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L’équipe médicale de la consultation Ehlers-Danlos dirigée par le Pr Hamonet, indique que « la méconnaissance des signes du syndrome conduit (…), du fait surtout des douleurs, à d’autres orientations diagnostiques, plus connues en rhumatologie telles que spondylarthrite ankylosante, polyarthrite rhumatoïde, Gougerot-Sjögren, arthrose.
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