Cada fibra do meu corpo grita silenciosamente, só eu posso ouvi-los. A fadiga está tão presente que até respirar fica difícil, dormir é impossível, a vida se torna difícil quando você passa o dia lutando contra seu próprio corpo . Nós somos os invisíveis , simplesmente porque a sociedade se recusa a observar. Somos os que sofrem de fibromialgia .
Injustamente estigmatizados, temos que enfrentar todos os dias a incompreensão da sociedade que nos rotula de preguiçosos, inúteis, mentirosos . Somos guiados pela premissa de que o que não pode ser visto não existe e não olhamos de perto o suficiente para perceber que existem os sinaisClaro como água, mas isso significaria ter empatia.
E o problema não é a sociedade, não é o nosso meio (que às vezes nos magoa mais por não nos compreendermos), afinal são os profissionais de saúde . Porque quem jurou cuidar de nós é o primeiro a nos tratar menos, a não acreditar na gente, a fazer-nos passar de especialista em especialista sem dar uma resposta clara, supondo que “são coisas que estão na nossa cabeça” pelo simples facto de mulher para ser . Porque sim, por mais que irrite alguns, estudos mostram: um homem que reclama de dor é levado mais a sério.
Nossa doença nos leva ladeira abaixo até que tenhamos a sorte de encontrar um profissional que encontre o que temos, mas até então já sofremos iatrogenia e alguns de nós até entram em pânico em voltar para uma consulta por causa de experiências ruins. A tudo isto devemos acrescentar que, por mais incapacitante que seja a doença, não é considerada suficiente para nos dar uma percentagem de incapacidade .
Além de entender, é preciso que a equipe médica se atualize , leia os últimos estudos, entenda que isso é algo que está sendo cada vez mais diagnosticado e o motivo ainda não se sabe nem se encontrou cura, ao invés do paliativo para a dor, o que nem sempre é suficiente.
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