealiska och är begränsade. Jag har förlorat vänner eftersom jag är “för mycket”. Jag är inte längre vännen till de människor jag vill vara. Mitt liv är ibland övertaget av medicinska möten och medicinska räkningar.
Jag känner att när folk frågar mig vad som händer med mig, vill de inte höra vad det egentligen är. De vet redan att jag är kroniskt sjuk. Jag kommer att vara så här för alltid. Så varför pratar du om det? Jag känner mig irriterad med andra eftersom sanningen är att jag känner mig överväldigande.
Jag bad aldrig om att ha ett leende varje dag, gå till jobbet, försök så hårt som möjligt eftersom jag måste se till att jag håller jobbet för att jag vet att jag ska slösa bort min tid. Om det inte verkar som om det är värt det för mina kollegor och handledare är jag så rädd för att bli släppt.
Jag bad aldrig att känna smärta varje dag. Jag bad aldrig om diagnostiska tester av rädsla, känner mig som att jag väntade mig dåliga nyheter var sjätte månad som jag gick i mitt lokala diagnostikcenter. Jag frågade aldrig att mitt utseende förändras så drastiskt att det ibland ser i spegeln gör att jag vill krossa den. Jag kan inte stå den som tittar på mig eftersom mitt hår som jag förlorade på grund av den behandling som växer är inte mitt hår, och ändå kan jag inte få någon att verkligen förstå hur hemskt det känns.
Men alla vill att det ska vara positivt. För att jag uppenbarligen ska “må bättre”.
Det finns inget bättre Det finns flare, och det finns ingen bränning. Och människor behöver förstå de känslor vi känner när vi slår på. Att ha smärta varje dag gör något för dig. Han äter dig och testar dig så att du inte trodde du kunde testas.4 Och jag är arg på att jag inte bad om det.
Jag bad inte vara ledsen om mina kroppar, inte bara att känna mig ständigt besviken av dem, men också på grund av människors reaktioner på honom. Ibland blir jag arg. Ibland blir jag ledsen.
Jag ber folk att inte känna att de kan diktera hur jag känner eller hur jag reagerar på min flare eftersom de inte förstår vad jag känner i min egen kropp. De kan inte förstå depressionen som åtföljer vänner som förlorar och i slutändan känner att de förlorades på grund av sjukdomen.
Idag och denna månad brinner jag. Och äntligen är jag i sorg. Människor kommer helt enkelt att vara bra med det, för ibland är det dåligt.
Vi som samhälle måste sluta gå igenom negativa ögonblick för att fylla dem med falska, falskt positiva citat, fulla av söta och söta, motiverade av det godis som får dig att må bättre2.
Hello just wanted to give you a brief heads up
and let you know a few of the pictures aren’t loading properly.
I’m not sure why but I think its a linking issue. I’ve tried it in two different browsers and both show the same results.
Hey there! I know this is kinda off topic but I was wondering if you knew where
I could locate a captcha plugin for my comment form? I’m using the same blog platform as yours and I’m having trouble finding one?
Thanks a lot!
Whats up this is kind of of off topic but I
was wondering if blogs use WYSIWYG editors or if you have to manually code with HTML.
I’m starting a blog soon but have no coding know-how
so I wanted to get advice from someone with experience.
Any help would be greatly appreciated!
What’s up to all, how is the whole thing, I think every one is
getting more from this web site, and your views are good
designed for new users.
I was able to find good advice from your blog posts.
Howdy! This is my first comment here so I just wanted to give
a quick shout out and say I truly enjoy reading your articles.
Can you suggest any other blogs/websites/forums that deal with
the same subjects? Thanks!
May I simply just say what a comfort to find a person that
actually knows what they’re discussing on the net.
You definitely understand how to bring a problem to light and make it important.
More people should check this out and understand
this side of the story. I was surprised that you aren’t
more popular since you most certainly have the gift.
Thanks for the marvelous posting! I quite enjoyed reading it, you’re a great
author. I will make certain to bookmark your blog and definitely will come back sometime soon. I want to encourage one to continue your great posts, have a nice afternoon!
This is really interesting, You’re a very skilled
blogger. I’ve joined your rss feed and look forward
to seeking more of your great post. Also, I’ve shared your
site in my social networks!
Magnificent items from you, man. I’ve take into account your
stuff previous to and you are simply too magnificent.
I actually like what you’ve received right here, really like what you’re stating and the
best way during which you are saying it.
You make it enjoyable and you continue to care for to keep it sensible.
I can’t wait to learn much more from you. That is really a wonderful site.
What’s up, after reading this awesome article i am too delighted to share my know-how
here with friends.
Good day! I could have sworn I’ve been to this site before but after browsing through a few of the articles I realized it’s new to
me. Nonetheless, I’m certainly pleased I stumbled upon it and I’ll be book-marking it and checking back regularly!
First off I would like to say superb blog! I had a quick question which I’d like to ask if you do not mind.
I was interested to know how you center yourself and clear
your mind prior to writing. I have had a tough time clearing my thoughts in getting my thoughts out there.
I do take pleasure in writing but it just seems like the first 10 to
15 minutes are usually lost just trying to figure out how to begin. Any
ideas or hints? Appreciate it!
I simply couldn’t depart your web site prior to
suggesting that I really enjoyed the standard info a person supply
in your visitors? Is going to be again frequently in order to investigate cross-check new posts
Do you mind if I quote a couple of your posts as long as I provide
credit and sources back to your webpage? My blog site is
in the very same niche as yours and my visitors would truly
benefit from some of the information you provide
here. Please let me know if this ok with you. Thanks a
lot!
Ahaa, its pleasant conversation regarding this article at this place at this web
site, I have read all that, so at this time me also commenting here.
Howdy would you mind letting me know which web host you’re working with?
I’ve loaded your blog in 3 completely different internet browsers and I
must say this blog loads a lot faster then most.
Can you recommend a good web hosting provider at a reasonable price?
Thank you, I appreciate it!
We’re a group of volunteers and starting a new scheme in our community.
Your site offered us with helpful information to work
on. You’ve performed a formidable activity and our entire
community shall be grateful to you.
I’m extremely impressed along with your writing abilities and also with the format in your
blog. Is that this a paid theme or did you modify it yourself?
Anyway keep up the nice high quality writing, it’s uncommon to look
a great blog like this one nowadays..
With havin so much content do you ever run into any
problems of plagorism or copyright infringement? My site has a lot of
unique content I’ve either written myself or outsourced but it seems a lot of it is popping it up all over the internet without my
agreement. Do you know any methods to help prevent content from being ripped off?
I’d definitely appreciate it.
Very shortly this website will be famous amid all blogging visitors, due
to it’s fastidious articles or reviews
I’m truly enjoying the design and layout of your blog.
It’s a very easy on the eyes which makes it much more pleasant for me to come
here and visit more often. Did you hire out a developer to create your theme?
Outstanding work!
hi!,I like your writing very a lot! proportion we
communicate more about your article on AOL? I need an expert in this
area to resolve my problem. May be that’s you! Having a look ahead to see you.
Hello, I think your site might be having browser compatibility issues.
When I look at your website in Opera, it looks fine but when opening in Internet Explorer,
it has some overlapping. I just wanted to give you a quick heads up!
Other then that, excellent blog!
If you would like to take a great deal from this piece of writing then you have to apply such methods to your won webpage.
Inspiring quest there. What happened after? Thanks!
This is the perfect blog for everyone who hopes to understand this topic.
You realize a whole lot its almost tough to argue with you
(not that I actually will need to…HaHa). You definitely put a new spin on a topic
which has been discussed for years. Excellent stuff, just wonderful!
I seriously love your blog.. Pleasant colors & theme.
Did you build this website yourself? Please reply back as
I’m trying to create my own personal site and
would love to learn where you got this from or what
the theme is called. Many thanks!
This page truly has all the information I needed concerning
this subject and didn’t know who to ask.
I think the admin of this web page is genuinely working hard
in support of his web site, for the reason that here every information is quality based material.
Write more, thats all I have to say. Literally, it seems as
though you relied on the video to make your point. You clearly
know what youre talking about, why throw away your intelligence on just posting videos to your blog when you
could be giving us something enlightening to read?
Hi! This is kind of off topic but I need some advice from an established blog.
Is it very hard to set up your own blog? I’m not very techincal but I
can figure things out pretty quick. I’m thinking about creating my
own but I’m not sure where to begin. Do you have any ideas or suggestions?
Appreciate it
I enjoy, cause I discovered exactly what I used to be having
a look for. You have ended my 4 day lengthy hunt! God
Bless you man. Have a nice day. Bye
Just want to say your article is as amazing. The clarity in your post
is simply nice and i could assume you’re an expert on this
subject. Well with your permission allow me to grab your RSS
feed to keep up to date with forthcoming post.
Thanks a million and please continue the enjoyable work.
I’m truly enjoying the design and layout of your site. It’s a very easy
on the eyes which makes it much more enjoyable for me to come here and visit
more often. Did you hire out a designer to create your theme?
Great work!
I like the valuable information you provide for your
articles. I will bookmark your blog and take
a look at once more here frequently. I’m rather certain I will be informed
lots of new stuff right here! Good luck for the next!
Excellent post. I certainly appreciate this website.
Keep it up!
It’s fantastic that you are getting ideas from this article as well as
from our discussion made at this time.
With havin so much content and articles do you ever run into any problems
of plagorism or copyright violation? My blog has a lot of exclusive content I’ve either created
myself or outsourced but it appears a lot of it is popping it up all over the
internet without my agreement. Do you know any methods to help prevent content
from being ripped off? I’d certainly appreciate it.
Hi, just wanted to say, I loved this blog post. It was
inspiring. Keep on posting!
I don’t even know how I ended up here, but I thought this post was good.
I don’t know who you are but definitely you’re going to a famous blogger if you are
not already 😉 Cheers!
Greetings from Idaho! I’m bored at work so I decided to browse your blog
on my iphone during lunch break. I love the information you provide here
and can’t wait to take a look when I get home.
I’m amazed at how fast your blog loaded on my mobile ..
I’m not even using WIFI, just 3G .. Anyways,
wonderful blog!
I seriously love your blog.. Pleasant colors & theme.
Did you build this website yourself? Please reply back as I’m hoping to create my own site and would love to know where you got
this from or what the theme is called. Thanks!
Remarkable things here. I am very happy to peer your post.
Thank you so much and I am taking a look forward to touch you.
Will you please drop me a e-mail?
For latest information you have to pay a visit internet and on the web I found this web site as a finest web site for newest updates.
I’m not that much of a online reader to be honest but your sites
really nice, keep it up! I’ll go ahead and bookmark your site to come back later on. Cheers
Wow, wonderful blog structure! How long have you been blogging for?
you made blogging look easy. The full look of your website is wonderful, as smartly as the content!
Feel free to visit my webpage :: best CBD oil
You should be a part of a contest for one of the most useful blogs
on the internet. I will highly recommend this website!
Take a look at my web blog; CBD oil
Saved as a favorite, I love your web site!
Visit my blog; CBD oil for arthritis
It is appropriate time to make some plans for the future and it is time to be happy.
I’ve read this post and if I could I want to suggest you some interesting things or advice.
Perhaps you could write next articles referring
to this article. I want to read even more things about it!
my blog post; free instagram followers
Thank you for some other wonderful post. Where else may just anyone get that kind of info in such a perfect way of writing?
I’ve a presentation next week, and I am at the look for such info.
my homepage :: full article
If you wish for to increase your familiarity simply
keep visiting this web page and be updated with the
newest information posted here.
great submit, very informative. I ponder why the opposite
specialists of this sector do not understand this.
You should proceed your writing. I’m confident, you
have a huge readers’ base already!
It’s awesome to pay a quick visit this site and reading the views of all colleagues regarding this article, while I am also keen of getting experience.
Here is my web blog – purtier placenta
Hi there! This is my first visit to your blog!
We are a team of volunteers and starting a new initiative in a community in the same niche.
Your blog provided us valuable information to work on. You
have done a marvellous job!
Hi there it’s me, I am also visiting this web site on a
regular basis, this web page is truly nice and the viewers are really sharing nice thoughts.
Hi there friends, how is the whole thing, and what you desire to say concerning this post, in my view its actually awesome for me.
Hey there! This is my first comment here so I just wanted to
give a quick shout out and tell you I truly enjoy reading through your blog
posts. Can you suggest any other blogs/websites/forums that go over the same topics?
Thanks for your time!
I wanted to thank you for this excellent read!!
I definitely loved every bit of it. I have got you book marked to check out new
stuff you post…
Appreciate this post. Let me try it out.
Cool blog! Is your theme custom made or did you download it from somewhere?
A design like yours with a few simple adjustements would really make my blog jump out.
Please let me know where you got your theme. Bless you
hello there and thank you for your info – I have certainly picked up anything new from right here.
I did however expertise several technical points using this web
site, as I experienced to reload the website a lot of times previous to I
could get it to load properly. I had been wondering if your
hosting is OK? Not that I’m complaining, but slow loading instances times will often affect your placement in google and could
damage your quality score if ads and marketing with Adwords.
Anyway I am adding this RSS to my email and can look out for much
more of your respective exciting content. Make sure you update this again soon.
Hey there! This post could not be written any better!
Reading this post reminds me of my good old room mate!
He always kept talking about this. I will forward this post to him.
Fairly certain he will have a good read. Thanks for
sharing!
Right now it appears like WordPress is the preferred blogging
platform out there right now. (from what I’ve read) Is that
what you are using on your blog?
We’re a group of volunteers and starting a new
scheme in our community. Your web site provided us with valuable info to
work on. You have done a formidable job and our whole community will be thankful to you.
Fastidious response in return of this query with real arguments and describing everything regarding that.
It’s really a great and helpful piece of information. I’m glad that you simply shared this useful information with us.
Please keep us up to date like this. Thanks for sharing.
Excellent blog here! Also your web site loads up very fast!
What host are you using? Can I get your affiliate link to your
host? I wish my website loaded up as fast as yours lol
Good post. I’m facing a few of these issues as well..
Great beat ! I wish to apprentice at the same time as you amend
your site, how can i subscribe for a blog site? The account helped me a acceptable deal.
I had been tiny bit acquainted of this your
broadcast provided bright clear idea
I have been browsing online more than 2 hours today, yet I never found any interesting
article like yours. It is pretty worth enough for
me. In my opinion, if all web owners and bloggers made good content as you did,
the internet will be a lot more useful than ever before.
This post is invaluable. Where can I find out more?
After looking at a number of the blog posts on your website, I truly appreciate
your way of blogging. I added it to my bookmark webpage list and
will be checking back soon. Take a look at my website too and let me know your opinion.
I must thank you for the efforts you have put in writing this website.
I am hoping to check out the same high-grade blog
posts by you later on as well. In fact, your creative writing abilities has
motivated me to get my own site now 😉
Excellent post however I was wanting to know if you could write
a litte more on this topic? I’d be very grateful if you could elaborate a little bit
more. Bless you!
Highly energetic article, I loved that a lot. Will there be a part 2?
When I originally commented I clicked the “Notify me when new comments are added” checkbox and now each time
a comment is added I get several emails with the same comment.
Is there any way you can remove me from that service? Thanks a lot!
I believe what you wrote was very reasonable. However,
what about this? suppose you added a little information? I mean, I
don’t wish to tell you how to run your website, but suppose you added a post title that makes people
desire more? I mean Snälla, berätta inte hur du känner när min smärta är inflammerad.
| HEALTHY LIVING AT HOME is kinda boring. You should
look at Yahoo’s home page and watch how they create post headlines to grab people to click.
You might add a video or a pic or two to get readers interested about everything’ve written. In my opinion, it might make your blog a little livelier.
This information is invaluable. When can I find out more?
Great post. I was checking constantly this blog and I’m impressed!
Extremely helpful info specifically the last part 🙂 I care for such information a lot.
I was seeking this particular info for a very long time.
Thank you and best of luck.
A motivating discussion is definitely worth comment.
I do believe that you ought to publish more about this issue, it
may not be a taboo subject but typically people do not speak about such subjects.
To the next! Kind regards!!
I don’t know if it’s just me or if perhaps everyone else encountering problems with your website.
It appears like some of the written text
on your content are running off the screen. Can somebody else
please provide feedback and let me know if this
is happening to them as well? This could be a problem with my web browser because I’ve had this happen previously.
Kudos
An outstanding share! I’ve just forwarded this onto a coworker who had been doing a little
homework on this. And he actually bought me lunch simply because I stumbled upon it for him…
lol. So allow me to reword this…. Thank YOU for the meal!!
But yeah, thanx for spending the time to discuss this matter
here on your blog.
I’ve been surfing online more than 4 hours
today, yet I never found any interesting article
like yours. It’s pretty worth enough for me. Personally,
if all site owners and bloggers made good content as you did, the internet will be much more useful than ever
before.
Its not my first time to pay a quick visit this web site, i am visiting this
web page dailly and get pleasant data from here daily.
I’m gone to inform my little brother, that he should also pay
a visit this webpage on regular basis to obtain updated from most recent reports.
high line pointe apartments
Hi, I do think this is a great web site. I stumbledupon it 😉
I may revisit yet again since i have bookmarked it.
Money and freedom is the greatest way to change, may
you be rich and continue to help other people.
I was suggested this blog through my cousin. I’m no longer sure whether this post is written through him
as nobody else know such unique approximately
my trouble. You are wonderful! Thank you!
Oh my goodness! Impressive article dude! Many thanks,
However I am experiencing difficulties with your RSS. I don’t understand why I am unable to join it.
Is there anybody else getting the same RSS issues? Anybody who knows the solution can you kindly
respond? Thanks!!
Heya just wanted to give you a quick heads up and let you
know a few of the pictures aren’t loading correctly.
I’m not sure why but I think its a linking issue. I’ve tried it in two different internet browsers and both show the same outcome.
Your mode of explaining everything in this post is in fact fastidious, every one can simply understand it, Thanks a lot.
We’re a group of volunteers and starting a new scheme in our community.
Your web site offered us with valuable info to work on. You’ve done a formidable
job and our entire community will be thankful to you.
I blog quite often and I seriously thank you for your content.
Your article has really peaked my interest. I’m going to book mark your website and keep checking for new information about once per week.
I opted in for your Feed too.
Hi it’s me, I am also visiting this web page regularly, this web site is
truly good and the users are actually sharing good thoughts.
Good response in return of this issue with real arguments and describing all on the topic of that.