«J’étais méchant, sans force, et le médecin m’a dit que j’étais une personne faible»

Comme une vie en une minute peut nous changer, nous savons beaucoup une Terrienne García García, âgée de Séville, âgée de 42 ans  . Aujourd’hui, elle est heureuse parce que ce sont les tribunaux, et non l’État, qui l’ont reconnue “que je ne peux pas me tirer le corps”; parce qu’il a deux enfants qui l’aident, un mari exemplaire et une grande famille. Mais il n’a aucune force, aucun traitement qui lui donne de l’énergie et enlève la douleur. Il ne prend que des antidépresseurs pour mieux faire face, car son corps ne correspond pas à son âge, “mais à celui d’une femme de 80 ans” et “je ne veux que m’allonger les yeux fermés”.

Teresa García García avec la phrase qui lui donne la raison

Il ne prend des antidépresseurs que  parce qu’il doit aussi digérer ce qui se serait passé si, dès le premier moment où sa maladie avait été diagnostiquée, s’il avait payé pour les cinq années précédant la peine judiciaire qu’il avait prononcée en juin dernier, une invalidité permanente absolue, et au lieu de un paiement de 640 euros en aurait laissé un de 1 300.

J’ai eu 33 ans en 2009, un bon travail dans un bureau, bien payé et une vie parfaite  avec son mari et ses deux enfants de 5 ans et 6 mois.

Mais un matin, il s’est levé pour aller travailler et  il a eu l’impression d’avoir la grippe. Après quelques jours et après s’être rendu compte qu’il s’aggravait, il a demandé un rendez-vous avec son médecin de famille à la clinique de La Plata.

“Quand je lui ai dit que tout mon corps me faisait mal, que je n’avais pas la force de rester debout ou d’écrire sur l’ordinateur, il m’a dit que c’était stressant. J’ai quitté le bureau en sachant que ce n’était pas vrai. Quelques semaines plus tard, je suis revenu à la persistance des symptômes jour et nuit et il m’a répété que c’était stressant. Et ainsi pendant 8 mois. Un jour, en parlant à un ami, il m’a dit qu’il avait les mêmes symptômes que son épouse et qu’il souffrait de fibromyalgie. Alors encore une fois, j’ai demandé un rendez-vous à mon médecin et lui ai demandé s’il pouvait s’agir de cette maladie. Il a répondu que c’était une maladie inventée par quelqu’un qui s’ennuierait. “

Fibromyalgie sévère

Teresa a changé de médecin et elle a eu un nouveau médecin. Le premier jour, après avoir expliqué ses symptômes, elle a dit qu’elle savait déjà ce qui lui était arrivé, mais qu’elle devait m’envoyer chez le chirurgien orthopédique et le rhumatologue pour s’en assurer. Après les tests, ils ont confirmé le diagnostic:  fibromyalgie sévère, cervicodorsalgie chronique et lombalgie mécanique.  Puis il est allé chez un interniste qui l’a également confirmé “après avoir fait plus de tests, puisqu’il s’agit d’une maladie à rebond car il n’existe aucun marqueur biologique indiquant qu’il existe, pour le moment”. Petit à petit, d’autres maladies telles que le syndrome de Raynaud, l’arthrite, l’anxiété, la dépression… ont commencé à apparaître… «Comment éviter de tomber dans une dépression quand on voit qu’on est coincé dans le corps d’une femme de 80 ans. Quand tu ne peux pas aller chercher tes enfants, quand le moindre effort vous laisse au lit trois jours. Quand votre mari doit agir en tant que père, mère, femme au foyer … “, dit-il.

Donc, il travaillait encore deux années durant lesquelles sa vie passa de son travail à son lit ou son canapé. Jusqu’au jour où son chef lui a dit qu’il ne pouvait pas continuer comme ça, il serait renvoyé. J’avais perdu 10 kilos. Il est resté dans le camp 43  et, sous le “conseil inexact de mon avocat, il a demandé à passer devant le tribunal médical.

Il n’a pas été handicapé et a été jugé. Il l’a perdue parce qu’il n’avait pas “épuisé toutes les voies thérapeutiques” et n’avait pas “de rapports  indiquant mon incapacité à travailler ou ma vie quotidienne”.

“Au début, j’ai sombré”, poursuit-il, “mais avec le temps, c’est ce qui m’a poussé à continuer à me battre pour mes droits en tant que patient chronique, même si le problème était presque impossible. Il y a environ trois ans, on m’a diagnostiqué un syndrome de fatigue chronique et, après plusieurs voyages effectués par différents spécialistes, un jour à l’urgence, ils m’ont dirigé vers un interniste. Ceci à son tour à un pneumologue qui était celui qui a fait tous les tests nécessaires et plus, pour savoir quel degré il avait de la maladie.  J’ai ce syndrome en grade IV et une invalidité grave

 . Ça, j’en suis sûr, depuis le début, mais comment ils se lavent les mains et quand vous allez à la salle d’urgence, ils vous envoient emmener vos enfants au parc, prendre soin de personnes qui sont vraiment malades, selon ce qu’ils m’ont dit … » il dit.

Il a réussi à obtenir de bons rapports et, conseillé par un ami, a engagé l’un des meilleurs avocats spécialisés dans ces maladies:  Javier León Iglesias, de Saragosse . Après plus d’un an et demi d’attente, le procès a été ouvert pour l’action en justice intentée contre l’Institut national de la sécurité sociale et le Trésor général de la sécurité sociale.

“Plusieurs mois plus tard”, ajoute-t-elle, “le juge m’a accordé une invalidité permanente absolue. C’était un sentiment très étrange. J’étais très heureux parce qu’à la fin, ils avaient reconnu que j’étais très malade et que je ne pouvais travailler sur rien, mais en même temps, j’étais profondément attristé de le comprendre. Si jeune, 42 ans. Toute la vie à venir, mais quel genre de vie. J’ai eu deux tentatives d’autolyse et quand je regarde l’avenir, je ne vois que de la douleur, de la fatigue extrême et encore de la douleur ».

«Ils m’ont dit que je ne voulais pas travailler»

Elle se souvient lorsque les médecins lui ont dit que “tout était dans ma tête, que ce que je ne voulais pas, c’était de travailler, que j’étais paresseux et que je prenais soin de mes enfants” . Maintenant, il va demander de l’aide au titre de la loi sur les dépendances et il a également revendiqué le handicap de 33% reconnu par la Junta de Andalucía. Mais il souhaite avant tout que les personnes qui se reflètent dans leur situation “se battent et ne jettent pas l’éponge” pour parvenir, au moins, à ce que leur handicap soit reconnu ».

«Ma vie se passe fatiguée, je dors mais je me lève comme si je n’avais pas dormi. Mais j’ai ma famille, mes enfants de 13 et 9 ans les ont aidés à étudier , même couché dans son lit . Je ne peux pas faire d’exercice physique, il suffit de marcher 15 minutes par jour et lentement, ou de faire des tâches ménagères ou quoi que ce soit. La mer me détend, bien que je ne puisse pas me baigner parce que je ne supporte pas les changements de température, mais cela me détend », conclut-elle.

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