Ceux qui souffrent de la maladie sont empêchés d’effectuer des tâches quotidiennes près de 25%.
Au mois de la sensibilisation aux maladies rhumatismales, le député Livio Gutiérrez, a proposé que, selon le ministère de la Santé reconnaît dans notre province la fibromyalgie comme une maladie chronique, et d’établir une couverture pour les patients souffrant de cette maladie, selon Les avantages accordés par le projet de loi n ° 4150/16.
Le projet part du constat que, puisqu’il y a deux initiatives législatives antérieures sur ce sujet (3837/13 et 3855/15) et qui n’ont pas été abordées à ce jour, il est proposé d’élargir ces projets “est que nous considérons qu’il est absolument nécessaire présenter le traitement et discuter de ce projet de loi, car nous ne pouvons pas rester en dehors du besoin réel pour les personnes souffrant de cette maladie “, cite Gutiérrez.
La fibromyalgie est une affection également connue sous le nom de maladie silencieuse, de certains de ses symptômes, de douleurs chroniques dans les muscles, les articulations et les tendons. Ceux qui ont aussi des troubles du sommeil, une pensée désorganisée et même une dépression. Les symptômes qui ne sont pas identifiables, sauf pour la réduction de la masse cérébrale quand ils ne sont pas bien hydratés, de sorte que les personnes touchées souffrent de troubles du sommeil, la raideur matinale et d’autres conséquences de la douleur constante. Les experts en rhumatologie de l’histoire nationale reconnaissent qu’il existe encore de nombreux cas non diagnostiqués de fibromyalgie et que les chances de succès de tout traitement permettent de réduire l’absence d’un diagnostic précoce.
Un rapport sur la maladie et ses conséquences montre que les personnes souffrant de cette maladie sont empêchées d’accomplir les tâches quotidiennes de près de 25%, tandis que 60% des personnes affectées estiment que leur capacité a diminué de 60%.
Le législateur radical précise que «c’est un mal reconnu par de nombreux professionnels de la santé et encore plus par la société et les médias dans lesquels ces patients sont liés, y compris le travail et la famille. A cela s’ajoute le fait qu’une intolérance significative au stress physique et mental avec des handicaps cognitifs a un impact significatif sur la qualité de vie ”
L’extension des fondamentaux mentionne qu’en raison de ses caractéristiques, le traitement n’appartient pas seulement à un spécialiste, la façon dont une équipe multidisciplinaire devrait intervenir, composée de rhumatologues, de psychiatres, de psychologues, de cliniciens et de tout autre spécialiste pouvant aider à définir le diagnostic.
“L’importance des ordres pathologiques légifère en la matière, pour assurer la couverture des patients souffrant de cette maladie, à la fois dans les secteurs public et privé. La santé est un droit fondamental de tous les citoyens, de sorte qu’il est de la responsabilité de l’État d’assurer le plein exercice de donner la priorité aux citoyens dans «l’expansion» marginalisée et socialement vulnérable est la responsabilité de ce terme, la promotion, la protection et réparer la santé de ses habitants, afin d’assurer un plein état de bien-être physique, mental et social. ”
“Aujourd’hui le problème est de plus en plus visible, il est de notoriété publique que les revendications citoyennes sont faites partout dans le pays, pour la reconnaissance et pour la présentation d’une initiative parlementaire visant à couvrir cette maladie, malheureusement, de plus en plus commune” conclut Gutiérrez.
diagnostic
Il indique également dans ses articles que le diagnostic doit être fait par un médecin rhumatologue et une équipe interdisciplinaire qui comprend d’autres professionnels de la santé, tels que des psychiatres, des psychologues, des physiothérapeutes, des médecins et d’autres qui contribuent à tous les responsables de la conduite thérapeutique approprié, tel que déterminé par l’autorité d’exécution.
Une fois le diagnostic établi, le patient sans prestations de sécurité sociale aura accès à la livraison gratuite de médicaments immunomodulateurs spécifiques et / ou a été indiqué par un professionnel qualifié dans le cadre du ministère de la Santé de la province; la couverture étendue des traitements basés sur la neuroréadaptation interdisciplinaire sans points de rupture ou limites, selon la certification de l’assistant médical; Il couvre les traitements médicaux et pharmacologiques et les autres traitements jugés nécessaires dans chaque cas pour les personnes atteintes du syndrome de fibromyalgie, quel que soit leur âge.
Ils ont droit à tout ou partie des avantages établis conformément à la portée déterminée par le Règlement.
Pour moi,la maladie a été reconnu,il y a plus de quinze années.Mon employeur m’a accommodé pour plus de cinq ans afin que je puisse travailler le plus longtemps possible.A 53 ans,ma battaille pour demeurer sur le marcher à terminé.J’ai travaillé très fort pour faire comprendre ma souffrance au gouvernement pour recevoir une pension d’invalidité.Je l’ai gagné au troisième pallier en me présentant,non malade,mais non employable.Mon parcours d’accomodation de cédule au travail à prouvé ce point de vue.
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NON , ce n’est pas une maladie c’est un état d’être la fibromylagie !
Merci d’écrire en français .
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