A menudo nos preguntamos ¿PORQUE NADIE COMPRENDE A LOS ENFERMOS DE FIBROMIALGIA?
La fibromialgia es conocida como una “enfermedad invisible”, los síntomas como el dolor muscular, las parestesias, calambres, cefáleas, mareos, pérdidas de memoria, bloqueos mentales, ansiedad y otros no se ven ni los nota nadie además del enfermo, es por esto que los enfermos de fibromialgia son considerados como hipocondríacos (persona que se preocupa por su salud de manera obsesiva y enfermiza sin motivos).
También se cree que solo pretenden llamar la atención y ser el centro de todo.
Hay que añadir que los estudios de laboratorio dan unos resultados normales y que la medicina aún no ha encontrado la causa de la enfermedad ni la comprende, así parece que solo se trata de personas sanas que solo quieren llamar la atención pues además gozan de buen aspecto físico.
Cuando los pacientes comienzan a notar los síntomas no entienden porque se sienten mal si todo el mundo incluidos médicos y ellos mismos se ven tan bien.
Llegan a dudar de sus propias percepciones y que el dolor y demás síntomas sean reales.
Médicos, familiares y el entorno hacen aumentar estas dudas cuando dicen al paciente “no puedes estar enfermo, se te ve muy bien, todo está en tu cabeza” Esto hace al paciente sentirse aún peor al no poder continuar con su trabajo, tareas y vida familiar con normalidad y el paciente comienza a acumular estrés , ansiedad y depresión. Comienzan a disimular el dolor y el malestar encerrandose en si mismos empeorando día a día.
Se llega a un estado de impotencia absoluta cuando ya no se puede más ni física ni mentalmente, cuando el dolor es insufrible y además se vive con la incomprensión y desconfianza de los demás, compañeros de trabajo, amigos, médicos e incluso la familia.
Si padeces fibromialgia seguro que en algún momento has dudado de ti y que personas en las que confiabas al decirles cual es tu estado han pensado que exagerabas.
Por esto es muy importante conocer bien la enfermedad y estar bien informado para poder contestar adecuadamente cuando alguién no nos cree sin entrar en discusión ni alterarnos (esto nos provoca crisis y recaidas) Es conveniente tener aprendido de memoria nuestro “discurso” y las preguntas, dudas y consejos que nos van a plantear para poder contestar a todas con firmeza y seguridad para que sepan que no estamos mintiendo y vivimos una realidad que aunque no se vea existe.
Nosotros no solo sufrimos dolor físico y otros muchos síntomas, además tenemos que estar continuamente convenciendo a los demás de que lo que sufrimos es real.
También es muy importante tener un buen diagnóstico y un tratamiento adecuado. Busca información de confianza de fuentes fiables y recuerda, no hay curas milagrosas.
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