Uno de los miembros de nuestro grupo cerrado compartió esta historia con nosotros y nos pidió que la publiquemos para difundir el conocimiento de nuestra enfermedad. Esto es lo que debe saber sobre las personas con fibromialgia.
1. Mi dolor
Mi dolor no es tu dolor No es causado por la inflamación. Tomar su medicamento para la artritis no me ayudará. No puedo aliviar mi dolor o sacudirlo. Ni siquiera es un dolor que permanece. Hoy está en el hombro, pero mañana puede estar parado o puede haber desaparecido. Se cree que mi dolor es causado por señales incorrectas enviadas al cerebro, posiblemente debido a trastornos del sueño. No se entiende bien, pero es real.
2. Mi fatiga
Solo estoy cansado. A menudo estoy en un serio estado de agotamiento. Es posible que desee participar en actividades físicas, pero no puedo. Por favor, no lo tomes como algo personal. Sí, ayer me viste de compras en el centro comercial, pero hoy no puedo ayudarte con el trabajo de jardinería, no es porque no quiera. Lo más probable es que esté pagando el precio por enfatizar los músculos más allá de su capacidad.
3. Mi olvido
Quienes lo sufren lo llaman Fibronzebla. Puede que no recuerdes su nombre, pero debo recordarlo. Puede que no recuerde lo que prometí hacer por usted, aunque me lo dijo hace unos segundos. Mi problema no tiene nada que ver con mi edad, pero puede estar relacionado con la falta de sueño. No tengo una memoria selectiva. En algunos días, simplemente no tengo ninguna memoria a corto plazo.
4. Mi torpeza
Si de puntillas o te limpio cinco veces en una multitud, no te dirijo deliberadamente. No tengo control muscular para eso. Si estás detrás de mí en las escaleras, sé paciente. En estos días, tomo la vida y las escaleras paso a paso.
5. Mis sensibilidades
¡No puedo soportarlo! “Esto” podría ser cualquier cantidad de cosas: luz solar brillante, ruidos fuertes o agudos, olores. FMS ha sido llamado “todo lo que agrava el desastre”. Así que no me hagas abrir las cortinas ni escuchar a tu hijo gritar. Realmente no puedo soportarlo.
6. Mi intolerancia
No puedo soportar el calor tampoco. O humedad Si soy hombre, sudo … profusamente. Si soy una dama, sudo. Ambos son igualmente vergonzosos, así que no me siento obligado a señalar esta deficiencia en mí. Lo sé. Y no se sorprenda si agita incontrolablemente cuando hace frío. Yo tampoco tolera el frío. Mi termostato interno está roto y nadie sabe cómo solucionarlo.
7. Mi depresión
Sí, hay días en los que preferiría quedarme en la cama o en casa o morir. El dolor severo e implacable puede causar depresión. Su sincera preocupación y comprensión puede sacarme del borde. Tus comentarios sarcásticos pueden llevarme al límite.
8. Mi estrés
Mi cuerpo no maneja bien el estrés. Si tengo que dejar mi trabajo, trabajar a tiempo parcial o administrar las responsabilidades de mi hogar, no soy flojo. Las tensiones diarias empeoran mis síntomas y pueden incapacitarme por completo.
9. Mi peso
Puede ser gordo o puedo ser flaco. De cualquier manera, no es por elección. Mi cuerpo no es tu cuerpo. Mi centro cerebral está roto, y nadie puede decirme cómo solucionarlo.
10. Mi buenos días
Si me ves sonriendo y funcionando normalmente, no asumas que soy así. Sufro de dolor y fatiga enfermedad crónica que no tiene cura. Puedo tener mis buenos días, semanas o incluso meses. De hecho, los buenos días son los que me ayudan a seguir adelante.
11. Mi singularidad
Incluso aquellos que sufren de FMS no son lo mismo. Eso significa que no tienes todos los problemas mencionados anteriormente. Tengo dolor arriba y debajo de la cintura y en ambos lados de mi cuerpo que ha durado mucho tiempo. Puede tener migrañas o dolor de cadera o dolor en el hombro o la rodilla, pero no tienen exactamente el mismo dolor que cualquier otra persona.
12. Mi discapacidad
Mi discapacidad es invisible pero aún existe. Es lo mismo que no ves el aire, pero está presente, lo mismo ocurre con la fibromialgia, existe, es real. No todo está en nuestras cabezas, si fue entonces, ¿por qué no me pongo algo en la cabeza que es más reconocible como cáncer, etc. Colocamos esta calcomanía de discapacidad de Fibromialgia en sus automóviles y difundimos la conciencia fibro.
Fibromialgia, olvidé las palabras que iba a decir, olvidé lo que iba a hacer, olvidé a dónde iba … Para aquellos que no entienden la fibromialgia
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