Um dos membros do nosso grupo fechado compartilhou esta história conosco e nos pediu para publicá-la para difundir o conhecimento de nossa doença. Isto é o que você deve saber sobre pessoas com fibromialgia.
1. minha dor
Minha dor não é sua dor Não é causada por inflamação. Tomar o seu remédio para a artrite não me ajudará. Eu não posso aliviar minha dor ou agitá-la. Não é nem mesmo uma dor que permanece. Hoje está no ombro, mas amanhã pode ser parado ou pode ter desaparecido. Acredita-se que minha dor é causada por sinais incorretos enviados ao cérebro, possivelmente devido a distúrbios do sono. Não é bem compreendido, mas é real.
2. minha fadiga
Estou apenas cansado. Frequentemente estou em estado de exaustão grave. Você pode querer participar de atividades físicas, mas eu não posso. Por favor, não leve para o lado pessoal. Sim, ontem você me viu fazendo compras no shopping, mas hoje eu não posso te ajudar com o trabalho de jardinagem, não é porque eu não quero. O mais provável é que ele esteja pagando o preço por enfatizar os músculos além de sua capacidade.
3. Meu esquecimento
Aqueles que sofrem, chamam isso de Fibronzebla. Você pode não se lembrar do nome dele, mas devo lembrar. Você pode não se lembrar do que prometi fazer por você, embora tenha me dito há alguns segundos. Meu problema não tem nada a ver com a minha idade, mas pode estar relacionado à falta de sono. Eu não tenho uma memória seletiva. Em alguns dias, simplesmente não tenho memória de curto prazo.
4. Minha falta de jeito
Se eu fizer a ponta dos pés ou limpá-lo cinco v ezes em uma multidão, não vou direcioná-lo deliberadamente. Eu não tenho controle muscular para isso. Se você está atrás de mim na escada, seja paciente. Hoje em dia, eu levo a vida e as escadas passo a passo.
5. Minhas sensibilidades
Não posso suportá-lo! “Isto” pode ser uma série de coisas: luz solar intensa, ruídos altos ou agudos, cheiros. FMS foi chamado de “tudo o que agrava o desastre”. Então não me faça abrir as cortinas ou ouvir seu filho gritar. Eu realmente não suporto isso.
6. minha intolerância
Eu não suporto o calor também. Ou umidade Se eu sou um homem, eu suo … profusamente. Se eu sou uma dama, eu suo. Ambos são igualmente vergonhosos, então eu não me sinto compelido a apontar essa deficiência em mim. Eu sei. E não se surpreenda se você tremer incontrolavelmente quando estiver frio. Eu também não tolero o frio. Meu termostato interno está quebrado e ninguém sabe como consertá-lo.
7. minha depressão
Sim, há dias em que eu preferiria ficar na cama ou em casa ou morrer. Dor severa e implacável pode causar depressão. Sua sincera preocupação e compreensão podem me tirar do limite. Seus comentários sarcásticos podem me levar ao limite.
8. meu stress
Meu corpo não lida bem com o estresse. Se eu tiver que deixar meu emprego, trabalhar meio expediente ou administrar as responsabilidades da minha casa, não sou preguiçoso. Os estresses diários pioram meus sintomas e podem me incapacitar completamente.
9. meu peso
Pode ser gordo ou eu posso ser magro. De qualquer forma, não é por escolha. Meu corpo não é seu corpo. Meu centro cerebral está quebrado e ninguém pode me dizer como consertá-lo.
10. Meu bom dia
Se você me vê sorrindo e funcionando normalmente, não assuma que eu sou assim. Eu sofro de dor e fadiga doença crônica que não tem cura. Eu posso ter meu bom dia, semanas ou até meses. Na verdade, bom dia são os que me ajudam a seguir em frente.
11. Minha singularidade
Mesmo aqueles que sofrem de FMS não são os mesmos. Isso significa que você não tem todos os problemas mencionados acima. Eu tenho dor acima e abaixo da cintura e em ambos os lados do meu corpo que durou muito tempo. Você pode ter enxaquecas ou dor no quadril ou dor em seu ombro ou joelho, mas eles não têm exatamente a mesma dor que qualquer outra pessoa.
12. minha deficiência
Minha deficiência é invisível, mas ainda existe. É o mesmo que você não vê ar, mas está presente, o mesmo acontece com a fibromialgia, ela existe, é real. Nem tudo está em nossas cabeças, se foi então, por que não coloco algo na minha cabeça que é mais reconhecível como câncer, etc. Nós colocamos este decalque de deficiência de fibromialgia em seus carros e espalhar a consciência de fibro.
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