Jeg heter fibromyalgi og er en usynlig sykdom.

Jeg heter fibromyalgi og er en usynlig sykdom.
Jeg er med deg resten av livet.
Andre ser meg ikke.
Men kroppen din føler meg.
Jeg kan angripe deg når og når du vil.
Jeg kan også ta vare på de intense smertene.
Og hvis jeg er i godt humør, kan jeg også forsikre deg om at du har smerter overalt.
Husker du da du tjente på energien din og alle hadde det veldig moro? Vel, jeg tok bort denne kraften
og gjenvunnet tretthet.
Nå prøver du alltid å ha det moro, men jeg får deg ut av drømmen din og gir deg hodepine til gjengjeld!
Jeg kan forsikre deg om at du vibrerer inni deg og at du er kald eller varm når alle føler seg normale.
Å ja, jeg kan bli engstelig og deprimert.

Ikke spør, men jeg valgte deg av forskjellige grunner. 
For dette viruset som aldri kom seg og aldri ble frisk, eller for en bilulykke, eller kanskje det er årene med uaktsomhet etter et traume! Uansett, jeg er her, og jeg blir med deg!
Jeg hørte at du gikk til lege for å bli kvitt meg. Haha jeg triller på gulvet og ler haha, prøv det!
Du må gå, du vil endelig bli kvitt meg av mange leger.
Du er bundet med piller, sovepiller, energipiller.
Du vil motta massasjer, og det brytes av angst eller depresjon.
De vil fortelle deg at hvis du tar pillene dine godt, men rene og øvelsene dine, vil jeg dra.
Men det verste er at han ikke vil ta det på alvor når han skriker til legen som har et mer normalt liv.
Din familie, venner og kolleger? Jeg vil høre på deg til du er lei av hvordan jeg lar deg lide og jeg er en råtten sykdom.
De hører ikke deg si: “For ti år siden? For ti dager siden! ”
I tillegg snakker noen bak ryggen når de sakte føler at de mister selvtilliten.
Du prøver alltid, mot min beste dømmekraft, å forklare at de forstår deg.
Dette er spesielt vanskelig hvis du er en “normal person” i samtalen og plutselig ikke vet hva du mente igjen.

Jeg håpet at denne hemmeligheten kunne fortsette, men nå vil den også bli publisert som
følger:

Personen du vil ha en ekte forståelse og støtte til å møte meg er mennesker som har fibromyalgi.
Aksepter mindretallet som elsker meg og har støtte for andre.

Er det sant at du må være ansvarlig, fordi du er sliten fordi du har smerter og ikke alt er det du vil?
Er det ikke sant at hvis du ikke har en sykdom, er det en annen misforståelse, hva gjør du eller hva gjør du ikke?
Det er uten å kaste bort energi, så du bør alltid spørre deg selv, hva tror du ellers?

Hvis det er lite energi, er det bedre å bruke det på fine ting og ha det gøy i livet ditt, i stedet for å bli sint.
Nå, blir du ikke veldig lei av alle disse forståelsesproblemene?
mens du er så sliten så snart?

258 thoughts on “Jeg heter fibromyalgi og er en usynlig sykdom.

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