Mit Fibromyalgie kann ich nicht vorausplanen … aber ich kann auch nicht spontan sein

Die meisten Leute, die mich kennen, wissen, dass ich Spontanität nicht besonders gut mache. Nicht, weil es nicht ganz cool und interessant ist, sondern weil alles zu tun oder irgendwohin zu gehen, viel Zeit und Organisation erfordert.

Wenn Sie mir zum Beispiel morgens eine SMS geschickt haben und mich gefragt haben, ob ich Sie zum Mittagessen treffen möchte (ich kann nicht rechtzeitig aufstehen und pünktlich zum Frühstück gehen), müsste ich mir überlegen, wie lange es dauern würde, bis ich aufstehe Morgenmedizin, berechnen Sie die Zeit zum Duschen und Ausruhen (dh ich muss mich nach dem Baden und Anziehen ausruhen, sowie viele andere Intervalle während des Tages). Dann muss ich sehen, ob ich dazu in der Lage bin, und finde heraus, ob es nahe genug ist, um bei Bedarf kurzfristig nach Hause zu kommen.

Andere Dinge, über die ich nachdenken muss, sind: Bringen Sie Medikamente und eine Flasche Wasser mit, wenn es nah genug ist, um die Reise nicht zu nutzen, wenn öffentliche Verkehrsmittel zu dem Ort führen, an dem wir uns treffen, wenn ich meinen Stock oder meinen Spaziergänger brauche und wenn ich brauche Jemand kommt mit mir Dann müsste ich wissen, wie lange ich ausgehen würde, wenn es Plätze gibt, nicht zu viele Stufen, Zugang zu Aufzügen und Fahrtreppen, zu viel Lärm oder zu viele blinkende oder helle Lichter, wenn die Böden flach oder uneben sind und ich etwas zu tun habe, wenn ich zurückkomme ( denn sicherlich werde ich zu wund und müde sein, um Geschirr zu kochen oder zu waschen oder etwas anderes zu tun, als ins Bett zu gehen. So schlecht wie es scheint,

Eine ganze Liste, richtig? So sehr, dass ich denke, dass er zum Mittagessen gegangen und sein Abendessen gekocht haben wird, bevor er sich entschieden hat, ob er die ungeplante Einladung annehmen möchte, die er mir freundlicherweise entgegenbrachte. Bitte denken Sie nicht, dass ich nicht zutiefst dankbar bin, dass Sie sich um mich kümmern und Zeit mit mir verbringen wollen, das ist überhaupt nicht der Fall. Ich würde gerne springen und weglaufen, sobald ich Ihren Anruf oder Ihre Nachricht erhalte. Mein Körper wird es nicht zulassen.

Nach dem, was Sie soeben gelesen haben, wird Ihnen die Annahme verweigert, dass es besser für mich ist, Meetings, Abfahrten und Besuche im Voraus zu planen usw. Falsch! Fibromyalgie ist eine unbequeme Kreatur, die niemals glücklich mit mir ist, egal was ich tue. Wenn ich eine Person wäre, müsste ich mich scheiden lassen, weil mein Leben so voller Schmerz und Schwierigkeiten ist und im Allgemeinen grausam und unvernünftig ist! Leider weigert er sich, seine beeindruckendsten Einrichtungen zu verlassen, und deshalb bin ich dabei geblieben, wie ein Eindringling, der niemals geht.

Also, dies ist die Frage der Planung der Fibromyalgie im Voraus: Ich weiß nie, wie ich mich von Minute zu Minute fühle. Wenn wir also das geplante Mittagessen für Wochen vorher planen, besteht eine gute Chance, dass Sie absagen müssen in dir jederzeit, bis es ankommt. Es tut mir leid, ich weiß, dass Sie mich wirklich sehen wollen, weil ich ziemlich cool und alles bin, aber ob ich es mag oder nicht, das Fibro ist immer im Griff. Und er ist herrisch!

Um zu versuchen, unser Meeting geplant zu halten, muss ich immer noch die große Liste möglicher Schwierigkeiten in Betracht ziehen und entscheiden, ob ich alles schaffen kann. Ich verspreche Ihnen, dass ich mich nicht entschuldige oder versuche, Sie zu meiden, und ich bedauere, dass meine chronischen Schmerzen und Müdigkeit mich zu einer so unterhaltsamen Person in Ihrem Leben machen. Ich will nicht sein Vor allem schätze ich, dass Sie trotz allem versuchen wollen, in meiner Nähe zu sein, denn im Laufe der Jahre haben mich viele Leute verlassen und das tut weh. Wenn ich es sehe oder sogar versuche, es zu sehen, bedeutet das, dass Sie für mich wichtig sind. Oder dass du mir Geld schuldest. Nur ein Scherz, ich habe keine, weil mein Fibro mich nicht mehr arbeiten lässt.

Also da hast du es. Es kann nicht spontan sein und es kann nicht im Voraus geplant werden! Zumindest scheint mir das alles schwer fassbar und geheimnisvoll zu sein, richtig?

Nein OK, dann lüge ich. Liebe senden

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