La fibromyalgie, une maladie largement méconnue, confond et frustrant les patients et les médecins. Je le sais parce que j’ai vu des deux côtés – à la fois comme médecin et une femme atteinte de la maladie.
Cette maladie chronique courante est caractérisée par une douleur musculaire généralisée, une fatigue et un brouillard cérébral. On estime que 5 millions d’Américains souffrent actuellement de ce trouble et que près de 90% des personnes diagnostiquées sont des femmes.
Cependant, il y a encore beaucoup de confusion à propos de la maladie et de la façon dont elle est traitée. Voici cinq vérités sur la fibromyalgie que la plupart des médecins ne connaissent même pas:
1. La fibromyalgie est réelle et peut être traitée, mais nécessite une approche holistique.
La recherche sur la fibromyalgie a pris du retard par rapport à d’autres maladies, marquées par la controverse et un siècle de discussions sur le point de savoir s’il s’agit ou non d’une “vraie” maladie.
Cela a changé en 2002 lorsqu’une étude innovante a révélé des anomalies dans la façon dont le cerveau traite la douleur liée à la fibromyalgie. Ces études d’imagerie cérébrale ont fourni des données objectives pour prouver que la fibromyalgie était “réelle” et ont déclenché une décennie de recherches intensives qui ont abouti à trois médicaments approuvés par la FDA indiquant des signes douloureux de douleur.
Mais ces médicaments ne traitent pas les symptômes de fatigue et de pensées diffuses, souvent plus débilitantes, appelées «fibrofog». Pour ce faire, les médecins et les patients doivent être bien informés des différentes options de traitement, en particulier des approches holistiques telles que la modification du régime alimentaire pour réduire l’inflammation ou l’ajout de suppléments pour stimuler la production d’énergie cellulaire.
2. Ce n’est plus un mystère complet.
J’entends souvent le mythe répéter que “nous ne savons pas ce qui cause la fibromyalgie”. Des recherches récentes menées par des médecins révèlent que la plupart des médecins ne savent toujours pas comment aider leurs patients atteints de fibromyalgie, malgré l’existence de traitements très efficaces. La fibromyalgie est souvent décrite dans les revues médicales comme «perplexe», «mystérieuse» et «déroutante».
Annonces télévisées qui disent que la fibromyalgie est une condition de douleur hyperactive Les nerfs ne racontent pas toute l’histoire. En fait, les problèmes de gestion de la douleur ne sont que la partie visible de l’iceberg. Un facteur beaucoup plus important est une réponse au stress (ou danger) qui a été éteint et qui est constamment en alerte rouge, ce qui entraîne une réaction en chaîne qui provoque fatigue, brouillard cérébral et douleur musculaire.
Le seul moyen d’améliorer durablement tous ces symptômes est de traiter systématiquement les effets négatifs sur le corps d’une réaction chronique au stress hyperactif. Une réaction au stress chroniquement activé provoque des ravages, empêche le sommeil profond et maintient les muscles tendus, causant douleur et sensibilité; entrave à la digestion et à la production d’énergie; et éliminer les hormones. Il s’avère également que les nerfs sensibles à la douleur augmentent le volume de leurs signaux.
3. La fibromyalgie est principalement un trouble du sommeil.
Malheureusement, de nombreux médecins, même des spécialistes du sommeil, ne sont pas conscients des problèmes de sommeil qui accompagnent la fibromyalgie. Mais la fibromyalgie est, à bien des égards, un trouble du sommeil, un état de privation de sommeil profonde et chronique. Des études ont montré à maintes reprises que les patients souffrent d’un sommeil profond inadéquat, souvent interrompu par des ondes cérébrales «éveillées». Cette soif de sommeil profond contribue à la fatigue, aux douleurs musculaires et au brouillard de pensée caractéristiques de la maladie.
Traiter le sommeil est la clé pour traiter la fibromyalgie, et c’est là que je vois plus de moyens de réduire la douleur, la fatigue et le brouillard cérébral. Bien que le sommeil devrait toujours être amélioré avant que les autres traitements ne fonctionnent, il est essentiel de traiter ce problème avec votre médecin afin de traiter les problèmes de sommeil cachés tels que l’apnée obstructive du sommeil, puis d’ajouter un médicament. et des suppléments pour rétablir le sommeil profond normal.
4. La plupart des médecins ne connaissent pas grand chose à propos de la fibromyalgie et ce n’est pas de leur faute.
La fibromyalgie est une maladie orpheline qui n’est revendiquée par aucune spécialité, mais qui se chevauche maladroitement dans les domaines de la rhumatologie, de la neurologie, de la médecine du sommeil et de la douleur. La plupart des soins concernent les médecins de soins de première ligne submergés qui n’ont pas le temps de chercher de nouvelles idées de traitement médical dans la mer de publications médicales. Les principaux journaux médicaux négligent la fibromyalgie. En fait, depuis 1987, une seule étude sur la fibromyalgie a été publiée dans le New England Journal of Medicine, la publication médicale la plus largement publiée dans le monde.
Etant donné que le prestataire de soins de santé primaires, très sollicité, n’a pas le temps de rechercher activement de nouveaux traitements pour la fibromyalgie, la recherche devrait lui être signalée autrement, c’est-à-dire par ses patients. Ainsi, dans mon nouveau livre, The FibroManual, j’ai inclus un guide à l’intention des professionnels de la santé, accompagné de conseils médicaux soutenus par la recherche, afin que les patients puissent obtenir l’attention de leur médecin.
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