Morgan Freeman, l’acteur très loué avec la voix incroyable, a la fibromyalgie. Apparemment, il est apparu dans un article du magazine Esquire en juillet dernier. Voici la partie de l’article où il se présente:
De temps en temps [Morgan Freeman] saisit son épaule gauche et grimpe. Il fait mal quand il marche, quand il reste assis, quand il sort de son divan, et quand il se trompe dans un pré humide. Plus que des malheurs. Il semble une sorte d’agonie, mais il ne le mentionne jamais. Il y a des moments où il ne peut s’empêcher de montrer cela, les retombées d’un accident de voiture il y a quatre ans, dans lequel la voiture qu’il conduisait tournait et roulait, laissant Freeman et un ami pour être tiré de la voiture en utilisant les Jaws of Life. Malgré une intervention chirurgicale pour réparer les lésions nerveuses, il a été coincé avec une main gauche inutile. Il est rigoureusement saisi par un gant de compression la plupart du temps pour s’assurer que le sang ne s’y trouve pas. C’est une pince, sa douleur, un coup de glace sur un membre relativement inutile. Il n’aime pas le montrer, mais il y a des moments où il ne peut s’empêcher de se perdre à une grimace qui se termine. C’est un geste si large, donc en dehors du comportement général de l’homme, qu’il se sent comme s’il agissait.
«C’est la fibromyalgie», dit-il lorsqu’il est demandé. “En haut et en bas du bras. C’est là que ça devient si grave. Excitante.” ~ Par Tom Chiarella, Esquire
Selon la page Facebook de ProHealth (un site qui vend des suppléments et fournit également beaucoup d’informations excellentes), une grande organisation de la fibromyalgie s’est adressée à M. Freeman pour être un porte-parole. Certaines personnes ont apparemment dit qu’ils ne pensaient pas qu’il devrait être, avec les raisons pour lesquelles il est un homme, et cela parce qu’il est toujours tellement actif que cela permettrait aux gens de penser que nous étions capables beaucoup plus que nous sommes.
J’ai deux choses à dire à ce sujet. # 1: ces deux «problèmes» sont des déchets. # 2: ce serait une énorme bénédiction pour nous tous s’il acceptait.
Avant d’entamer pourquoi, je dirai cela. Comme quelqu’un qui parle de sa vie de santé, je comprends complètement s’il est réticent à le faire. Cela change la façon dont les gens vous voient, et cela vous oblige à mettre des informations extrêmement personnelles pour la consommation publique. Quiconque a déjà bloggé ou utilisé des médias sociaux sait combien le public est méchant, et il est exponentiellement pire pour les célébrités.
(Cependant, je dois dire que mes lecteurs ici sont incroyables – je n’ai presque jamais à faire face à la néant, alors merci pour ça!)
OK, revenez aux deux points ci-dessus.
“Il est un homme”, et “Il est trop actif”.
Oui, il est un homme, et 90% des personnes atteintes de fibromyalgie sont des femmes. Il est vrai qu’il n’est pas représentatif de la majorité. Voilà, même si nous ne pouvons pas l’aimer, c’est un fait que le grand public prend les hommes au sérieux. Une partie du problème d’image de l’état est que c’est perçu comme une «maladie de la vieille femme». Si un homme célèbre et bien respecté se lève et dit qu’il l’a fait, il va briser le stéréotype et nous faire un monde de bien.
Oui, il est encore très actif, et beaucoup d’entre nous sont à l’aise ou presque, et même beaucoup d’entre nous qui ont fait d’énormes améliorations ne peuvent pas faire une fraction de ce qu’il fait. De cette façon encore, il n’est pas représentatif de la majorité. Cependant, dans l’article, il parle d’avoir à abandonner les activités qu’il aime, et il y a cette grande citation: «Il y a lieu de changer comme ceux-ci. Je dois passer à d’autres choses, à d’autres conceptions de moi-même. Non, il n’est pas installé au lit – mais il comprend la perte et le changement de maladie chronique. En outre, pouvons-nous avoir un porte-parole efficace qui ne peut pas arriver au set pour un tournage, ou passer à des conférences? Pas probable.
Ce serait un énorme boon
La comparaison évidente est Michael J. Fox et la différence énorme qu’il a faite pour la recherche et la sensibilisation à la maladie de Parkinson. Aussi, qui n’a pas entendu parler de Jerry’s Kids? Et le tennis, le grand Venus Williams, a sensibilisé le syndrome de Sjogren juste en annonçant qu’elle l’a et l’ouverture dans les entrevues.
Un porte-parole de la célébrité avec une maladie peut faire la manchette et avoir un impact comme rien d’autre. Morgan Freeman n’est pas seulement une célébrité, soit – il est un long-temps A-lister qui est le visage et la voix sont instantanément reconnaissables.
Il est intelligent, sympathique et crédible. Il brise certains stéréotypes juste en ayant la fibromyalgie, et plus en ayant une grande attitude à l’égard de la vie en dépit de cela.
Imaginez ce scénario: une convention médicale prévoit d’avoir de multiples séminaires sur la fibromyalgie. Votre médecin serait-il accompagné? Pensez-vous qu’il serait plus susceptible d’y participer si Morgan Freeman parlait? Sa présence va-t-elle se dérouler mieux lors d’une journée de sensibilisation? Je pense … ouais.
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