«Jeg var dårlig, uten styrke, og legen fortalte meg at jeg var en svak person»

Hvordan et liv på et minutt kan forandre oss, kjenner en 42-årig fra Sevilla, kalt Teresa García García . I dag er hun glad fordi domstolene, ikke staten, har anerkjent henne “at jeg ikke kan trekke kroppen min”; fordi han har to barn som hjelper ham, en eksemplarisk mann og en stor familie. Men han har ingen styrke, ingen behandling som gir ham energi og tar bort smerten. Han tar bare antidepressiva til å klare seg bedre enn kroppen sin svarer ikke til sin alder, “men til en 80-årig kvinne” og at “jeg vil bare ligge ned med lukkede øyne.”

Teresa García García med setningen som gir henne grunnen

Bare ta antidepressiva  fordi det har også å fordøye hva om fra begynnelsen hadde han diagnostisert sykdommen hans, hvis han hadde sitert de fem årene før den rettsavgjørelse som ga i juni i fjor , totalt permanent uførhet, og i stedet for en kvote på 640 euro ville ha vært en av 1300.

Han var 33 år gammel i 2009 en god jobb på et kontor, godt betalt og et perfekt liv  med sin mann og to barn i alderen 5 år og 6 måneder.

Men en morgen han fikk opp å gå på jobb, og  følte at jeg hadde den influensa. Etter et par dager, og etter å se det ble verre gjort en avtale med legen sin i poliklinisk La Plata.

“Da jeg fortalte ham at hele kroppen min skadet, at jeg ikke hadde styrken til å stå, eller skrive på datamaskinen, fortalte han meg at det var stress. Jeg dro fra kontoret og visste at det ikke var sant. Noen uker senere kom jeg tilbake til persistensen av symptomene dag og natt og han fortalte meg igjen at det var stress. Og så i 8 måneder. En dag snakket han med en venn, fortalte han meg at han hadde de samme symptomene som sin kone, og at han hadde fibromyalgi. Så igjen spurte jeg legen min om en avtale og spurte om det kunne være den sykdommen. Han svarte at det var en sykdom oppfunnet av noen som ville kjede seg. “

Alvorlig fibromyalgi

Teresa endret legen sin, og hun fikk en ny lege. På den første dagen, etter å ha forklart hennes symptomer, sa hun at hun allerede visste hva som skjedde med henne, men at hun måtte sende meg til den ortopediske kirurgen og reumatologen for å være sikker. Etter testene bekreftet de diagnosen:  alvorlig fibromyalgi, kronisk cervicodorsalgi og mekanisk lavryggsmerter.  Så gikk han til en internist som også bekreftet det “etter å ha gjort flere tester, siden det er en kassettsykdom fordi det ikke finnes noen biologisk markør som sier at den eksisterer, for øyeblikket”. Litt etter litt begynte flere sykdommer som Raynauds syndrom, leddgikt, angst, depresjon … .. «Hvordan unngå å bli i en depresjon når du ser at du sitter fast i en 80 år gammel kvinne. Når du ikke kan hente barna dine, når den minste innsatsen forlater deg i sengen tre dager. Når mannen din må opptre som far, mor, husmor … “, sier han.

Så han jobbet i to år, hvor livet hans gikk mellom arbeid og seng eller sofa. Inntil en dag sa sjefen hans at han ikke kunne fortsette slik, at han ville bli utslettet. Jeg hadde mistet 10 kilo. Han bodde i 43  og under “unøyaktig råd fra min advokat, han bedt om å sende medisinsk domstol.

Han ble ikke gitt funksjonshemming og gikk til rettssak. Han mistet det fordi han ikke hadde “utmattet alle terapeutiske rutene” og hadde ikke “rapporter som  indikerer min manglende evne til å jobbe eller mitt daglige liv”.

“Først sank jeg -more- men til slutt var det fikk meg til å fortsette å kjempe for mine rettigheter kroniske hvor syk, selv om problemet var nesten umulig. Om tre år siden jeg ble diagnostisert med kronisk utmattelsessyndrom og etter flere turer med forskjellige spesialister, akuttmottaket en dag jeg ble henvist til en indremedisiner. Dette i sin tur til en pulmonologist som var den som gjorde alle nødvendige tester og mer, for å vite hvilken grad han hadde av sykdom.  Jeg har det syndromet i klasse IV og alvorlig funksjonshemning

 . Det er jeg sikker på at jeg har hatt fra begynnelsen, men hvordan å vaske hendene, og når du går til den legevakten sender de deg til å ta barna til den parken, for å møte folk som er virkelig syk, jeg ble fortalt ordrett … ” sier han.

Han klarte å få gode rapporter og rådført av en venn, hyret en av de beste advokatene i disse sykdommene:  Javier León Iglesias, fra Zaragoza . Etter mer enn omtrent et og et halvt år med å vente, kom rettssaken, for søksmål innlevert mot Nasjonalt institutt for sosial sikkerhet og General Treasury of Social Security

“Flere måneder senere,” tilføyer hun, “dommeren ga meg absolutt permanent uførhet. Det var en veldig merkelig følelse. Jeg var veldig glad fordi de til slutt hadde anerkjent at jeg var veldig syk og ikke kunne jobbe med noe, men samtidig var jeg veldig lei meg til å innse det. Så ung, 42 år gammel. Alt liv foran, men hva slags liv. Jeg har hatt to forsøk på autolyse, og når jeg ser fremtiden ser jeg bare smerte, ekstrem tretthet og mer smerte ».

«De fortalte meg at jeg ikke ville jobbe»

Hun husker da legene fortalte henne at “alt var i hodet mitt, at det jeg ikke vil, var å jobbe, at jeg var lat og at jeg tok vare på barna mine . ” Nå kommer han til å be om hjelp dekket av avhengighetsloven, og han har også hevdet 33% funksjonshemming som har blitt anerkjent av Junta de Andalucía. Men han vil fremfor alt at folkene som reflekteres i deres situasjon, “kjemper og ikke kaster i håndkleet” for minst å oppnå at deres funksjonshemming blir anerkjent. “

«Livet mitt går sliten, jeg sover, men jeg reiser seg som om jeg ikke hadde sovet. Men jeg har min familie, mine 13 og 9 år gamle barn som jeg hjelper til med å studere selv om jeg ligger i sengen . Jeg kan ikke trene, bare gå 15 minutter om dagen og sakte, eller husarbeid eller noe. Havet slapper av meg, selv om jeg ikke kan bade fordi jeg ikke kan holde temperaturendringene, men det slapper av, sier Teresa.

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