¿Por qué la fibromialgia ha sido declarado oficialmente una discapacidad a largo plazo. ¿Tú sabes?

fibromialgia

¿Alguna vez has oído hablar de la fibromialgia? Durante mucho tiempo, esta condición ha sido pasado por alto por el mundo de la medicina ya que su causa es desconocida y por lo tanto difícil de diagnosticar. Sin embargo, dejando a un lado por este tema, muchas personas están viviendo con el dolor crónico y otros síntomas sin la ayuda farmacéutica; después de todo, incluso sus médicos no pueden saber sobre él. Sin embargo, este trastorno afecta a unos 10 millones de personas en los EE.UU. y alrededor del 3-6% de la población mundial. (1) que es un montón de personas que sufren de una condición médica reconocida. Sin embargo, un país decidió cambiar eso.

Fibromialgia en Irlanda del Norte

En Irlanda del Norte, la fibromialgia está siendo reconocido como una condición a largo plazo por parte de profesionales de la salud, después de tres años de quejas que se emitan a la paciente y el Consejo de cliente en Irlanda del Norte. dedicados miembros entrevistaron a los enfermos, presionaron a los políticos y los profesionales de la salud para establecer servicios médicos a través de los fideicomisos de salud.

 

Una víctima, Martina Marks, comenta que es un alivio para ser tomado en serio. “He vivido con el dolor desde 1997. A veces puede ser crónica, con dolores en los músculos y las articulaciones”, dice ella. Ella no fue diagnosticado durante 10 años.

Louise Skelly, director de operaciones en el paciente y el Consejo de cliente, dice: “Lo que sorprende es cómo muchos pacientes se han presentado, con ganas de compartir sus historias. Se sentían muy aislada y muy solo y lo que también descubrimos es que los médicos también han encontrado esta un área difícil de trabajar en lo que han acogido el intercambio de conocimientos e información “.

 

Los síntomas de la fibromialgia

Viviendo con la fibromialgia, Marks explica, “A menudo el dolor es insoportable y entonces usted tiene que lidiar con un trastorno del sueño, dolores de cabeza y simplemente no ser capaz de hacer frente a la vida cotidiana.” (2)

Además de para el dolor y sensibilidad en todo el cuerpo, otros síntomas de la fibromialgia pueden incluir:

 

  • Los dolores de cabeza
  • Problemas para dormir
  • Rigidez matutina
  • problemas cognitivos y de memoria
  • IBS
  • calambres menstruales dolorosos
  • Entumecimiento u hormigueo en las manos o los pies
  • Sensibilidad a la temperatura
  • Síndrome de piernas inquietas
  • Sensibilidad a los ruidos fuertes o luces brillantes (3)

 

La fibromialgia puede hacer la vida diaria de una lucha, a veces parando un paciente de ser capaz de funcionar bien en un trabajo si los síntomas no se tratan. A menudo, estar sin trabajo puede conducir al aislamiento, la soledad y la depresión.

 

“Era importante que me dieron el diagnóstico, porque había estado yendo a través de diferentes tratamientos, ver diferentes médicos y nada me estaba dando alivio”, dice Marks. “Algunos de ellos no entienden la enfermedad y creo que necesitamos una campaña de sensibilización para la profesión médica para comprender la variedad de síntomas de fibromialgia y de la gravedad de la misma.”

Padecer fibromialgia reconocida como una enfermedad a largo plazo

El aumento de la conciencia de la fibromialgia en Irlanda del Norte está trayendo esta enfermedad a la vanguardia para sanar y mejorar la vida de las personas que sufren de ella. Sin esta educación, los profesionales médicos no serían capaces de diagnosticar y tratar adecuadamente a estos pacientes ya sea a través de medicamentos, ejercicios o terapias alternativas.

 

Si usted vive en un país donde la fibromialgia no se reconoce como una enfermedad a largo plazo, que puede significar que hay un sinnúmero de ciudadanos que viven en el dolor crónico sin tener ni idea de cómo tratarla. Afortunadamente, hay muchas maneras en que puede difundir el conocimiento, incluyendo:

 

  • Publicar hechos, estadísticas e historias de vida sobre la fibromialgia en las redes sociales
  • Involucrarse en eventos locales de sensibilización fibromialgia
  • El alojamiento de su propio evento para recaudar fondos para la investigación
  • La donación a la organización fibromialgia o la caridad
  • El recibimiento de una página de Facebook para las personas en su área con la fibromialgia
  • En contacto con su senador o miembro del Congreso sobre la investigación de financiación adicional y tratamiento
  • Soporte de impresión de carteles y colgarlos en el trabajo / escuela / universidad
  • Use una cinta púrpura fibromialgia y explicar la enfermedad a personas que preguntan por qué lo usa (4)

 

Para aquellos que sufren o simpatizantes de la fibromialgia, que es un alivio saber que Irlanda del Norte está finalmente tomando una posición en la que reconoce como un problema a largo plazo. Con suerte, esta declaración se extienda a otros países y dar a los pacientes sin diagnosticar los tratamientos que se merecen. Mientras tanto, la difusión de la conciencia y educar a nosotros mismos sobre esta enfermedad traerá los enfermos más cerca de alivio del dolor crónico.

 

Si usted lucha con la fibromialgia, echa un vistazo a estos artículos que dan métodos alternativos para la superación de la enfermedad: 8 tratamientos naturales para el alivio del dolor de la fibromialgia y las 4 causas más comunes de la fibromialgia que nadie conoce

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