Nunca es bueno decir que “mi enfermedad es peor que la tuya” o “Me siento peor que tú” , porque para cada una, su enfermedad es su calvario personal.
En el caso de quienes padecen fibromialgia, ya sea primaria o secundaria, leve, moderada o grave , los síntomas para cada persona pueden volverse intolerables, porque cuando se trata de dolor crónico, la escala de dolor es subjetiva , ya que el umbral de tolerancia al El dolor es particular a cada persona.
Por lo tanto, una persona con fibromialgia leve o moderada puede sentir que se está muriendo de dolor, tanto o más que una persona con fibromialgia grave. Es importante tener en claro estos conceptos, y aunque estamos seguros de que algunos casos pueden ser más serios que otros, nunca haga comparaciones entre nuestras molestias y las molestias de otros, porque esto podría ayudarlo a sentirse peor con la justificación, pero sin embargo, No ayuda a sentirse mejor la otra persona.
La fibromialgia primaria es una que ocurre por sí misma, mientras que la fibromialgia secundaria es una que acompaña a otra enfermedad, generalmente dolor autoinmune o crónico. Parece claro que el segundo caso suena peor, ya que hay malestar y dolor de 2 o 3 condiciones diferentes, lo que impone más estrés en nuestro cuerpo y en nuestra psique. Pero, de nuevo, todo es subjetivo.
Por ejemplo, una persona con fibromialgia primaria leve a moderada con un trabajo altamente estresante que tiene que trabajar más de las 8 horas diarias habituales puede sentirse tan mal o peor que una persona con fibromialgia secundaria grave. más algún tipo de artropatía y / o hernia de discos, pero eso no funciona ni tiene quien la atienda en su casa.
Ellos lo ven? Es muy subjetivo y particular para cada caso. Pero cualquiera que sea el caso, aunque el dolor es difícil de manejar, al menos estamos sanos en otras áreas de nuestro cuerpo y no estamos abandonando este mundo.
Incluso aquellos de nosotros que sufrimos de un cierto grado de déficit cognitivo , seguimos siendo nosotros mismos, podemos pensar lúcidamente sobre las cosas importantes en la vida, podemos mantener una conversación con otras personas y mantener nuestra identidad como seres humanos, intacta. Estamos en el aquí y ahora .
Nuestra mente no deambula sin control. Menciono todo esto, porque recientemente vi la película Still Alice , que trata sobre una mujer de 50 años que comienza a sufrir Alzheimer de inicio temprano , lo que me hizo reflexionar sobre la calidad de vida. de una persona con Alzheimer versus la calidad de vida. La vida de una persona con dolor crónico y / o sensibilidad central, y aunque soy consciente de que mis opiniones pueden molestar a algunas personas, me gustaría expresarlas de todos modos.
Solo para entender que sé de lo que estoy hablando, aparte de una fibromialgia severa moderada, tengo artritis psoriásica, 2 discos herniados entre las vértebras lumbar y sacra que producen dolor neuropático en ambas piernas y una rectificación permanente de mi cuello. entre otras cosas.
Si bien es cierto que estoy jubilado debido a una discapacidad y no tengo el nivel de estrés que tenía cuando trabajaba, también me estresan los diferentes problemas que diariamente acompañan nuestras vidas, aparte del hecho de que no tengo mucho Sin embargo, cuando vi esta película, no pude evitar pensar que prefería ser como soy, para tener un inicio temprano de la enfermedad de Alzheimer .
Me impresionó mucho ver cómo la persona que era, tan brillante e inteligente, desapareció por completo, ya que estaba perdiendo el control de sí misma, hasta que finalmente, incluso perdió el control de sus propios pensamientos. Es terrible pensar que algo así podría pasarle a alguien, y me sentí tan bendecida , porque sean cuales sean mis días, algunos más miserables que otros, mi mente sigue siendo mía y la mantengo ilesa y sin alteraciones ; e incluso si tengo que sufrir terribles dolores y pasar mis días en la cama, puedo hablar de lo que quiero, pedir lo que necesito, decir lo que siento o pedir ayuda, cosas que damos por sentado, pero eso están más allá del alcance de una persona con una enfermedad como esa.
Por eso nunca debemos decir “mi enfermedad es peor que la tuya”, porque aunque la fibromialgia es terrible y puede volverse incapacitante, siempre habrá cosas peores. Y es por eso que mi blog se llama “La fibromialgia no es el final de la vida “.
Fibromialgia, olvidé las palabras que iba a decir, olvidé lo que iba a hacer, olvidé a dónde iba … Para aquellos que no entienden la fibromialgia
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