La douleur chronique n’est qu’un des nombreux symptômes que la fibromyalgie présente presque à chaque fois , mais pour moi c’est le plus courant.
La douleur affecte tous les aspects de ma vie.
Paiement coûteux pour chaque activité physique que je fais; Même la plus petite tâche peut entraîner une forte augmentation de mes symptômes.
La douleur de la fibromyalgie est unique en raison de sa gravité, de sa complexité et de ses nombreux systèmes.
La fibromyalgie comporte trois types principaux de douleur: hyperalgésie, allodynie et paresthésie.
L’hyperalgésie se traduit littéralement par une douleur excessive: “hyper” signifie “excès” et “algésie” signifie douleur. C’est le terme médical pour l’intensification de la douleur dans la fibromyalgie.
L’allodynie est la douleur que vous ressentez lorsque vous touchez ou frottez la peau.
Par exemple, une légère pression sur les vêtements ou un léger massage provoque une douleur ou une brise légère qui souffle sur la peau.
Il est hypersensible à des stimuli qui ne causent généralement pas de douleur.
La paresthésie est une sensation nerveuse étrange qui ressemble à quelque chose de rampant, de dents, de brûlures, de démangeaisons ou de chiffres, comme une émotion au milieu du pied ou une sensation de brûlure au dos.
Mais pour être honnête, ces mots ont très peu de signification pour ceux qui ne souffrent pas de fibromyalgie.
Pour donner aux personnes qui n’ont aucune idée de ce que l’on ressent le fait de vivre avec cette maladie douloureuse et débilitante, je vais décrire la douleur que je ressens de manière à ce que tout le monde en profite peut comprendre.
1. brûlure dans la peau
Parfois, ma peau a l’air brûlante et crue.
Imaginez que vous passiez des heures au soleil sans crème solaire, puis que vous nagiez dans la mer et que l’eau salée brûle votre peau endommagée. Ensuite, habillez-vous pour sortir la nuit et frottez vos vêtements contre votre peau.
Si vous avez la fibromyalgie, les vêtements ne peuvent que causer cette douleur, ils n’ont pas besoin de la lumière du soleil.
2. douleur aiguë / brûlante
C’est une douleur que je trouve particulièrement difficile à supporter. C’est tellement grave que je peux continuer à respirer.
La douleur arrive par vagues et s’accompagne de nausées.
3. Douleur dans les articulations
Ma douleur articulaire est une douleur sourde et lancinante. Cela affecte principalement mes genoux, mais aussi d’autres domaines.
4. douleur musculaire
Mes muscles me font encore mal. Même la plus petite activité les fait battre et brûler.
Je trouve impossible de me calmer quand j’ai mal aux muscles. Cela me rend tellement agité.
5. Spirespasmen
Je ressens des spasmes musculaires chaque jour, ils sont presque constants. C’est comme si vous contrôliez votre corps comme manipulé par des forces imprévues.
6. douleur aiguë
Vous sentez que quelqu’un vous utilise comme une poupée vaudou.
7. Entre une démangeaison et une douleur lancinante
Je suis sûr que c’est un terme technique, mais “un croisement entre démangeaisons et picotements” est la meilleure façon de le décrire.
C’est au plus profond des muscles et il est impossible de le gratter. Cela provoque également un choc dans la partie affectée de mon corps.
8. sensation de compression
Non seulement sur la peau, mais aussi à l’intérieur, qui se sent écrasé et sensible.
La poitrine et la poitrine sont généralement enflées, ce qui peut rendre la respiration douloureuse (douleur costocardique).
9. Échec de tout le corps
Lorsque je suis hypersensible, je me sens mal à l’aise dans tout le corps.
Le moindre contact ou mouvement provoque une douleur lancinante autour de mon corps.
10. raideur
Imaginez une personne en bonne santé qui va au gymnase après des mois d’inactivité. Soulevez des poids et travaillez votre corps tout entier.
Le lendemain, ils se sentent raides et ont de la difficulté à bouger. Une personne atteinte de fibromyalgie se réveille chaque matin et se sent comme elle.
On dirait qu’il portait un costume sous la peau, deux tailles plus petites.
11. douleur irradiée
J’ai des douleurs qui ont un point central, mais rayonnent à partir de ce point. La douleur peut commencer dans le dos, mais elle passe aussi par les jambes, par exemple.
12. Douleur de contact
Même le moindre contact avec un être cher peut causer de la douleur.
Je dois avoir deux tailles trop grandes, faites d’un matériau souple sans coutures. J’utilise des chaussures plates et plates qui sont plus hautes et je dois me couper les cheveux car cela provoque une douleur intense à la peau. Toucher provoque beaucoup de la douleur décrite.
13. Migraine / mal de tête
Je ne pense pas qu’un jour les maux de tête vont se produire, cela peut être tendu.
La migraine est aggravée par le stress et les hormones. S’ils frappent, je suis handicapé.
Je perds de vue et la douleur est si intense …
Le moindre mouvement, contact ou bruit provoque une douleur lancinante autour de la tête et du visage.
14. chatouiller la peau
J’ai l’impression d’avoir des milliers d’insectes sur la peau. En fait, c’est plutôt effrayant.
15. hypersensibilité
Certains jours, le son est insupportable. En un instant, je ressens de la douleur, des nausées, des vertiges, des tremblements et une attaque de panique menaçante. Mais ce n’est pas que du bruit, je suis aussi hypersensible à l’odorat, à la lumière et au toucher. Oui, un fort parfum de parfum peut me faire mal.
16. syndrome du côlon irritable
La fibromyalgie est souvent associée à d’autres affections, telles que le syndrome du côlon irritable (SCI). Contrairement à ce que l’on pense, la douleur du SII ne survient pas seulement dans l’intestin mais s’étend également à d’autres parties du corps, en particulier le dos.
C’est une douleur aiguë et brûlante. Les gaz piégés dans un intestin déjà enflammé sont l’un des symptômes les plus douloureux du SCI, c’est accablant.
La douleur n’est pas le seul symptôme de la fibromyalgie, mais c’est le symptôme qui affecte le plus ma vie et ma santé.
Merci d’avoir lu!
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