40 detaillierte Fibromyalgie-Patienten aus drei Ländern (USA, Deutschland und Frankreich) Interviews zeigen, dass Müdigkeit die zweite lästige Symptom nach Schmerzen.
Die Forschung wurde durch frühere Studien angeregt, die Kommentare der Patienten enthielten, dass Müdigkeit ein Symptom war, das in Behandlungsstudien bewertet werden sollte. Gegenwärtig hängt der Erfolg einer Therapie hauptsächlich davon ab, wie gut sie die Schmerzen bei Fibromyalgie lindert, wobei die Ermüdung kaum oder gar nicht berücksichtigt wird. Darüber hinaus gibt es kein klares Verständnis für die Schlüsselmerkmale der Ermüdung, die gemessen werden müssen.
Während der Interviews wurden den Patienten offene Fragen gestellt, wie zum Beispiel: “Erzählen Sie mir von Ihren Erfahrungen mit Fibromyalgie.” Ziel der Interviews war es daher nicht, gezielt nach Müdigkeit zu fragen, denn die Forscher wollten hören, was die Patienten hatten. Sprechen Sie spontan über Ihre Symptome.
Die durchschnittliche Dauer der Symptome einer Fibromyalgie betrug bei den 40 Teilnehmern 6,6 Jahre, ihr Durchschnittsalter betrug 49 Jahre, und 70% von ihnen waren Frauen. Bei der Frage nach ihren Erfahrungen mit Fibromyalgie berichteten sie über die folgenden Symptome ohne Anzeichen:
- Schmerzen (78%)
- Müdigkeit (43%)
- Schlafstörungen (18%)
- Mobilitätsprobleme (10%)
Denken Sie daran, dass dies auf Ihren unerwünschten Kommentaren zu Fibromyalgie beruhte. Bei der Bewertung der drei Hauptsymptome war die Reihenfolge im Wesentlichen dieselbe, die Prozentsätze waren jedoch viel höher.
„Fatigue Fibromyalgie als ein überwältigendes Gefühl von Müdigkeit beschrieben, die nicht durch Schlaf entlastet wird noch Ruhe und ist oft nicht proportional zu der ausgeübten Kraft (dh Teilnehmer beschrieben Müdigkeit nach sehr wenig zu tun)“ bestätigen die Autoren. Die Teilnehmer machten auch deutlich, dass ihre Müdigkeit im Zusammenhang mit Fibromyalgie nicht nur “normale Müdigkeit” war.
In den folgenden acht Kategorien, auf die sich viele von Ihnen möglicherweise beziehen können, haben die Teilnehmer ihre Müdigkeit ausführlicher beschrieben:
- Überwältigendes Müdigkeitsgefühl (43%): Manchmal bis zu dem Punkt, dass sie nichts mehr tun konnten.
- Keine Erleichterung durch Ruhe oder Schlaf (38%): Die Müdigkeit hielt an, auch nachdem der Patient einen guten Schlaf empfunden hatte
- Es ist nicht proportional zum Aufwand (63%): Es ist nicht viel erforderlich, um dieses Symptom auszulösen
- Empfindung von Schwäche oder Schwere (28%): Der Körper fühlt sich schwer, schwach oder ohne Kraft
- Es ist schwer, sich motiviert zu fühlen (83%): Es ist sehr anstrengend, Dinge zu erledigen, wie einfach aufzustehen und morgens loszulegen
- Schwierigkeit, die Dinge zu tun, die sie tun wollen (60%): Müdigkeit / Erschöpfung erschwert es, das zu tun, was sie tun wollen oder müssen.
- Langsameres Arbeiten (38%): Das Arbeiten nimmt mehr Zeit in Anspruch, und einige Patienten hatten das Gefühl, dass es mit dem Gefühl von Schwere oder Schwäche zusammenhängt
- Konzentrations-, Denk- oder Erinnerungsschwierigkeiten (68%): Müdigkeit / Erschöpfung beeinträchtigt die Konzentrationsfähigkeit, Erinnerungsschwierigkeiten, Schwierigkeiten beim klaren Denken oder Konzentrieren
“Männer und Frauen haben die Erfahrung von Müdigkeit und ihre Auswirkungen auf sehr ähnliche Weise beschrieben”, schreiben die Autoren. Zusammenfassend lässt sich sagen, dass bei Fibromyalgie “Müdigkeit das zweitwichtigste Symptom ist, das erhebliche Auswirkungen auf das Leben der Patienten hat”. Da es so viele Ermüdungssymptome im Zusammenhang mit Fibromyalgie gibt, wird dies eine Herausforderung sein. Bewerten Sie die Auswirkungen dieses Symptoms in Behandlungsversuchen. Die Ergebnisse dieser Studie könnten jedoch zu besseren Instrumenten führen, um die “Müdigkeit” bei Patienten mit Fibromyalgie genau zu messen.
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