Mijn naam is Fibromyalgie en ik ben een onzichtbare ziekte.

Mijn naam is Fibromyalgie en ik ben een onzichtbare ziekte.
Ik ben met u voor de rest van je leven.
Anderen zien over je me niet.
Maar je lichaam voelt mij.
Ik kan je aanvallen wanneer en hoe ik wil.
Ik kan ook zorgen voor ernstige pijn te nemen.
En als ik in een goed humeur, kan ik u verzekeren dat u pijn overal.
Vergeet niet – als je je energie deed en hadden allemaal leuk? Nou, ik nam die kracht van je af
en geven u terug vermoeidheid.
Je probeert nu altijd om plezier te hebben, maar ik zal je uit je slaap te krijgen en geven u een hoofdpijn voor terug!
Ik kan u verzekeren dat trillen binnen en je hebt koud of warm als iedereen normaal voelt.
Oh ja, ik kan je angstig en depressief maken.
Je hoeft niet te vragen, maar ik heb u uitverkoren om verschillende redenen.
Voor dit virus je ooit hebt gehad en je bent nooit meer teruggevonden, of een auto-ongeluk of kan – of het nu is door de jaren van verwaarlozing na een trauma! Hoe dan ook, ik ben hier en ik blijf met je mee!
Ik hoor dat je ging naar een arts om van me af. Haha ik rollen op de grond van het lachen haha, proberen!
Je moet naar je eindelijk te ontdoen van mij eens en voor veel artsen.
Je gebarricadeerd met pillen, slaappillen, energie-pillen.
U krijgt massages en verbrijzeld om angstig of depressief.
Zij zullen u vertellen als je je pillen goed, maar schoon en je oefeningen, zal ik vertrekken.
Maar het ergste is dat je niet serieus wordt genomen wanneer u schreeuwen naar de dokter je hebt hoe meer normaal leven.
Je familie, vrienden en collega’s? Heeft u alle luisteren totdat ze moe zijn van hoe laat ik u last en ik ben een rotte ziekte.
Ze doen niet horen zeggen: “Het was tien jaar geleden? Er zijn tien dagen! ”
Bovendien hebben sommige praten achter je rug terwijl je langzaam het gevoel dat je je zelfrespect te verliezen.
Je probeert nog steeds hoe dan ook, tegen beter weten in, om uit te leggen dat je het begrijpt.
Dit is vooral moeilijk als je een “normaal persoon” in gesprek en opeens heb je niet weet wat je weer betekenen.

Ik had gehoopt dat dit geheim kon blijven, maar je zult nu ook post-it – zelfs als de
beëindiging volgt:

Wie je ook een echte begrip en steun om te gaan met mij zijn de mensen die fibromyalgie hebben.
Accepteer de minderheid die van me houdt en die steunen andere mensen.

Oosten – het waar dat u verantwoordelijk moet zijn, omdat je moe bent omdat je in pijn, niet alles is zoals u dat wenst?
Is – het niet zo dat als je een ziekte hebt dan is er nog een misverstand, voor wat je doet, of niet doen?
Er is geen verspilling van energie, zodat u altijd af te vragen, welke andere think – u?

Is – wat weinig energie je nog hebt,
is het beter om het te besteden aan leuke dingen, en
plezier hebben in je leven, in plaats van ergernissen.
Nu hoef je niet erg moe van wat begrip vragen te krijgen?
terwijl je moe bent zo vroeg?

Go – je naar buiten dat ik het mis?
Als je ziet dat iemand probeert om iets van zijn leven te maken.
zie je me verstopt in een andere wandeling door de pijn?
Of je ziet dat iemand die zich met trots,
omdat zij achter de in de tijd door de dag door te komen.
Je ziet de pijn op mijn gezicht?
Nee, zie je een glimlach,
want ik ben blij met alles wat ik kan.

Ik blijf rechtop te lopen,
ik houd glimlachend
en weet je waarom?
omdat ik stopte aan de behoefte te begrijpen.

Ik bedoel er niets als ik ben erg moe,
ik kan niet bepaalde dingen op te doen, en als ik het goed doen, ik heb pijn voor dagen.
en begrijpen dat niet omdat jullie mij hebben zien lopen gisteren?

Ik hou niet neuken, want ik had een goede dag … … en vandaag is het minder.

Net als ik lui, want ik zal slapen voor een uur?
Kan me niet schelen,
Ben meer moe dan jij.
Vindt u het vreemd dat ik niet naar je werk of school?
Kan me niet schelen dat
ik zou willen wissen.

Mijn hoofd zit vol van al deze vragen hoe anderen van me denken.
En lieve mensen, ik wilde je geven.
opkomen voor jezelf –  goed,  
want het is al niet makkelijk om te leven met Fibro!

144 thoughts on “Mijn naam is Fibromyalgie en ik ben een onzichtbare ziekte.

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