La différence entre être fatigué et avoir une fatigue chronique

Au fil des ans, mes amis et ma famille ont cessé de me demander comment je suis.C’est parce qu’à chaque fois, la réponse sera invariablement “fatiguée”.

Je veux dire, pourquoi mentez-vous là-dessus? Il n’y a aucun moyen d’éviter le fait que j’ai l’air fatigué. Les sacs sous mes yeux ont des sacs. Je marche comme une femme qui a été condamnée à la potence et j’attends que quelqu’un demande à ma mère de 67 ans si je suis sa mère.

Bien sûr, si vous êtes un étranger, ou la fille au check-out et vous me demandez comment je suis, je réponds toujours avec l’obligation, “Je vais bien”, quand ce que je veux vraiment dire est: “Sont vous êtes assis confortablement? Ensuite, je vais commencer. Tout a commencé pendant l’été de … “avant de leur donner une longue histoire de ma douleur et de ma souffrance dans les moindres détails. Mais pas moi.

La réponse «moi aussi» est parfois difficile à prendre et fait que l’on se sent extrêmement pressé. Ce n’est pas que j’aie le monopole de la fatigue, mais à moins que l’autre ne souffre aussi d’une fatigue chronique, il m’est difficile d’assimiler les deux.

Alors, comment vais-je vous décrire comment ma fatigue est différente de votre fatigue, quand je peux à peine la décrire? Comment puis-je leur faire comprendre que ce n’est pas juste un nom élégant d’être extrêmement fatigué? Que s’allumer sur l’ordinateur portable, décrocher le téléphone ou simplement lire est une expérience épuisante en soi?

Il semble étrange d’appeler la fatigue débilitante, mais c’est ce que la fatigue chronique est. Cela vous rend faible et incapable de faire la plupart des tâches. Même ce dernier paragraphe a pris plus de 45 minutes à écrire parce que je devais me reposer quelques fois entre l’écriture. Il trouble votre esprit et vous pèse de sorte que vous ne pouvez pas mettre un pied en face de l’autre ou lever les bras. Parfois, il semble si oppressant qu’il semble que tout votre corps s’enfonce dans le sol. Tout ce que vous faites, c’est comme si vous le faisiez pendant que vous vous éclaboussiez dans quelques centimètres de boue, ou comme si vous nagiez toujours à contre-courant …

Vous pourriez leur demander d’imaginer avoir la grippe 24 heures par jour, sept jours par semaine, 365 jours par année. Bien que pour certains, les symptômes apparaissent et disparaissent. Ou leur dire que même si je réussissais à dormir 10 heures, je me sentirais probablement encore pire qu’avant d’aller dormir. Et des douleurs musculaires, des maux de gorge, des maux de tête, des enflures et des articulations raides, une toux chronique et des nausées? Qu’en est-il des symptômes psychologiques et physiques? Qu’en est-il de l’impact que cela a sur les amitiés et les relations? Comment puis-je expliquer tout cela à quelqu’un qui pense juste que je suis fatigué?

Le fait est que je ne le fais pas. C’est beaucoup plus facile de dire que je vais bien, et je le fais. Comme beaucoup de personnes atteintes d’une maladie chronique, nous peignons nos sourires et laissons le monde penser que tout est soleil et sucette, et pendant ce temps, nous continuons à souffrir en silence.

Je n’essaie pas de rabaisser ceux qui disent qu’ils sont fatigués. Que vous soyez stressé, surmené, enceinte ou couru après une poignée de «fruits de l’utérus», la fatigue peut avoir un effet néfaste sur n’importe qui. Je suis fatigué des gens qui supposent que «ma fatigue» est une exagération excessive, ou quelque chose qui peut être facilement résolu en se reposant bien la nuit. Mais ne serait-ce pas génial si je pouvais?

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