«Ik was slecht, zonder kracht, en de dokter vertelde me dat ik een zwak persoon was»

Hoe een leven in een minuut ons veel kan veranderen, kent een 42-jarige uit Teresa García García uit Sevilla  . Vandaag is ze blij omdat de rechtbanken, en niet de staat, haar hebben erkend “dat ik mijn lichaam niet kan trekken”; omdat hij twee kinderen heeft die hem helpen, een voorbeeldige echtgenoot en een geweldig gezin. Maar hij heeft geen kracht, geen behandeling die hem energie geeft en de pijn wegneemt. Hij neemt alleen antidepressiva om beter om te gaan dan zijn lichaam niet overeenkomt met zijn leeftijd, “maar met dat van een vrouw van 80 jaar” en dat “ik alleen maar met mijn ogen dicht wil liggen”.

Teresa García García met de zin die haar de reden geeft

Hij neemt alleen antidepressiva  omdat hij ook moet verteren wat er zou zijn gebeurd als vanaf het eerste moment zijn ziekte was gediagnosticeerd, als hij had betaald voor de vijf jaar voorafgaand aan de rechterlijke zin die hij afgelopen juni had uitgesproken, absolute blijvende invaliditeit, en in plaats van een betaling van 640 euro zou een van 1.300 hebben achtergelaten.

Ik had 33 jaar in 2009 een goede baan in een kantoor, goed betaald en een perfect leven  met haar man en haar twee kinderen van 5 jaar en 6 maanden.

Maar op een ochtend stond hij op om naar zijn werk te gaan en  hij had het gevoel dat hij griep had. Na een paar dagen en nadat hij zag dat hij erger werd, verzocht hij een afspraak met zijn huisarts in de kliniek van La Plata.

“Toen ik hem vertelde dat mijn hele lichaam pijn deed, dat ik niet de kracht had om te staan ​​of op de computer te schrijven, vertelde hij me dat het stress was. Ik verliet het kantoor wetende dat het niet waar was. Een paar weken later keerde ik dag en nacht terug naar de persistentie van de symptomen en hij vertelde me opnieuw dat het stress was. En dus voor 8 maanden. Op een dag sprak hij met een vriend, hij vertelde me dat hij dezelfde symptomen had als zijn vrouw en dat hij fibromyalgie had. Dus nogmaals, ik vroeg mijn arts om een ​​afspraak en vroeg of het die ziekte kon zijn. Hij antwoordde dat het een ziekte was, bedacht door iemand die zich zou vervelen. ‘

Ernstige fibromyalgie

Teresa veranderde haar arts en ze kreeg een nieuwe dokter. Op de eerste dag, nadat ze haar symptomen had uitgelegd, zei ze dat ze al wist wat er met haar gebeurde, maar dat ze me zeker naar de orthopedisch chirurg en reumatoloog moest sturen. Na de tests bevestigden ze de diagnose:  ernstige fibromyalgie, chronische cervicodorsalgie en mechanische lage-rugpijn.  Daarna ging hij naar een internist die het ook bevestigde “na meer tests te hebben gedaan, omdat het een afgelegde ziekte is omdat er op dit moment geen biologische marker is die zegt dat het bestaat”. Geleidelijk aan begonnen er meer ziekten te verschijnen, zoals het syndroom van Raynaud, artritis, angst, depressie …. «Hoe te voorkomen dat je in een depressie terechtkomt als je ziet dat je vastzit in het lichaam van een 80-jarige vrouw. Wanneer je je kinderen niet kunt ophalen, als de geringste inspanning je drie dagen in bed laat. Wanneer je man moet optreden als vader, moeder, huisvrouw … “, zegt hij.

Dus hij werkte nog twee jaar, waarin zijn leven tussen werk en bed of bank ging. Tot op een dag zei zijn baas tegen hem dat hij zo niet verder kon gaan, dat hij zou worden ontslagen. Ik was 10 kilo afgevallen. Hij bleef in 43  en onder het “onjuiste advies van mijn advocaat vroeg hij om het medische hof te passeren.

Hij kreeg de handicap niet en ging voor de rechter. Hij verloor het omdat hij niet “alle therapeutische routes had uitgeput” en geen “rapporten had waaruit

 bleek  dat ik niet in staat was om te werken of mijn dagelijks leven”.

“In eerste instantie zakte ik weg,” vervolgt hij, “maar na verloop van tijd was dit wat me ertoe bracht om te blijven vechten voor mijn rechten als een chronische patiënt, hoewel het probleem bijna onmogelijk was. Ongeveer drie jaar geleden werd ik gediagnosticeerd met het chronisch vermoeidheidssyndroom en na verschillende uitstapjes door verschillende specialisten, verwees ik op een dag op de eerste hulp naar een internist. Dit op zijn beurt aan een longarts die degene was die alle noodzakelijke tests deed en nog meer, om te weten in welke mate hij ziek was.  Ik heb dat syndroom in graad IV en ernstige invaliditeit . Dat, ik weet zeker dat ik het vanaf het begin heb gehad, maar hoe ze hun handen wassen en wanneer je naar de eerste hulp gaat, sturen ze je om je kinderen naar het park te brengen, om te zorgen voor mensen die erg ziek zijn, volgens wat ze me hebben verteld … » zegt hij.

Hij slaagde erin goede rapporten te krijgen en huurde een van de beste advocaten van deze ziekte, geadviseerd door een vriend, in:  Javier León Iglesias, uit Zaragoza . Na meer dan ongeveer anderhalf jaar wachten, kwam de rechtszaak, voor de rechtszaak tegen het National Institute of Social Security en de General Treasury of Social Security

“Een paar maanden later,” voegt ze eraan toe, “heeft de rechter me een blijvende invaliditeit verleend. Het was een heel vreemd gevoel. Ik was heel blij omdat ze uiteindelijk begrepen hadden dat ik erg ziek was en nergens aan kon werken, maar tegelijkertijd was ik diep bedroefd om dat te beseffen. Zo jong, 42 jaar oud. Alle leven voor de boeg, maar wat voor leven. Ik heb twee pogingen tot autolyse ondergaan en als ik naar de toekomst kijk, zie ik alleen pijn, extreme vermoeidheid en meer pijn ».

«Ze vertelden me dat ik niet wilde werken»

Ze herinnert zich toen de dokters haar vertelden dat “alles in mijn hoofd zat, dat ik niet wilde werken, dat ik lui was en dat ik voor mijn kinderen zorgde . ” Nu gaat hij om hulp vragen die valt onder de afhankelijkheidswet en hij heeft ook de 33% handicap geëist die is erkend door de Junta de Andalucía. Maar hij wil vooral dat de mensen die in hun situatie worden weerspiegeld ‘vechten en niet de handdoek in de ring werpen’ om tenminste te bereiken dat hun handicap wordt erkend ».

«Mijn leven gaat vermoeid, ik slaap, maar ik sta op alsof ik niet heb geslapen. Maar ik heb mijn gezin, mijn 13 en 9-jarige kinderen die ik ook sta als ik in bed lig . Ik kan geen lichamelijke oefening doen, loop gewoon 15 minuten per dag en langzaam, of huis klusjes of zoiets. De zee ontspant me, hoewel ik niet kan baden omdat ik de temperatuurveranderingen niet kan verdragen, maar het ontspant me, “eindigt Teresa.

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