Les effets secondaires de la douleur chronique dont personne ne parle

Il est normal de parler des effets secondaires que tout le monde peut voir, mais qu’en est-il des effets secondaires qui ne sont pas vus? Ceux que personne n’ose demander parce qu’ils ont peur de la réponse (et souhaitent ensuite ne pas avoir posé la question).

La douleur chronique est une maladie invisible qui entraîne des effets secondaires cachés.

Tout d’abord, et parfois de toute évidence, le gain et la perte de poids. Je n’ai pas rencontré ni parlé à une personne atteinte de maladie chronique qui est heureuse de son poids. Regardons les choses en face, peu de gens sont vraiment satisfaits de leur poids, mais le fait d’avoir tous ces médicaments juste pour pouvoir survivre un jour a un impact négatif sur votre poids. Que ce soit des stéroïdes, des analgésiques, voire des opioïdes, une utilisation prolongée peut avoir un effet important. Mais à cause de notre maladie, l’exercice peut à peine exister, car, avouons-le, si vous pouvez vous lever du lit un matin, vous venez de gravir l’Everest. Assez dit. Mais c’est un combat constant contre les médicaments et l’exercice, et ce n’est certainement pas un combat que nous choisissons de mener.

Ambiance. Les sautes d’humeur sont une donnée, pour tout être humain, c’est ce que nous faisons en tant qu’être humain, mais nous ajoutons une douleur et des médicaments graves et débilitants, et c’est comme une bombe à retardement. Tout le monde a des journées de congé, mais lorsque vous avez très mal, la moindre chose peut vous faire exploser, et sans raison apparente. Certains médicaments que j’ai pris par le passé m’ont fait rage de temps en temps, et le fait de ne pas avoir le contrôle de votre humeur fait peur. Vous pouvez presque le voir arriver – ce commutateur à l’intérieur de vous clique et boum, regardez! Mais dans le prochain souffle, vous pouvez être si délicieusement heureux, presque délirant, que vous oubliez la mauvaise humeur, jusqu’à ce que le commutateur passe au «clic».

La patience. Étant donné que vous passez la majeure partie de votre temps à attendre des médecins, des chirurgiens et tous les autres, vous penseriez que la patience était une évidence. Non, j’ai moins de patience que jamais auparavant, mais pas dans tout ce que je fais. J’ai moins de patience pour faire le tour, être tout simplement grossier, BS et stress. Le stress étant le principal facteur de douleur dans mon corps, j’essaie de l’éviter à tout prix – ce qui en soi peut être stressant (allez comprendre!). Bien sûr, cela ne fonctionne pas toujours, et je vais m’énerver, ce qui provoque ensuite un crash massif, mais j’apprends à gérer les choses beaucoup mieux. Mais si nous avons tous eu un peu plus de patience avec quelqu’un que nous connaissons qui a une maladie, l’avantage pour cette personne est meilleur que n’importe quel cadeau.

Santé mentale. Bien sûr, c’est un effet secondaire important qui est très facilement dissimulé. N’oubliez pas que cette personne, qui était en bonne santé, a changé de vie en un instant. Ce n’est pas un processus facile, cela ne le sera jamais, vous pleurez tous les jours pour la personne que vous étiez autrefois, mais comment gérez-vous le fait que cette personne est déjà partie et probablement pour toujours? Est-il étonnant que la dépression soit un effet secondaire majeur? L’inquiétude intervient également ici, car ne pas savoir comment gérer cette «nouvelle» vie est un territoire extrêmement nouveau et terrifiant. Est-il étonnant que les gens puissent être anxieux?

Mode de vie. Ce qui était peut-être autrefois une vie insouciante où vous avez agi à votre guise a maintenant abouti à une routine soigneusement gérée et constitue un tel choc pour le système. Imaginez avoir une carrière réussie et une vie heureuse / confortable (aussi confortable que possible!) Et tout à coup, vous tombez malade, ne pouvant plus travailler ni subvenir aux besoins de votre famille, sans parler de vous-même. Incapable de fonctionner sans aide, ou de faire les choses que vous aviez l’habitude de faire. Tout cela enlevé en un clin d’œil. Votre style de vie a été remplacé par quelque chose que vous avez du mal à contrôler, et encore moins vous y habituer.

Peau / cheveux, etc. Maintenant, bien sûr, vous pouvez voir la peau (pas toute la peau bien sûr) et les cheveux, les ongles, etc., mais grâce aux médicaments, à la fatigue et à d’autres facteurs, notre peau et nos cheveux peuvent également être battus. Ma peau est passée de relativement normale à extrêmement sensible. Si quelque chose frôle même ma peau, j’ai une réaction. Mon visage est maintenant plein de taches, qui viennent pour quelques semaines de vacances, puis disparaissent, puis reviennent comme jamais auparavant. Les réactions aux médicaments peuvent causer de terribles problèmes de peau. Les cheveux peuvent également tomber plus rapidement qu’ils ne poussent.

Intimité. Tout ne concerne pas le sexe si vous êtes en couple. Il y a bien sûr beaucoup d’autres façons d’être affectueux et affectueux avec votre partenaire. Mais que se passe-t-il si avoir des relations sexuelles est douloureux et vous blesse? Les personnes souffrant de douleur / maladie chronique ne devraient-elles plus jamais avoir de relations sexuelles? Je ne pense pas ce n’est pas parce que nous avons mal que nous n’avons pas les mêmes besoins que toute autre personne. Il s’agit d’adapter et de trouver ce qui fonctionne et ce qui n’aggrave pas le niveau de douleur. Amusez-vous à expérimenter!

La finance. Je suis fauché, comme tout le temps. Les médicaments sans fin, les lotions et les potions, les traitements, les déplacements aller-retour, tout se résume. Et si vous ne pouvez pas travailler, c’est encore plus dur. C’est un cadeau qui soulagera la pression. C’est très difficile pour moi d’admettre que j’ai besoin d’aide financièrement. Je n’aime pas demander de l’aide ou de l’argent à qui que ce soit, mais c’est une chose sur laquelle je dois travailler – ma propre fierté. S’inquiéter de l’argent ne fait qu’ajouter au stress, et le stress aggrave les choses.

Il y a tellement d’effets secondaires – des effets secondaires qui semblent tabous. Mais pourquoi? Aucun des points ci-dessus n’a besoin d’être caché ou de ne pas en parler! Pour ceux qui ont un être cher atteint d’une maladie chronique, il suffit d’une oreille attentive et attentive pour pouvoir être présent pour une personne et d’avoir une certaine compréhension de ce à quoi elle doit faire face.

Regardez au-delà de ce que vous pouvez voir et recherchez ce que vous ne pouvez pas.

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