La fibromialgia es una enfermedad devastadora, y es uno que a menudo infradiagnosticada. Muchos adultos con la enfermedad pueden tener dificultades para conseguir su condición reconocida por los médicos. Eso es en parte debido a que el establecimiento médico simplemente no sabe mucho acerca de la condición, y en parte debido a que los síntomas son a menudo difíciles de separar de los de otras condiciones.
Pero los niños también pueden verse afectados por la fibromialgia juvenil. Y cuando los niños tienen la condición, que puede ser aún más difícil obtener un diagnóstico. A menudo, los niños tienen dificultades para expresar sus síntomas y la mayoría nunca han oído hablar de la fibromialgia. Como padre de un niño que lucha con fibromialgia juvenil, es importante ser consciente de lo que son los signos para que pueda obtener su hijo el tratamiento que necesitan. Así que, ¿cuáles son algunas de las cosas que debe tener en cuenta, y qué se puede hacer para ayudar?
¿Cuáles son los signos de Menores Fibromialgia?
La fibromialgia afecta a alrededor del 2 al 6% de los niños y es más común en las niñas que los niños. Pero la parte más difícil de reconocer la fibromialgia juvenil es que su hijo a menudo será capaz de decirle lo que sienten, sobre todo si son más jóvenes. Así que, como padre, es importante a tener en cuenta algunas de las señales más sutiles que su hijo está sufriendo de la enfermedad.
La fibromialgia causa fatiga crónica y dolor. Por lo general, esto se traduce en un niño con la condición que parece cansado constantemente. Pueden tener problemas para dormir por la noche y parece agotado durante el día. Por lo general, los niños tienden a estar débil por la mañana temprano cuando es el momento para la escuela. Pero si su hijo parece que siempre están cansados o fatigados mucho más de lo normal, hay una buena probabilidad de que algo está mal.
El dolor de la fibromialgia también es generalizada y severa. Sin embargo, los niños más pequeños pueden tener dificultades para explicar que están en el dolor. En cambio, los niños con la afección pueden parecer irritables o retirado. O pueden moverse más lentamente de lo normal e incluso cojera. Su niño también puede sufrir de dolores de cabeza frecuentes y dolor o calambres en el abdomen.
La fibromialgia también puede causar problemas con la memoria a corto plazo. La gente a menudo se refieren a esto como “fibro niebla”. Puede manifestarse como dificultad para prestar atención en clase y una lucha para recordar las cosas que el niño ya ha aprendido. Si su hijo tiene dificultades en la escuela, puede ser una señal de que tienen fibromialgia juvenil.
Por último, los niños con fibromialgia juvenil pueden tener problemas con su estado de ánimo como la ansiedad y la depresión. Si su hijo está experimentando estos síntomas, asegúrese de tomar nota de ellos y llevarlos a un médico.
¿Qué debe hacer si cree que su hijo tiene juvenil fibromialgia?
Una de las mejores cosas que puede hacer es tener una lista completa de los síntomas que ha notado en su hijo. Tener una idea de lo que su hijo está experimentando y cuándo. Eso ayudará al médico a hacer un diagnóstico preciso. Y es especialmente útil con los niños más pequeños que pueden no ser capaces de hablar de sus propios síntomas.
El médico comenzará considerando los síntomas del niño y luego tratar de descartar otras condiciones posibles trastornos como el lupus o del estado de ánimo. Esto probablemente implicará algunos análisis de sangre para comprobar los niveles de anticuerpos elevados, que son un signo de enfermedad autoinmune, una de las condiciones más comunes con síntomas similares.
Si el médico no puede encontrar otra fuente de síntomas de su hijo, que llevará a cabo un examen físico para la fibromialgia. La prueba es la misma que es para adultos y consiste en presionar el pulgar en 18 puntos específicos en el cuerpo. Estos “puntos sensibles” están asociados con la fibromialgia y si el niño tiene dolor en al menos 11 de ellos, entonces eso es una buena señal de que están sufriendo de la enfermedad. Si el niño tiene estos puntos sensibles y ha mostrado el dolor y la fatiga a largo plazo sin ninguna otra causa, entonces el médico realizará un diagnóstico de la fibromialgia.
Si su hijo es diagnosticado, asegúrese de seguir las recomendaciones de tratamiento de su médico. Si no está satisfecho de que el tratamiento de su hijo está trabajando para ayudar a su dolor, considerar la búsqueda de un médico que se especializa en la fibromialgia. Pueden tener más experiencia en el trabajo con pacientes con fibromialgia juvenil y el conocimiento de las opciones de tratamiento que su médico de cabecera no lo hace. Usted puede encontrar muchos recursos para ayudarle a encontrar el médico adecuado en el sitio web de la Asociación Nacional de Fibromialgia aquí.
Por lo tanto, ¿tiene alguna experiencia con fibromialgia juvenil? ¿Qué opinas otros deben saber? Dinos en los comentarios.
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