Non sono malato. Ho la fibromialgia.

La lotta con la fibromialgia è che ogni giorno è qualcosa di nuovo. Il mio diario è una battaglia costante su una pista all-terrain; pieno di pericoli, nessuna idea di dove sto andando o di quello che colpirò dopo. Sono in una infinita rotunda di sintomi.

Ogni ostacolo è calcolato per evitare il rischio, ma il risultato non è mai prevedibile, non importa quanto io provi. Le variabili non contano.

Ci sono molti sintomi della fibromialgia, tra cui:

  1. dolore muscolare cronico, spasmi muscolari o senso di oppressione
  2. grave affaticamento cronico e diminuzione di energia
  3. insonnia o svegliarsi sentendosi stanco come quando andava a dormire
  4. rigidità al risveglio o dopo un soggiorno in una posizione per troppo tempo
  5. difficoltà a ricordare, concentrandosi , ed eseguire attività mentali semplice ( “fibroidea nebbia”)
  6. dolore addominale, gonfiore, nausea e stipsi senza problemi gastrointestinali di informativa
  7. tensione cronica o emicrania
  8. sensibilità a uno o più dei seguenti: odori, rumore, luci, farmaci, alcuni alimenti e freddo
    di ansia e depressione
  9. Intorpidimento o formicolio al viso, braccia, mani, gambe o piedi
  10. Una sensazione di gonfiore (senza gonfiore effettivo) nelle mani e piedi
  11. mascella e tenerezza facciale

Costochondritis, infiammazione della cartilagine che connette una nervatura per la sterno
sta procedendo. Stanno anche meglio. Come allodinia, una maggiore sensibilità al tatto, con conseguente dolore cose che normalmente sarebbe non causare disagio, come ad esempio indossare abiti.

Per me, lotto con dolore e stanchezza. Singolo. Giorno. Non è solo un po ‘mal di testa o sono stanco. Questo è dolore per tutto il corpo come se avessi l’influenza. Questa è fatica come se non avessi dormito in 48 ore. Questo è ogni giorno Questa è la mia costante linea di base. La mia normale esistenza sei in una giornata di malattia. O sbornia. Questo è il modo in cui vivo.

Per riferimento, ho 27 anni, 5’1 “e 120 sterline. Sembro in salute

Ma gli altri sintomi sono la parte più difficile. Passano attraverso il mio corpo come se fosse un flipper; posizione e gravità che cambiano costantemente, spesso in acuti e rapidi dolori, così veloci che riesco a malapena a riprendere fiato prima che si muova. Durata regolare per ore alla volta; dove le mie gambe si sentono come se avessero pesi di 100 libbre legati a loro.

Di solito durante l’esecuzione mie commissioni di base, io mi ha colpito come una tonnellata di mattoni che diventano il sudore, quindi sto surriscaldamento così difficile devo “fare una pausa”, perché a comprare di più la carta igienica in Target è troppo difficile . Otto ore di lavoro nel mio lavoro a tempo pieno mi sembrano di correre una maratona.

L’elenco potrebbe continuare all’infinito. Mi sono rassegnato a dire: “Non mi sento bene, grazie per averlo chiesto”, invece di cercare di spiegare una delle innumerevoli malattie che sento in questo momento.

A proposito di momenti, è tutto ciò che posso pensare. Proprio in questo momento di dolore esisto, a letto cercando di distrarmi da “lui” (il dolore). Domani, nei momenti prima, durante e dopo il mio viaggio in pubblico.

Tra tre settimane, al momento del viaggio di 30 ore, mi imbarco. Come reagirò? Come chiamerai (questo è il modo in cui descriviamo “quando sh * t colpisce il ventilatore”)? Quanto durerà il transito dalla X alla Z? Una volta arrivato al posto di Z, dovrò partire in qualsiasi momento? Quanta energia devo usare nelle otto ore che dovrei lavorare?

Alzati ogni 45 minuti per ridurre il livello del dolore del cinque percento. Cammina almeno 4000 passi per ridurre il livello del dolore del 10 percento. Riposa dopo 20 minuti di cammino. Essere a letto per almeno nove ore per funzionare a circa il 75 per cento il giorno successivo.

Tutto è un calcolo perché c’è un errore nel mio database.

Non c’è più alcun motivo nel mio codice.

Tutto è sconosciuto

Al lavoro, ritengo che dire a un collega di più sul perché fosse “malato” ieri. Chiese, curiosamente, se avesse scoperto cosa mi faceva star male. Ho risposto scherzosamente: “A volte mi ammalo.” Ma la parte di me che desidera ardentemente il supporto e l’empatia mi ha implorato di dire la verità. La cosa sulla fibromialgia è che non è come le altre cose. La cosa sulla fibromialgia è che nessuno sa cosa sia.

La risposta più comune è una conferma cancellata due volte – che hanno una conoscenza (spesso femminile) o la loro “mamma amica”. La conversazione si interrompe. Non è come quella dannata influenza. Le persone sanno di cosa si tratta. Le persone lo capiscono. Sei malato

La fibromialgia è una classe a sé stante, ed è diversa per tutti.

Il mio discorso di ascensore di solito è un po ‘come questo: “Ho un disturbo del sistema nervoso centrale che causa diffuso dolore cronico e stanchezza.” Cerco di farlo sembrare cattivo, perché è cattivo.

Perché voglio che le persone prestino attenzione.

Voglio che le persone sappiano della fibromialgia e cosa fa; il potere che deve distruggere vite mentre si nasconde nell’ombra. Si traveste da altre malattie, quindi sottoponiamo una serie di test che la nostra assicurazione non coprirà. Questo trasforma i miei amici e la mia famiglia in scettici. Fa pensare (e farmi sentire) come se fossi un bugiardo, una persona finta e pigra. Prova a prendere il mio lavoro, i miei rapporti, il mio amore e la passione per la vita.

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    Ничего себе, эта {статья|пост|кусок письма|абзац} {хороша|приятна|хороша|привередлива},
    моя {сестра|младшая сестра} анализирует {такие|эти|эти виды} вещей, {так|так|поэтому} я собираюсь {рассказать|сообщить|дать знать|передать} ей.|
    {Сохранено как избранное|закладка в закладки!!}, {мне очень нравится|мне нравится|мне нравится} {ваш блог|ваш сайт|ваш веб-сайт|ваш
    сайт}!|
    Очень круто! Некоторые {очень|чрезвычайно} действительные пункты!
    Я ценю, что вы {пишете это|пишете это} {статья|пост|запись} {и|а также|плюс} остальная часть {сайт
    есть|сайт есть} {также очень|чрезвычайно|Очень|также действительно|действительно} хороши.|
    Привет, {я действительно верю|я действительно думаю} {это отличный|это отличный} {блог|сайт|веб-сайт|сайт}.
    Я споткнулся об него 😉 {Я так и сделаю|Я собираюсь|я собираюсь|я могу}
    {вернуться|вернуться|вернуться} {еще раз|еще раз} {так как я|так
    как у меня есть} {закладка|книга помечена|книга помечена|сохранена как избранная} это.
    Деньги и свобода {это лучший|величайший} способ
    измениться, пусть вы будете богаты и продолжаете {помогать|направлять} {другим людям|другим}.|
    Ого! Я действительно {люблю|наслаждаюсь|копаю} шаблон/тему этого {сайта|сайта|блога}.

    Это просто, но эффективно. Очень часто бывает
    {очень трудно|очень трудно|сложно|трудно|трудно / трудно} получить этот
    “идеальный баланс” между {превосходным юзабилити|удобством использования|удобством
    использования} и {визуальным внешним видом|визуальной привлекательностью|внешним видом}.
    Я должен сказать {что вы|вы|вы сделали {потрясающую|потрясающую|очень хорошую|превосходную|фантастическую|превосходную|великолепную} работу с этим.
    {Кроме того|дополнительно|также}, блог загружается {очень|чрезвычайно|супер} {быстро|быстро} для меня на {Safari|Internet explorer|Chrome|Opera|Firefox}.
    {Превосходный|Исключительный|Выдающийся|Отличный} Блог!|
    Это {действительно|на самом деле|на самом
    деле|по-настоящему / искренне} {великие|огромные|впечатляющие|замечательные|фантастические}
    идеи в {отношении|отношении|О|по теме} блоггинга.
    Вы затронули некоторые {хороший|приятным|хорошо|привередливый} {моменты|факторы|} вещи здесь.
    В любом случае продолжайте извиваться.|
    {Я люблю|мне действительно нравится|мне нравится|мне нравится|все любят} то, что
    вы, ребята, {обычно|склонны быть}
    тоже. {Такого рода|такого рода|такого рода /
    такого рода} умная работа и {разоблачение|освещение|отчетность}!

    Продолжайте в том же {превосходные|потрясающие|очень
    хорошие|отличные|хорошие|отличные|фантастический|отлично|удивительный|замечательный} работает ребята я {включены||добавленную|включены} вы, ребята, {|мое|наше||мое личное|мои собственные} блоге.|
    {Привет|привет там|Привет там|Привет|Привет|Привет}!
    Кто-то в моей {MySpace|Facebook} общая это {сайт|сайт} с нами, чтобы я пришел к {посмотреть|взглянуть|посмотреть|проверить}.
    Я определенно {наслаждаюсь|люблю}
    этой информацией. Я {book-marking|bookmarking} и буду чирикать об этом своим подписчикам!
    {Прекрасный|замечательный|идеальный|потрясающе|великолепно|исключительное|превосходное|отличное} блог {замечательный|прекрасный|блестящий|удивительные|отлично|отлично|потрясающе|великолепно|превосходно} {стиль
    и дизайн|дизайн и стиль|дизайн}.|
    {Я люблю|мне действительно нравится|мне нравится|мне нравится|все любят} то, что вы,
    ребята, {обычно|склонны быть} тоже.
    {Такого рода|такого рода|такого рода / такого рода} умная работа и {разоблачение|освещение|отчетность}!
    Продолжайте в том же {превосходные|потрясающие|очень хорошие|отличные|хорошие|отличные|фантастический|отлично|удивительный|замечательный} работает
    ребята я {включены|добавлены|включены}
    вы, ребята, {|мое|наше|мое личное|мои собственные} блоге.|
    {Привет|Привет там|Привет|Привет|Привет|Привет} ты о том, {|обмен},
    который блог-платформа Вы {работа
    с|использованием}? Я {просмотр|планирование|собирается}, чтобы начать
    свой собственный блог в ближайшем будущем|только} но я {сложно|трудно|тяжело} время {решение|выбор|выбора|принятия
    решения между BlogEngine/на WordPress/b2evolution и Drupal.

    Причина, по которой я спрашиваю,
    заключается в том, что ваш {дизайн и стиль|дизайн|макет} кажется другим, чем большинство блогов, и я ищу что-то
    {совершенно уникальное|уникальное}.
    P. S {мои извинения|извинения|извинения} за то, что я {получил|был}
    не по теме, но я должен был спросить!|
    {Привет|Привет там|Привет|Привет там|Привет|Привет} не могли бы вы дать мне знать, какой {хостинга|хостинг-компании|веб-узел} ты
    {использование|работа с|использованием}?

    Я загрузил ваш блог в 3 {совершенно разных|разных} {интернет-браузерах|веб-браузерах|браузерах}, и я должен сказать,
    что этот блог загружается намного {быстрее|быстрее}, чем большинство.

    Можете ли вы {предложить|рекомендовать} хорошего {интернет-хостинга|веб-хостинга|хостинга} провайдера по {честной|разумной|справедливой} цене?

    {Большое спасибо|престижность|Ура|Спасибо|Большое спасибо|Спасибо}, я ценю это!|
    {Я люблю|мне действительно нравится|мне нравится|все любят} это {когда люди|когда люди|когда люди|когда люди} {собираются вместе|собираются вместе} и делятся {мнениями|мыслями|взглядами|идеями}.

    Отлично {блог|сайт|сайт}, {продолжайте в том же духе|продолжайте хорошую работу|придерживайтесь ее}!|
    Спасибо за {благоприятную|хорошую} запись.
    Это на самом деле был забавный счет.
    Посмотрите расширенный далеко до {|} добавил приятно
    от вас! {Кстати|однако}, как {можем|могли бы} мы общаться?|
    {Привет|привет там|Привет там|Привет|Привет} просто
    хотел быстро предупредить вас. {Text|words} в вашем {content|post|article} , похоже,
    работает вне экрана в {Ie|Internet explorer|Chrome|Firefox|Safari|Opera}.
    Я не уверен, что это проблема {format|formatting}
    или что-то связанное с совместимостью
    {web browser|internet browser|browser}, но я {думал|думал} Я бы отправил вам
    сообщение, чтобы вы знали.
    Однако {стиль и дизайн|дизайн и стиль|макет|дизайн} выглядят великолепно!
    Надеюсь, что вы получите {problem|issue} {solved|resolved|fixed} в ближайшее время.
    {Престижность|Ура|большое спасибо|Спасибо}|
    Это тема {который|Которая|который} {рядом|рядом с} мое сердце…
    {Ура|большое спасибо|наилучшие
    пожелания|Берегите себя|Спасибо}!
    {Где именно находятся ваши контактные данные?|
    Это очень {легко|просто|безотказно|прямолинейно|без усилий}, чтобы узнать любую {тему|вопрос} в {сети|интернете} по сравнению с {книгами|учебниками}, как я нашел эту {статью|пост|часть письма|абзац} на этом {веб-сайте|веб-сайте|веб-странице}.|
    Есть ли у вашего {сайта|веб-сайта|блога} контактная страница?
    У меня есть {трудное время|проблемы|проблемы}, чтобы найти его, но я
    хотел бы {отправить|снять} вам {электронное письмо|электронную почту}.
    У меня есть несколько {творческих идей|рекомендаций|предложений|идей} для вашего блога, которые вам, возможно, будет интересно услышать.
    В любом случае, отличный {сайт|сайт|блог}, и я с нетерпением
    жду, когда он {будет развиваться|улучшаться|расширяться|расти} с течением времени.|
    {Привет|привет там|Привет|Привет|Привет}!
    Я {следил|читал} ваш {сайт|веб-сайт|веб-сайт|блог / Блог} уже {долгое время|некоторое время|некоторое время} и наконец набрался
    {храбрости|мужества}, чтобы пойти вперед и крикнуть вам из
    {New Caney|Kingwood|Huffman|Porter|Houston|Dallas|Austin|Lubbock|Humble|Atascocita} {Tx|Texas}!

    Просто хотел {сказать вам|упомянуть|сказать} продолжать
    в том же духе {фантастическая|отличная|отличная|хорошая} {работа|работа}!|

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