MI MADRE TIENE FIBROMIALGIA. LEER ESTO ME HIZO LLORAR POR ELLA.

El dolor crónico es cada vez más desenfrenado hoy en día. Leyendo las siguientes líneas rompió mi corazón y lágrimas corrió por mi cara. Todos los sufrimientos que mi madre sufrió y el dolor que soportó empezaron a destellar ante mis ojos. Espero que leer estas líneas le daría una idea de cómo es la vida de las personas con dolor crónico.

“Sin embargo, el dolor crónico y las enfermedades crónicas son a menudo invisibles. En muchos casos no hay yesos, sarpullidos visibles o secreción nasal involucrados. Los que sufren de dolor crónico a menudo parecen “normales”, quizás un poco más frágiles o tristes que el promedio. Sufrí de dolores de cabeza crónicos durante cuatro años y medio y de dolor crónico de cadera durante dos años y medio.

A menudo parecía deprimido, desinteresado y enojado, cuando yo estaba simplemente en el dolor. Había muchos días que no podía salir de la cama. Después de una conversación se hizo difícil a veces.

Perdí un trabajo debido a mi dolor. Cancelé planes e ignoré a amigos. Me sentí incomprendido y solo. Yo estaba sufriendo. Sé que la respuesta estaba ahí y finalmente me curé a mí mismo.

Sin embargo, en el momento en que quería gritar desde la parte superior de mis pulmones todas las cosas que todos los enfermos de dolor crónico quieren que sepa:

  1. Sólo porque no puedes verlo, no significa que no estoy en el dolor.
  1. No es todo en mi cabeza.
  1. No es sólo la gripe. No desaparecerá en una semana.
  1. Por favor, no digas nunca, “Simplemente no pienses en ello.” Estar en dolor constante esto es imposible.
  1. Los abrazos pueden hacer magia. Así que son buenos mensajes. Necesito saber que estás aquí para mí.
  1. Gracias por compartir la “cura mágica” que has leído en línea. Confía en mí, he oído hablar de él, y si era relevante, lo he probado.
  1. Estoy tratando muy duro de vivir una vida normal.
  1. Intento mi maldito mejor no cancelar planes y nunca cancelaría planes, si tuviera una opción.
  1. No puedo salir de ella.
  1. Algunos días son mejores, algunos días son peores. Algunos días incluso puedo sentirme cerca de lo normal, otros días no puedo ni siquiera salir de la cama.
  1. Me preocupo por ti. Quiero saber sobre tu vida y sueños. Quiero que seas feliz y saludable.
  1. Mi dolor crónico es diferente del dolor crónico de otras personas. Todas las enfermedades y los síntomas del dolor son únicos. Nuestras experiencias pueden diferir, pero todos estamos en dolor y podemos relacionarnos unos con otros.
  1. Por favor, no trate de convencerme de beber y de “vivir un poco”. Todo lo que quiero es vivir un poco, de hecho, vivir mucho. Una bebida, sin embargo, es la última cosa en mi mente.
  1. Si me veo todos deprimidos o aburridos, significa que estoy realmente en un dolor tremendo y haciendo todo lo posible para parecer feliz y normal.
  1. No puedo explicar cómo se siente el dolor crónico. Sin embargo, no puedo decir, “sabrás una vez que lo tengas” porque nunca querría que alguien sintiera tanto sufrimiento.
  1. Necesito mucho dormir. Pero dormir puede ser difícil con tanto dolor ya menudo todavía me deja agotado.
  1. Sólo porque tengo dolor crónico no significa que yo sepa manejarlo o vivir con él.
  1. A veces me siento como si estuviera en una prisión, viviendo la vida de alguien más.
  1. Todavía tengo intereses, pasiones, metas y sueños.
  1. No quiero que te olvides de mí. No quiero que te rindas conmigo.

 

  1. No he renunciado a la curación todavía. En el fondo sé que hay (o habrá) una respuesta por ahí.”

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