Fibromyalgie is een verwoestende aandoening, en het is er een die vaak wordt underdiagnosed. Veel volwassenen met de aandoening kan een harde tijd om hun toestand herkend door artsen. Dat is deels omdat de medische wereld gewoon niet dat veel over de toestand kennen, en deels omdat de symptomen zijn vaak moeilijk te scheiden van die van andere aandoeningen.
Maar kinderen kunnen ook worden beïnvloed door juveniele fibromyalgie. En wanneer de kinderen de aandoening, kan het nog moeilijker zijn om een diagnose te krijgen. Vaak kinderen hebben een harde tijd het uiten van hun symptomen en de meeste hebben nog nooit gehoord van fibromyalgie. Als ouder van een kind worstelt met juveniele fibromyalgie, is het belangrijk om bewust te zijn van wat de symptomen zijn, zodat u uw kind de behandeling die ze nodig hebben kunnen krijgen. Dus, wat zijn sommige van de dingen die je op moet letten, en wat kunt u doen om te helpen?
Wat zijn de tekenen van Juvenile Fibromyalgie?
Fibromyalgie treft ongeveer 2-6% van de kinderen en komt vaker voor bij meisjes dan jongens. Maar het moeilijkste deel van het herkennen van jeugdige fibromyalgie is dat uw kind vaak niet in staat om u te vertellen wat ze voelen zullen zijn, vooral als ze jonger zijn. Dus, als ouder, is het belangrijk om uit te kijken voor een aantal van de meer subtiele tekenen zijn dat uw kind last heeft van de aandoening.
Fibromyalgie veroorzaakt chronische vermoeidheid en pijn. Meestal resulteert dit in een kind met de aandoening schijnbaar moe voortdurend. Ze kunnen moeite hebben met slapen ‘s nachts te hebben en lijken uitgeput gedurende de dag. Meestal, kinderen hebben de neiging om vroeg in de ochtend worden groggy wanneer het tijd is voor school. Maar als uw kind lijkt alsof ze zijn altijd moe of veel meer vermoeid dan normaal, is er een goede kans dat er iets mis is.
De pijn van fibromyalgie is ook wijdverspreid en ernstig. Maar jongere kinderen kan het moeilijk uit te leggen dat ze pijn hebben. In plaats daarvan kunnen de kinderen met de aandoening prikkelbaar of ingetrokken lijken. Of ze kunnen langzamer dan normaal en zelfs slap bewegen. Uw kind kan ook last hebben van frequente hoofdpijn en pijn of kramp in de buik.
Fibromyalgie kan ook problemen met het korte termijn geheugen veroorzaken. Mensen verwijzen vaak naar dit als “fibro mist.” Het kan zich manifesteren als problemen met aandacht in de klas en een strijd om dingen het kind al geleerd herinneren. Als uw kind worstelt op school, kan het een teken dat ze hebben jeugdige fibromyalgie.
Ten slotte kunnen kinderen met juveniele fibromyalgie problemen met hun stemming, zoals angst en depressie. Als uw kind last krijgt van deze symptomen, zorg ervoor om kennis te nemen van hen en breng ze naar een arts.
Wat moet u doen als u denkt dat uw kind Juvenile Fibromyalgie?
Een van de beste dingen die je kunt doen is een uitgebreide lijst met symptomen die u hebt gemerkt in uw kind. Heb je een idee van wat uw kind ervaart en wanneer. Dat zal helpen uw arts te maken een nauwkeurige diagnose. En het is vooral handig met jongere kinderen die niet in staat zijn om te praten over hun symptomen zichzelf.
De arts zal beginnen door te kijken naar de symptomen van het kind en dan proberen uit te sluiten andere mogelijke aandoeningen zoals lupus of stemmingsstoornissen. Dit zal waarschijnlijk gepaard gaan met enige bloedonderzoek om te controleren op verhoogde antilichaam niveaus, die een teken van auto-immuunziekte, een van de meest voorkomende aandoeningen met soortgelijke symptomen zijn.
Als de arts een andere bron van de symptomen van uw kind niet kan vinden, zullen ze een fysieke test voor fibromyalgie uit te voeren. De test is hetzelfde als voor volwassenen en omvat op de duim in 18 specifieke punten op het lichaam. Deze “tender points” worden geassocieerd met fibromyalgie en als het kind pijn in ten minste 11 van hen, dan is dat een goed teken dat ze lijden aan de aandoening. Als het kind heeft deze tender points en heeft aangetoond langdurige pijn en vermoeidheid zonder enige andere oorzaak, dan zal de arts een diagnose van fibromyalgie te maken.
Als uw kind wordt gediagnosticeerd, zorg ervoor dat u de behandeling van uw arts. Als u niet tevreden bent dat de behandeling van uw kind is bezig om hun pijn te helpen, overweeg dan het vinden van een arts die is gespecialiseerd in fibromyalgie. Zij kunnen meer ervaring in het werken met juveniele patiënten met fibromyalgie en de kennis van de behandeling opties die uw huisarts heeft. U kunt veel middelen om te helpen met het vinden van de juiste arts op de website van de Nationale Vereniging Fibromyalgie is hier te vinden.
Dus, heb je enige ervaring met juveniele fibromyalgie? Wat denk je dat anderen zou moeten weten? Laat het ons weten in de commentaren.
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