Se están buscando pacientes con fibromialgia para un ensayo clínico en el análisis de sangre.
Sufrir de fibromialgia significa tratar con dolor, trastornos del sueño, depresión, y problemas de pensamiento y memoria.
Apenas como difícil puede ser el escepticismo de los amigos, de la familia y de la comunidad médica que dudan de la validez de la enfermedad sí mismo.
Poco entendida ya menudo mal diagnosticada, la fibromialgia afecta a alrededor del 2 por ciento de la población, según los Centros para el Control y la Prevención de Enfermedades.
Ese número es discutido por otros que dicen que afecta a más de 10 millones de estadounidenses, o un estimado 6 por ciento de la población, dijo el Dr. Bruce Gillis, fundador de Epicgenetics, una compañía biomédica que desarrolló el análisis de sangre FM / Diagnosticada de fibromialgia.
Lo que es
La fibromialgia es un trastorno crónico que se caracteriza por dolor y sensibilidad generalizada de músculos y articulaciones en todo el cuerpo o en áreas localizadas, junto con otros síntomas, incluyendo dolores de cabeza frecuentes, sueño deficiente, piernas inquietas o calambres en las piernas, entumecimiento u hormigueo.
Entre las víctimas, afecta a alrededor del 60 por ciento de las mujeres y el 40 por ciento de los hombres, dijo Gillis.
Durante cientos de años, la fibromialgia ha sido mal entendida, dijo Gillis. Los enfermos – en su mayoría mujeres – fueron etiquetados como neuróticos. Hace un siglo las mujeres podían ser institucionalizadas. En la década de 1970, los médicos ampliamente prescritos Valium para tratar, dijo Gillis.
Se clasificó como un síndrome o un conjunto de síntomas en lugar de una enfermedad, dijo Gillis, que anteriormente estaba en la práctica privada de tratamiento de pacientes con fibromialgia.
Para probar la fibromialgia, muchos pacientes pasaron de tres a cinco años visitando médicos por “pruebas de exclusión”, dijo Gillis. Por ejemplo, se probaron y descartaron el lupus o se les diagnosticó de forma incorrecta la artritis reumatoide.
Con la asistencia de las principales universidades médicas, incluyendo la Universidad de California, Los Ángeles; La Universidad de Illinois en la Facultad de Medicina de Chicago y la Escuela de Medicina de Harvard, se desarrolló la prueba FM / a.
Diagnostica la fibromialgia mediante la identificación de la presencia de anomalías específicas de glóbulos blancos que se han documentado que existen en estos pacientes. La prueba es compatible con la FDA y se introdujo en 2013.
La prueba requiere menos de una onza líquida de sangre. Analiza los cromosomas de los glóbulos blancos del sistema inmunológico y los patrones de movimiento de las citocinas, dijo Gillis.
Los pacientes con fibromialgia tienen un patrón irregular con respecto a estas proteínas. Los proveedores de atención médica pueden solicitar la prueba, la cual está cubierta por Medicare ya menudo por seguro.
“Creo que estamos a la vanguardia del avance de la información científica sobre la fibromialgia y responder a estas preguntas críticas para los pacientes: 1) ¿Tengo fibromialgia? 2) ¿Cómo y por qué desarrollé fibromialgia? Y 3) ¿Existe un tratamiento directo para la fibromialgia? “, Dijo Gillis.
Campaña 250
En un esfuerzo por investigar no sólo la causa de la fibromialgia, sino para desarrollar un tratamiento eficaz, Campaign 250 está buscando a 250.000 voluntarios para tomar la prueba FM / a de forma gratuita.
Los pacientes que reciben un diagnóstico positivo pueden optar por participar en un ensayo clínico de vacuna específica contra la fibromialgia que tratará de aliviar los síntomas relacionados con la fibromialgia.
El estudio será dirigido por la Dra. Denise Faustman, directora de Laboratorios de Inmunobiología del Hospital General de Massachusetts / Escuela de Medicina de Harvard, que estudia los mercados comunes y los rasgos de ADN en su investigación en una vacuna FM.
“Las personas con fibromialgia ya no tienen que escuchar a los demás decir:” Todo está en tu cabeza “o” Ella se ve perfectamente bien. “No puedes ver el sistema inmunológico en el trabajo”, dijo Gillis.
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