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Voici un texte posté sur mon compte Facebook en novembre dernier sur les manifestations glaciales de la fibromyalgie qui m’ont poussé à aller à l’abri chaud en janvier.
Samedi soir l’envie de faire de la nourriture, pas ces rôtis grillés auxquels je suis habitué, ou ces plats faits maison que je signe depuis plusieurs mois, mais un vrai repas cette fois. Se lever pendant une heure dans la cuisine est absolument impossible, j’ai l’impression que ma colonne vertébrale sort de mon dos à chaque fois. Puis, samedi, armé de courage, j’ai pris la grande décision de prendre un repas. J’ai mis du beurre dans la casserole et j’ai commencé à hacher les oignons. Je n’allais pas très loin dans ma vie, mes mains ne m’obéissaient pas, elles étaient engourdies et douloureuses, le sentiment d’avoir des poids de cinq livres dans chacune d’entre elles.
C’est ainsi que mon aventure culinaire s’est terminée samedi soir.
Dimanche soir je suis allé dîner avec mon amie Martine qui a préparé un délicieux plat du pays. Incapable de finir le morceau qu’elle m’avait servi, j’ai dû mettre les couverts après 3 minutes. Désormais le moment du repas se transforme très vite en torture, les allers-retours du plat à la bouche s’apparentent aux véritables compétitions olympiques. Chaque fois que je finis la moitié de mon assiette, je suis aussi fatigué qu’une personne revenant du Mont Cameroun, je ressens le courage et la puissance d’un athlète à table. Et les conversations? Je ne peux pas dire plus de deux phrases sans faire une pause pour recharger et parfois s’allonger pendant cinq minutes, puis reprendre la conversation où vous l’avez laissé, en bref, si je me souviens bien sûr, parce que les douleurs augmentent et froides des problèmes cognitifs aussi bien. En conséquence, je suis principalement occidental.
Les douleurs augmentent, chaque jour j’ai franchi un nouveau niveau que je ne connaissais pas la veille. Aujourd’hui, je ne peux plus m’asseoir, j’ai des échasses sur le dos, je me sens allongé sur des plaies ouvertes.
Hier soir, je suis allée aux urgences, le dos, les jambes et les bras étaient si douloureux que je ne pouvais pas me tenir en place, et tourner mon appartement comme une lionne en cage m’épuise et me stresse encore plus, je ne peux pas le supporter, couché ou couché, et je ne sais pas quoi faire de mes bras endoloris sur mon corps. Je ne l’ai jamais été si heureux d’avoir Kaba Ngondo dans ma chambre dressing, vous savez que ces types de robes traditionnelles traditionnelles du Cameroun ne mettent sur la tête, parce qu’il ya des jours que je dois me demander de porter un pantalon ou soutien-gorge, de sorte que ça n’arrivera pas. Hier, j’ai été convaincu par mon meilleur ami Joviale d’aller à l’urgence. J’ai appelé un taxi.
Marcher à 20 mètres du parking de la maison, j’ai pensé laisser mon courage!
Je ne pouvais même pas répondre aux questions simples que l’infirmière me posait: «Votre adresse est la rue américaine …? Ton numéro de téléphone 046 …? 3 La douleur m’a rendu amnésique. Tout ce que je pouvais dire était “Fibromyalgia! Fibromyalgie “Une litanie douloureuse. Heureusement, elle a compris l’urgence, cinq minutes plus tard, une infirmière est venue me chercher.
Infirmière: Enlevez votre manteau.
Moi: Je ne peux pas, s’il vous plaît aidez-moi.
L’infirmière: Mais vous avez fait un effort!
Donc cette phrase est pleine de jugement que je refuse d’entendre, la raison pour laquelle j’hésite à aller à l’urgence pendant que je souffre le martyre, cette foutue phrase «fais un effort».
Depuis le début de cet hiver je vis à la maison, mes rares sorties sont chez mon médecin généraliste et rhumatologue, j’accepte de ne voir que des personnes “sûres”, qui ne me jugeront pas, qui ne me diront pas “Patricia fait un effort”.
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