Por que não desejo mais saúde perfeita na minha vida com fibromialgia

Por: Lizo Wilkinson

Não me lembro da última vez que desejei algo diferente de “minha saúde”. Você vê, eu tive problemas de saúde e a última coisa que eu queria era tê-los novamente.

Mas este ano, não desejei minha saúde. Este é o ano em que desenvolvi uma condição crônica de saúde. Um minuto eu estava bem, no minuto seguinte, senti uma intensa dor no pescoço. Nas semanas seguintes, espalhou-se por todo o meu corpo. Meu médico não tinha ideia do que estava acontecendo. Nenhum dos médicos na prática fez.

Depois de muita persistência, consegui uma consulta no Serviço Nacional de Saúde (NHS) com a unidade da coluna vertebral. Seu veredicto? Está tudo bem. O que foi bom, de certa forma. De outras formas, era um pouco “Oh. Bem, o que eu faço agora? ”Momento. Isso já durava há três meses, então definitivamente poderia ser classificado como dor crônica.

Foi só quando eu estava pesquisando a condição de outra pessoa que de repente tive uma ideia do que era. Um dos meus seguidores no Twitter tem fibromialgia, e quando eu olhei para ver o que era isso, de repente tive uma revelação. Estes foram meus sintomas. Ainda não recebi um diagnóstico, pois as listas de espera do NHS duram normalmente oito meses.

Então eu fui na internet. Sou grato a um blogueiro chamado Sam Cleasby que postou informações sobre como viver com deficiências invisíveis. Eu também encontrei muitas informações específicas sobre a fibromialgia no site de Julie Ryan Counting My Spoons. Eu li muitos relatos de experiências de fibromialgia das pessoas, como demora para diagnosticar e médicos mais velhos podem não ter ouvido falar sobre isso.

Eu também li muitos artigos sobre deficiência neste site e achei essas contas extremamente úteis. Quanto mais eu leio, mais informações eu reuni sobre como viver com uma condição crônica de saúde. Acontece que eu segui as colheradas no Twitter de qualquer maneira, então eu procurei por elas para conselhos e ajuda. Isso também foi inestimável. Como eu li durante uma das minhas muitas sessões de pesquisa sobre condições crônicas / incapacidades, as únicas pessoas que realmente podem entender a saúde crônica são pessoas com doenças crônicas e incapacitadas.

Levou-me um ano inteiro para chegar a um acordo com a minha situação. Houve muitos momentos sombrios, e haverá muitos mais, mas como todo “guerreiro da fibromialgia”, aprendi que sou uma pessoa forte que é mais do que capaz de lidar com minha nova situação ou com qualquer situação. Eu aprendi a não me sentir mal se eu tenho que passar o dia apenas assistindo TV. Há alguns dias em que posso fazer coisas quase como costumava fazer, e em alguns dias não posso.

O mais importante de tudo é que aprendi que a saúde perfeita não é o fim, é tudo. Você pode viver uma vida boa com uma saúde medíocre ou mesmo ruim. E essa é a razão pela qual não desejei minha saúde. Eu aprendi a lidar com minha saúde variada.

Eu diria aos outros em minha situação para ficarem fortes. As consultas médicas não são fáceis de obter no Reino Unido, então meu principal apoio, conselhos e informações vieram quase inteiramente da Internet. Se você não tem suporte local, a Internet tem um mundo inteiro de informações. Lembre-se de ser muito cuidadoso ao usá-lo, porque é um mundo de informações e também um mundo de desinformação.

Como nós, os fãs de “Sobrenatural”, dizemos uns aos outros, sempre continuem lutando – para os profissionais médicos escutarem você, para que as pessoas entendam e encontrem respostas ou um diagnóstico.

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