In die Oktober-uitgawe van Vogue het die 32-jarige popster gepraat oor haar stryd teen fibromialgie, ‘n toestand wat die senuweestelsel aantas en pyn in haar hele liggaam veroorsaak.

“Ek is baie geïrriteerd deur mense wat nie dink dat fibromialgie eg is nie,” het die sanger gesê.
“Vir my, en ek dink vir baie ander, is dit regtig ‘n sikloon van angs, depressie, post-traumatiese stresversteuring, trauma en paniekversteuring, wat alles veroorsaak dat die senuweestelsel versnel en gevolglik senuweepyn het. “Mense moet meer deernisvol wees.
Chroniese pyn is geen grap nie. En elke dag word hy wakker en weet nie hoe hy sal voel nie. “
Gaga, gebore Stefani Germanotta, het onthul dat sy in September verlede jaar aan ‘n verswakkende toestand ly, net voordat haar dokumentêr Gaga: Five Foot Two vrygestel is.
‘Ek wil help om mense te bewus te maak en mense te verbind wat dit het,’ het hy getweet.
Vir Gaga was die pyn soms so sterk dat hy nie kon optree nie. In September 2019 is sy weens ‘ernstige pyn’ in die hospitaal opgeneem en haar opkomende konserte gekanselleer.
Daar is baie misverstande oor fibromialgie, aangesien die toestand van onlangs nie algemeen aanvaar is as ‘n werklike siekte nie, het dr. Mary-Ann Fitzcharles, medeprofessor in geneeskunde aan die departement rumatologie aan die McGill-universiteit.
Baie mense het geglo dat die simptome van fibromialgie ‘in die kop’ is van mense wat aan die siekte ly, omdat hulle gereeld gesond lyk.
“Nou is dit ‘n volkome erkende staat, is daar geen twyfel nie,” het Fitzcharles gesê. ‘Ons is weg van die idee dat alle pasiënte geestesiektes het.’
Wat is fibromialgie?
Fibromialgie is ‘n toestand waar mense chroniese pyn in die spiere en senings ervaar, dikwels saam met ander simptome soos slaapprobleme, hoofpyn of buierigheid, het Fitzcharles aan Global News gesê.
Volgens die Arthritis Society of Canada, is fibromialgie ongeveer twee persent van die Kanadese, selfs al is die meerderheid van die slagoffers (80 tot 90 persent) vroue. Mense tussen die ouderdomme van 20 en 50 jaar loop ‘n groter risiko om die toestand te ontwikkel, berig die Arthritis Society.
Daar is tans geen genesing vir fibromialgie nie, maar simptome kan deur behandeling hanteer word.
Hoe voel fibromialgie?
Fibromialgie-simptome wissel, maar sluit in moegheid, onderbroke slaap, kognitiewe disfunksie, prikkelbare dermsindroom, gemoedsversteurings soos angs en depressie en migraine. Daar is ‘n algemene draad: pyn.
“Vir meer as 30 persent van mense met fibromialgie word ‘n ligte aanraking en die streel van die vel ook as ongemaklik gesien,” het Fitzcharles gesê.
Hy het ook verduidelik dat hul pynlike simptome vir mense met fibromialgie aandui dat daar ‘n verband tussen hul liggame en die senuweestelsel is.
‘Dit is asof die senuweestelsel aan is. By baie pasiënte sien ons bewyse van iets wat ons hipervigilansie noem, ”het hy gesê. “Daarom is mense te sensitief vir harde geluide, besige omgewings en intense lig.”
Wat veroorsaak fibromialgie?
Mediese kundiges is nie seker oor die presiese oorsaak van fibromialgie nie, maar die siekte gaan dikwels terug na ‘n traumatiese gebeurtenis, het Fitzcharles gesê.
“Een derde van die mense sal sê dat hulle absoluut volmaakte liggaamlike gesondheid gehad het, en dit was ‘n [belangrike] gebeurtenis,” het Fitzcharles gesê. “Dit kon ‘n ernstige virussiekte gewees het, ‘n traumatiese gebeurtenis, soos ‘n motorongeluk en ‘n gebreekte been, of ‘n baie stresvolle fisiologiese gebeurtenis wat die begin lyk.”
Vir die ander tweederdes van mense wat met fibromialgie leef, sê Fitzcharles dit lyk asof die toestand uit nêrens kom. Daar is ‘n groter kans om die toestand te ontwikkel as u gesin ‘n geskiedenis van fibromialgie het.
Waarom is dit moeilik om fibromialgie te diagnoseer?
Fibromialgie het dokters al etlike jare verbaas. Dit is moeilik om te diagnoseer omdat daar geen gestandaardiseerde toets vir die toestand is nie, en daar is ook geen toets om die diagnose te bevestig nie. Daarbenewens kan die simptome van mense gereeld en weer verander, diegene wat met fibromialgie leef, lyk dikwels gesond.
‘Die pasiënt lyk heeltemal normaal. Daar is geen swelling nie, daar is geen koors nie, daar is niks om te sien nie. So selfs familie en vriende sukkel om die proses te verstaan, ”het Fitzcharles gesê.
Omdat dit moeilik is om te identifiseer, sê hy dat pasiënte gewoonlik vyf jaar neem om ‘n korrekte diagnose te kry.
“Wat dokters moet doen [om dit te diagnoseer] is om ‘n goeie [mediese] geskiedenis vir die pasiënt te neem en die pasiënt te ondersoek om seker te maak dat een van die toestande wat kan voorkom as fibromialgie nie bestaan nie,” het hy gesê.
Dan doen die dokter ‘n minimum toets om seker te maak dat daar geen ander onderliggende siekte is nie. “Ons beveel regtig aan dat u nie buitensporige toetse op pasiënte, soos X-strale en buitensporige magnetiese resonansies, doen nie.”
Hoe word fibromialgie behandel?
Volgens Fitzcharles kan die toestand met medikasie behandel word, maar die meeste pasiënte beheer hul siekte met selfbestuurde tegnieke, wat ‘n gesonde leefstyl, voldoende slaap en die vermindering van spanning insluit.
“Die suksesvolste intervensie is waarskynlik ‘n gereelde program vir gemaklike liggaamlike aktiwiteit,” het Fitzcharles gesê. “Nie-farmakologiese bestuur is uiters belangrik.”
As ‘n pasiënt medikasie benodig, het Fitzcharles gesê dit is belangrik om medikasie te vind wat help om pyn te verlig, en nie daartoe bydra nie.
“Ongelukkig het die meeste medikasie wat ons gebruik aansienlike newe-effekte, en baie van die newe-effekte kan soortgelyk wees aan simptome van fibromialgie,” het hy gesê. ‘As ‘n pasiënt dus sê dat hy verskriklike slaapprobleme en [beduidende] pyn het, as ons ‘n middel kan kies wat slaap en pyn kan beïnvloed, is dit hoe ons gaan.
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