My naam is fibromialgie en ek is ‘n onsigbare siekte.

My naam is fibromialgie en ek is ‘n onsigbare siekte.
Ek is die res van jou lewe by jou.
Ander sien my nie.
Maar u liggaam voel vir my.
Ek kan jou aanval net soos jy wil.
Ek kan ook sorg vir die intense pyn.
En as ek in ‘n goeie bui is, kan ek u ook verseker dat u oral pyn het.
Onthou jy toe jy energie gemaak het en almal baie pret gehad het? Wel, ek het hierdie krag weggeneem
en weer moegheid gekry.
Nou probeer u altyd om pret te hê, maar ek sal u uit u droom haal en u weer ‘n hoofpyn gee!
Ek kan u verseker dat u binne vibreer en dat u koud of warm is as almal normaal voel.
O ja, ek kan angstig en depressief raak.

Moenie vra nie, maar ek het jou om verskillende redes gekies. 
Vir hierdie virus wat nooit herstel en nooit herstel het nie, of vir ‘n motorongeluk, of miskien is dit die jare van nalatigheid na ‘n trauma! Hoe dan ook, ek is hier en ek sal by jou bly!
Ek het gehoor jy is dokter toe om van my ontslae te raak. Haha ek rol op die vloer lag haha, probeer dit!
U moet gaan, u wil uiteindelik deur baie dokters my ontslae raak.
Jy is vasgebind met pille, slaappille, energiepille.
U ontvang masserings en dit word gebreek deur angs of depressie.
Hulle sal vir u sê dat as u u pille goed neem, maar u oefeninge doen, ek sal weggaan.
Maar die slegste is dat hy dit nie ernstig sal opneem as hy na die dokter skree wat ‘n meer normale lewe het nie.
Jou familie, vriende en kollegas? Ek sal na u luister totdat u moeg is vir hoe ek u laat ly en ek ‘n vrot siekte is.
Hulle hoor jou nie sê nie: “Tien jaar gelede? Tien dae gelede! ‘
Boonop praat sommige agter hul rug as hulle stadigaan voel dat hulle hul selfbeeld verloor.
U probeer altyd, na my beste oordeel, om te verduidelik dat hulle u verstaan.
Dit is veral moeilik as u ‘n ‘normale persoon’ is in die gesprek en skielik nie weer weet wat u bedoel het nie.

Ek het gehoop dat hierdie geheim kan voortduur, maar nou sal dit ook soos
volg gepubliseer word:

Die persoon met wie u ‘n goeie begrip en ondersteuning sal hê om my teë te gaan, is mense met fibromialgie.
Aanvaar die minderheid wat my liefhet en ondersteuning het vir ander.

Is dit waar dat u verantwoordelik moet wees omdat u moeg is omdat u pyn het en nie alles is wat u wil hê nie?
Is dit nie waar dat as u nie ‘n siekte het nie, daar nog ‘n misverstand is, wat doen u of wat doen u nie?
Dit is sonder om energie te mors; daarom moet u uself altyd afvra: wat dink u nog?

As daar min energie is, is dit beter om dit aan lekker dinge te bestee en om pret te hê in u lewe, in plaas daarvan om kwaad te word.
Moet u nou nie moeg word vir al die begripsprobleme nie?
terwyl jy so gou moeg is?

200 thoughts on “My naam is fibromialgie en ek is ‘n onsigbare siekte.

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