A fibromialgia é geralmente reconhecida como uma doença progressiva que pode mudar ao longo do tempo. Em 2014, Angela Wise escreveu um post Facebook no qual ela descreveu os 6 estágios diferentes de fibromialgia com base em sua experiência pessoal.
Renúncia importante: todos experiências fibromialgia diferente e nem todos experimentam mudanças drásticas ao longo do tempo.
Fase 1 – Você começa a experimentar dor e fadiga mais do que antes, você não tem certeza do que está acontecendo, mas você machuca e você está cansado. Você pode manter um emprego, você pode fazê-lo através de seu dia, mas você sabe que algo não está certo … por isso é algo que você vai começar a pesquisar.
Fase 2 – Você está com dor muito, às vezes tomar um medicamento anti-inflamatório ou o que você tem.Você não ganha muito alívio, e você aceitou o fato isso é algo que você vai ter por um tempo. você sente muita dor e você está exausto quase todos os dias, mas a maior parte que você vai manter e manter um emprego, ainda pode ir a eventos, passar tempo com seus amigos e entes queridos, e ter um bom tempo aqui e há.
Fase 3 – Você está em constante dor, você está constantemente cansado, você quer saber se você será sempre capaz de funcionar normalmente. Você está considerando não funciona, porque você não tem mais a energia que você teve uma vez, você chega em casa do trabalho e tudo o que você pode fazer é descansar. Você tem que recusar convites, você não tem energia sobrando e você tem que descansar apenas para voltar amanhã. Nesta fase você começa a se sentir mais sozinho, e mais e mais pessoas estão começando a pensar que você lamentar muito. Esta fase pode durar um longo tempo, talvez anos.
Fase 4 – Você está com dor implacável todo o tempo, bons dias são poucos e distantes entre si. Você está chamando para o trabalho doente mais do que você mesmo fazê-lo. Você está na cama uma boa parte do seu dia. Quando você tem um bom dia que você tirar proveito dela, e fazer o máximo que puder, todas as coisas que você deixou nas últimas semanas você enfiar seu dia, bem sabendo que amanhã você estará pagando por isso. Suas erupções durar dias. Por esta altura os seus amigos fazem planos sem você, eles já sabem suas desculpas e são quase certo que você não será capaz de participar. Sua família começa a pensar que você está usando fibromialgia como uma desculpa para não fazer as coisas, porque etapas 1-3 você fosse capaz de fazer muito do que você simplesmente não pode fazer agora. Eles acham que você está usando sua doença como uma desculpa, você se sente sozinho, isolado, preocupado, emocional, triste. Esta fase pode durar anos.
Stage 5 –Você já ter sido demitida ou que sair do seu trabalho, você está fazendo perguntas sobre a deficiência permanente e quanto tempo leva para obtê-lo. Você já ouviu histórias de horror sobre pessoas sendo negado eo processo levando anos. Você está lutando para fazer face às despesas. Talvez ter uma pessoa que cuida de você. Você gasta muito do seu dia na cama, embora você ainda tirar proveito do que um bom dia de vez em quando. Você está dolorido, muito dolorido, você chorar muito, você se sentir como um prisioneiro em seu próprio corpo. Por esta altura você já explicou a seus amigos que ainda se sente bem para ser convidado, mesmo que você não vá. Você encontrou que as únicas pessoas que podem se relacionar com você está em uma situação semelhante. Você deseja seus amigos e família poderia entender.
Fase 6 – Você pode ou não pode ainda estar à espera de benefícios por incapacidade. Você não pode manter um emprego. A fibromialgia é agora seu estilo de vida, a maioria dos seus amigos estão vivendo com fibromialgia si mesmos, tudo que você faz leva toda a sua energia preciosa, simples tarefas diárias que você tomou para concedido em etapas anteriores, ir ao banheiro, lavar o cabelo, tomar um banho, ficando vestido, amarrar os sapatos, tomar tudo o que você pode dar. Você começa irritado com seu cabelo ou roupa tocando sua pele, você não tem energia ou desejo de colocar em “sua cara” antes de sair, sem energia para manter um puro casa. Com toda a medicação que estão em, ou já tenha tentado, você está lidando com efeitos colaterais e dor constante.
Você é um ser humano e ainda desfrutar de algumas coisas, como assistir TV. Você tenta ficar atualizado sobre qualquer notícia sobre fibromialgia, na esperança de que eles estão mais perto de encontrar uma cura. A maioria de seus velhos amigos não estão mais por perto, eles têm coisas para fazer. Você precisa descansar muito. É fácil sentir-se oprimido nesta fase, porque as coisas estão se acumulando em torno de você: contas, lavanderia, pratos. Você faz um pouco todos os dias, você empurrar-se para que você não se sente como o seu dia foi desperdiçado na cama, você se sentir culpado que você não puxar o seu próprio peso em casa. Seus filhos, cônjuge ou família fazer coisas para você mais do que nunca. Eles tentar fazê-lo de uma forma agradável, mas você ainda se sente como um fardo, você não consegue lembrar de nada, não pode recordar nomes ou datas e você perder seu trem de pensamento no meio da frase. Além disso, você sabe mais sobre a fibromialgia nesta fase, em seguida, o seu próprio médico e, basicamente, rir ao tentar uma nova medicação. Você está sem esperança, mesmo exercício como antes, mesmos resultados, nada ajuda muito.
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