Nous savons qu’en plus de souffrir de la douleur, de la fatigue et du brouillard de la fibromyalgie, de nombreux patients souffrent également de la stigmatisation associée à une maladie chronique. Nous avons demandé à nos lecteurs certains des exemples les plus odieux de ce que les gens leur disent. Soyez averti, certaines de ces choses sont déchirantes. Mais il est important que nous mettions cela en lumière. Nous avons eu une telle réponse écrasante que nous avons décidé d’en partager certaines.
Une note de contenu rapide / un avertissement de déclenchement: certaines de ces choses sont vraiment odieuses. Nous les affichons dans l’espoir qu’ils puissent être partagés avec des personnes susceptibles de dire certaines de ces choses et d’y réfléchir à deux fois, mais ils pourraient aussi être traumatisants pour les personnes qui entendent de telles choses dans leur vie quotidienne.
1. Les personnes atteintes de fibromyalgie sont simplement paresseuses
C’est une tuerie, et la grande majorité de nos répondants ont mentionné qu’on leur avait dit qu’ils ne voulaient rien faire.
Quelques réponses:
Que je suis paresseux, je joue avec mon fibro et tout est dans votre tête et vous pouvez faire plus que vous ne le pensez!
Paresseux, tout le monde a mal. Tout le monde souffre d’arthrite. Vous devez faire de l’exercice, vous devez marcher. Blah bla bla.
Mon fils de 17 ans m’a brisé le cœur, il a dit que je n’étais pas malade, j’étais paresseux. Bien qu’il m’entende pleurer de douleur, j’ai jeté deux murs. J’ai 53 ans et je dois utiliser un déambulateur.
Ils m’ont dit que j’étais juste paresseux de me lever et de bouger. Je me sentirais mieux ou tout ce que je pensais si je trouvais quelque chose pour garder mon esprit occupé. Je serais bien.
“Les services de protection de l’enfance ont emmené mes cinq enfants. Sur les dossiers de la cour, le juge a rejeté ma décision, celle de mes médecins et de mon témoin expert et a déclaré que ce n’était pas une maladie et que j’étais juste paresseux.
Paresseux, un gaspillage d’espace, rien de mal avec moi, alors pourquoi voudrais-je laisser le gouvernement se débarrasser de son handicap?
Mon ex-mari m’a dit que j’étais un fainéant que je ne cotisais pas assez financièrement ou à la maison après beaucoup d’abus j’ai découvert qu’il trichait et il est parti.
Comme vous pouvez le voir, c’est très courant et blessant. En fait, les gens ne traitent que ce type de haine. Par exemple, cette personne s’est tellement travaillée qu’elle a fini en majuscule:
vous, les personnes faibles, cherchez simplement une solution rapide, un remède simple, il n’y en a pas une, très au-dessus de vous et prenez soin de vous, lol aucun médicament ne va aider quelqu’un avec des fibromes pour vous aider. Pourquoi ne pas publier la vérité comme ça? Arrêtez de vendre des déchets. Vous êtes trompeur.Je n’ai pas suivi votre page déchirante et je tiendrais compte de ces postes comme une erreur. PASSEZ UNE BONNE JOURNÉE. (sic)
Nous avons passé une bonne journée et avons également interdit cette personne. Mais le commentaire de cette personne touche à notre prochain type de commentaire haineux.
2. La fibromyalgie n’existe pas
Un classique que tout le monde a entendu et qui est si difficile parce que nous aurions peut-être dû en faire la déclaration haineuse numéro un parce que c’est la base de toute stigmatisation contre les personnes atteintes de fibromyalgie.
J’ai vu un médecin pour un problème de santé différent. Une fois qu’il a vu la fibromyalgie inscrite sur mon dossier médical, il a fait un point pour me dire: «Je ne crois pas que la fibromyalgie soit une chose réelle. Les médecins qui font ces jours devraient faire examiner leur licence. Cela n’existe tout simplement pas. Quels médicaments prenez-vous pour cela?
C’est une terrible maladie. Je mets mon brave visage 24/7. Personne ne peut voir notre douleur et notre souffrance, alors ils se demandent si c’est réel ou si nous cherchons juste à attirer l’attention. Il est beaucoup plus facile de prétendre que je vais bien, que d’expliquer pourquoi je ne le suis pas.
3. Tout est dans votre tête
Ceci est étroitement lié à la “n’existe pas”, mais c’est une manière beaucoup plus explicite de gazéifier les personnes atteintes de fibromes.
Que je suis paresseux, je joue avec mon fibro et tout est dans votre tête et vous pouvez faire plus que vous ne le pensez! Et les gens ont dit que je ne voulais pas l’entendre et nous avons tous des problèmes. Ils devraient marcher dans la peau pendant une journée !!
Ils diront des choses comme «tu n’es pas malade c’est tout dans ta tête» ou «ça ne semble pas te faire souffrir» fait mal au cœur avec des larmes que personne ne te comprendra jamais.
Ils m’ont dit que j’étais juste paresseux que je me lève et que je bougeais, je me sentirais mieux ou tout ce que je pensais si je trouvais quelque chose pour garder mon esprit occupé.
Comme vous pouvez le constater, les gens sont cruels et ils aiment utiliser plus d’une catégorie de commentaires haineux.
4. Vous n’avez pas l’air malade
La fibromyalgie étant une maladie invisible, les personnes qui en sont atteintes ne semblent pas souvent malades, peu importe ce que cela signifie. C’est aussi l’une des choses les plus frustrantes qu’un guerrier fibro puisse lui offrir.
Vous n’avez pas l’air malade. Regardez-vous, vous êtes un coureur. Pas question que ce soit si grave. Suck it up …. J’ai perdu deux emplois bien rémunérés à cause de ma fausse maladie.
Je suis allé à un concert dans un stade pour me faire dire que je n’ai pas l’air handicapé et que la fibromyalgie n’est que le fruit de mon imagination pour arnaquer les contribuables. Inutile de dire que nous avons quitté le concert mais jamais même reçu une reconnaissance de leur part.
Cette femme est venue à la voiture et a dit que vous ne pouvez pas vous garer là-bas?En lui montrant mon disque d’invalidité, elle a dit qu’aucun de vous ne semble handicapé et que c’était dégoûtant d’avoir pu avoir une voiture ???
5. Dieu vous punit pour vos péchés
Ces personnes portent la responsabilité des victimes à un niveau supérieur en faisant de la maladie un jugement sur le caractère moral d’une personne. C’est honteux.
Mon oncle, qui est prédicateur, m’a dit que j’étais puni par Dieu pour toutes les choses sauvages que j’ai faites et que ma famille se demande pourquoi je ne crois pas.
La chose la plus rude qu’on m’a dite, c’est que DIEU me punit pour mes péchés.Je connais beaucoup de bons chrétiens qui sont morts du cancer … Je ne pense pas qu’ils aient été punis non plus. Comment osent-ils me le dire?
6. Vous essayez juste de vous droguer
C’est aussi un triste effet secondaire de la crise des opioïdes aux États-Unis. Nous supposons que toute personne qui souffre ne fait qu’essayer d’obtenir des médicaments.
Je suis paresseuse, bonne à rien, je ne ferai rien avec ma vie, je dois faire plus, je suis une pileuse (j’ai du mal à prendre des médicaments à moins que je n’en aie aussi) et mon préféré est de faire semblant!
Je ne suis pas sûr, mais aujourd’hui, je me suis senti comme un toxicomane avec Tylenol. J’ai 54 ans quand arrêtes-tu de te défendre?Ça m’a fait pleurer.
Je travaille avec ma mère et je vivais une journée douloureuse.Vers l’heure du déjeuner, je l’avais enfin eu et je ne pouvais retenir mes larmes. Je pleurais et pleurais pendant 10 minutes en me disant de le sucer et de retourner au travail. Je lui ai dit que je devais rentrer chez moi et prendre mes médicaments auxquels elle a dit: «Je pense que tu es juste accro à tes médicaments.
On m’a appelé un toxicomane à un moment donné parce que je prenais tellement de médicaments.J’ai senti que j’aurais aussi bien pu être à la hauteur de la manière dont les gens me regardaient. “
J’ai demandé à une réceptionniste de regarder mon dossier et de compter mes médicaments en me disant qu’il me resterait encore beaucoup, ne m’accueillirait jamais, et j’ai finalement dit à mon docteur après des mois qu’il était tellement contrarié et m’a dit de lui dire les choses tout de suite, elle n’a pas le droit de le faire. Il la trie et le pharmacien qui commente mes médicaments et combien je prends, sans connaître mes nombreux problèmes médicaux.
7. Vous devez juste faire de l’exercice et perdre du poids
Ceci est similaire au “Vous êtes paresseux” et “tout est dans votre tête” avec l’avantage supplémentaire de la prise de poids. C’est méprisable. Voici ce que nos lecteurs ont partagé:
J’ai dû faire face à des docteurs non éduqués qui étaient insensibles cependant, en disant des choses comme: «Si tu perdais du poids et sortais et que tu faisais de l’exercice, ça irait et cette condition n’est pas vraiment une condition!
Faites de l’exercice et perdez du poids et vous vous sentirez mieux. Ou vous semblez heureux d’avoir ce diagnostic, vous cherchez simplement des excuses.
“Eh bien peut-être que si tu as perdu du poids et que tu as fait de l’exercice, tu te sentirais mieux… MERCI SIS… je t’aime aussi… peut-être si elle savait que la majorité des plus de 20 pilules
Oeil roulant en me disant ‘oh je ne crois pas à toute cette merde! Si vous ne faites que de l’exercice et un régime, vous commencerez à vous sentir mieux. Perdez du poids et vous vous sentirez mieux. Je souffrirais aussi si je venais de passer toute la journée.
Perdez du poids, vous êtes trop gros, c’est pourquoi vous souffrez, vous portez trop de poids sur votre corps. “Vous devez vous déplacer et faire de l’exercice.” On m’a dit ça à plusieurs reprises.
Un membre de la famille m’a dit de simplement le sucer. Vous n’avez pas besoin de votre Lyrica. Tu n’as pas l’air malade tu as juste un peu de poids …… Tu ne sors pas assez … C’est tout dans ta tête ……
8. Vous voulez juste l’attention
Les gens adorent sortir leurs diplômes de psychiatrie pour celui-ci. Le syndrome de Munchausen est une chose réelle, mais la fibromyalgie l’est aussi. Les gens sont tellement impolis.
“Attention à la recherche”
“C’est dans ta tête”
“Ça ne peut pas être si mal”
“Arrête d’être paresseux”
“Tu dois sortir et faire plus d’exercice”
“Je l’ai fait avec ça et c’est pire
” ne pas mettre?
“Tu es toujours malade”Était à l’hôpital avec les pires flambées de douleur, eu tellement de tests et ils sont tous revenus normaux! … alors le dr a dit à mon père est-ce que ta fille aime être à l’hôpital ?? … a pensé que le rideau bleu autour de mon lit était insonoriser.
Vous voulez juste l’attention. Il n’y a rien de mal avec toi. Vous êtes un hypocondriaque. Vous avez juste besoin de faire de l’exercice et de perdre du poids. Ce ne sont que quelques-unes des choses que j’entends!
9. C’est tout ce dont vous parlez
C’est un gros Les gens ont peur de parler parce qu’ils rencontrent des problèmes de vue ou pire. Voici un conseil: Si vous ne voulez pas savoir ce que fait quelqu’un, ne le demandez pas.
Je ne peux pas parler de ce que je ressens … Je reçois toujours le même commentaire … tu dis toujours que tu ne te sens pas bien … comme si c’était quelque chose que je inventais. Chaque jour est différent et peut être difficile. autour de vous ne comprennent pas comment vous vous sentez et ne veulent pas l’entendre et ne vous inquiétez pas vraiment.
10. Oh oui, ça craint, mais ce n’est pas aussi grave que ça
Il y a des gens qui ne peuvent pas simplement faire preuve d’empathie. Ils doivent surpasser votre douleur en vous disant à quel point ils ont mal.
Un ami d’un ami a dit: «Je le fais aussi, mais ce n’est rien comparé à» et c’est là qu’ils disent que leur état est pire que le mien.
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