Peut-être que vous ne savez rien sur la fibromyalgie et est donc ignorant des faits. Peut-être que vous avez entendu parler de la fibromyalgie, mais est considéré comme une condition nerveuse qui est « dans votre tête. » Ou vous reconnaissez qu’il pourrait y avoir quelque chose de « mal » avec moi, mais tu penses que j’exagère mon « état ». Je vous écris cette lettre parce que je veux éclaircir les hypothèses incorrectes que la note FMS (syndrome de la fibromyalgie) et vous dira comment vos hypothèses me font sentir.
Quand vous croyez que ce n’est pas une condition « réelle » et ceux qui disent qu’ils FMS recherchent l’attention:
Je vous assure, moi et l’estimation de 3 à 6 pour cent de la population mondiale à cette condition (selon l’Association nationale Fibromyalgie) ne réveille pas un matin et décider: « Tu sais, je me sens un peu négligé émotionnellement aujourd’hui . Je pense que je vais parler de mon cerveau pour arriver à une maladie faux pour amener les gens à me remarquer. Ensuite, nous allons parler nous-mêmes collectivement avoir des douleurs articulaires et des douleurs aiguës qui voyagent autour de nos corps et nos esprits, la fatigue engourdissant, les points qui nous font envie de hurler au toucher et la peau qui se sent parfois un coup de soleil pendant des jours ».
Lorsque vous suggérez tout ce que je besoin est l’exercice, une meilleure alimentation ou un passe-temps:
Eh bien, je l’habitude de voyager et dans les rues et les collines autour de ma maison. C’est, jusqu’à ce que je pouvais à peine marcher pendant des jours après. L’exercice n’a pas empêché mon FMS a augmenté les crises d’asthme, de sorte que plus d’exercice ne sera certainement pas le remède.
Et quand il vient à l’alimentation, croyez-moi, je suis conscient que je l’ai mis dans un 30 livres supplémentaires au cours des dernières années comme la fibromyalgie vraiment frappé à. Je suis coincé dans ce corps 24/7, vouloir les choses changent dans l’espoir désespérément. Avant de juger trop sévèrement, ma maladie est un trouble du système nerveux central. « Central », ce qui signifie que à partir de laquelle tout branches d’autre au large.
Il affecte presque tous les aspects de moi-même. Mon corps ne métabolise pas et perdre du poids que celui d’une personne en bonne santé fait. En fait, je travaille dur pour garder le poids que je suis. Je parie dollars à beignets (sans jeu de mots) que beaucoup moins de ce que vous faites et manger des aliments plus sains. Marcher un mile dans mes chaussures, mon ami.
Quand vous pensez que je suis geignard ou comme hypocondriaque:
Rarement ouvert aux gens de ma vie quotidienne avec la fibromyalgie. Je vous assure, je partage une fraction de ce qu’il se sent vraiment à avoir FMS. Je sais que les gens peuvent brûler par la négativité non intentionnelle ceux d’ entre nous avec une maladie chronique peuvent éprouver.
Voilà pourquoi je vous dis un peu, et plus souvent qu’autrement, dire absolument rien du tout. Vous n’êtes pas là pour entendre le cri de douleur lors de la saisie de mes articulations et j’aime le café remplit le plancher de la cuisine. Vous ne me voyez pas regarder en essayant de contrôler mes traits du visage si la douleur que je ressens quand monter ou descendre les escaliers dans le théâtre est pas évident pour tous ceux qui cherchent. Ils ne réalisent pas le temps que le sang dans les veines a été remplacé par du ciment, mais se lève et se poursuit avec la routine de la journée de toute façon.
Lorsque vous voulez montrer l’amour et de soutien pour les personnes atteintes de fibromyalgie ou d’une maladie « invisible » chronique:
Nous ne cherchons pas à tout le monde de se sentir désolé pour nous. Ce que nous voulons vraiment plus que tout est la validation. Il suffit de savoir que quelqu’un pense que notre maladie est réelle. Ils ne sont pas ou semblant exagérant les symptômes. Nous savons que « bien paraître » à l’extérieur, mais si vous pouviez tourner notre intérieur, vous pouvez voir le vrai visage de notre condition.
le soutien par la patience et de la présence. Rappelez – vous que cela ne soit pas choisi notre vie, mais la vie que nous avons choisi de persévérer et de prospérer quel que soit le chemin inattendu maintenant nous devons marcher si – appelé « maladie chronique ».
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