Fibromyalgia is to be recognised by health professionals in Northern Ireland as a long-term condition.
People who suffer from it complain of aches all over the body, as well as profound fatigue.
Other symptoms include headaches, sleep deprivation and difficulty concentrating.
Despite the severity of symptoms, people living with the condition in NI have said their voices have gone unheard and their symptoms ignored.
Chronic aches
After being inundated with complaints, the Patient and Client Council in Northern Ireland three years ago pressed the case for fibromyalgia to be recognised as a long-term condition.
Having interviewed sufferers and lobbied politicians and health professionals, dedicated services are to be established across the health trusts.
Martina Marks, who lives in County Down, said it was a relief to be taken seriously.
“I have lived with the pain since 1997. At times it can be chronic, with aches in my muscles and joints,” she said.
“Often the pain is unbearable and then you have to contend with a sleep disorder, headaches and just not being able to deal with everyday life.”
‘All about pain’
Fibromyalgia has baffled health experts for decades. It does not show up on blood tests or scans and is often difficult to diagnose.
Kevin Davies, a professor of medicine at the University of Sussex and an expert in fibromyalgia, said: “People who present with problems will go for scans and blood tests, but nothing shows up as it is all about pain.
“But that doesn’t mean there isn’t a problem – it’s just the doctor can’t make a diagnosis of which he feels secure about.”
It is thought about one million people are living with the condition across the UK.
Fibromyalgia is recognised as a condition by NHS Choices in England and Scotland, meaning treatments should be available to patients.
However, in practice the availability of services is patchy as not all health trusts have the resources to target the condition specifically.
While there is no specific figure for Northern Ireland, it is thought around one in 25 may be coping with symptoms – a majority of them undiagnosed.
Louise Skelly, director of operations at the Patient and Client Council, said: “What we are surprised about is how many patients have come forward, wanting to share their stories.
“They felt very isolated and very alone and what we also discovered is that the clinicians also have found this a difficult area to work in so they have welcomed the sharing of knowledge and information.”
Concerns taken seriously
Its recognition as a condition will raise awareness of it among the public, but also among health professionals.
Once diagnosed, patients will receive a “pathway” that will outline what services are available including medication or advice around exercise and alternative therapies.
Louise Skelly said fibromyalgia sufferers felt very isolated
According to patients, the biggest breakthrough is having their concerns taken seriously.
Martina Marks was not diagnosed for 10 years.
“It was a very long journey. I hadn’t heard of it and neither had my GP,” she said.
“It was important that I got a diagnosis, because I’d been going through different treatments, seeing different doctors and nothing was giving me relief.
“Some of them don’t understand the illness and I think we need an awareness campaign for the medical profession to understand the variety of symptoms with fibromyalgia and the severity of it.”
While there is no cure for the condition, there is evidence that lifestyle changes including relaxation, heat, exercise and diet can make a difference.
Severe cases will be treated with medication.
What’s up, after reading this awesome piece https://php665.com/
What’s up, after reading this awesome piece https://php665.com/
It works very well for me
With thanks! Valuable information!
Black on black in the Charg I’m creepin’ Rub me the right way, you might get a genie B.o.B, black Houdini
I?m impressed, I must say. Really rarely do I encounter a blog that?s both educative and entertaining, and let me tell you, you have hit the nail on the head. Your idea is outstanding; the issue is something that not enough people are speaking intelligently about. I am very happy that I stumbled across this in my search for something relating to this.
Thanks, it is very informative
Magnificent items from you, man. I have take into account your stuff prior to and you are just too wonderful. I actually like what you have obtained right here, really like what you are stating and the way in which by which you are saying it. You are making it entertaining and you still care for to keep it sensible. I cant wait to read much more from you. That is actually a great web site.
Whats up this is kinda of off topic but I was wanting to know if blogs use WYSIWYG editors or if you have to manually code with HTML. I’m starting a blog soon but have no coding expertise so I wanted to get advice from someone with experience. Any help would be greatly appreciated!
I got this website from my buddy who informed me on the
topic of this site and now this time I am browsing this web site and reading very informative posts at this time.
Howdy! Someone in my Facebook group shared this site with us so I
came to take a look. I’m definitely loving the information. I’m bookmarking and will be tweeting this to my followers!
Fantastic blog and superb design and style.
Hello mates, how is everything, and what you desire to
say on the topic of this post, in my view its truly remarkable in support of me.
Consider investments that provide fast annuities.
I always emailed this web site post page to all my associates, for the reason that if
like to read it after that my contacts will too.
Thanks , I’ve recently been looking for information about
this topic for a while and yours is the greatest I’ve discovered
so far. But, what about the bottom line? Are you certain in regards to the supply?
It is actually a great and helpful piece of information. I’m glad that you just shared this useful info with us.
Please keep us informed like this. Thank you for sharing.
I was suggested this blog by means of my cousin. I’m now not sure whether this post is
written by means of him as nobody else recognize such targeted about my problem.
You are wonderful! Thank you!
Thanks for sharing your thoughts on ig. Regards
I do agree with all of the ideas you have introduced in your post.
They’re very convincing and can definitely work.
Still, the posts are very short for novices. May you please lengthen them
a bit from subsequent time? Thank you for the post.
Hello there! This is my first visit to your blog! We are a collection of volunteers and starting
a new initiative in a community in the same
niche. Your blog provided us valuable information to work on. You have done a marvellous job!
I really like it when individuals come together and share views.
Great blog, continue the good work!
Wow that was odd. I just wrote an really long comment
but after I clicked submit my comment didn’t appear.
Grrrr… well I’m not writing all that over again. Anyway, just wanted
to say fantastic blog!
If some one wishes expert view concerning running a blog then i
suggest him/her to visit this webpage, Keep up the fastidious job.
Hi there! Do you use Twitter? I’d like to follow you if that would be okay.
I’m definitely enjoying your blog and look forward to
new updates.
After looking at a few of the articles on your site,
I seriously like your technique of blogging. I saved as a favorite
it to my bookmark website list and will be checking back
in the near future. Please visit my web site too and tell me what you think.
After looking into a number of the blog articles on your web page, I seriously like your way of
writing a blog. I book marked it to my bookmark website list
and will be checking back in the near future.
Please check out my web site too and let me know how you feel.
I like what you guys are up too. This type of clever work
and coverage! Keep up the wonderful works guys I’ve incorporated you guys to my personal blogroll.
That is true for investment recommendation as nicely.
Thanks for sharing your thoughts about ig. Regards
Buyers do pay direct and oblique costs.
I know this if off topic but I’m looking into starting my own weblog
and was curious what all is needed to get setup? I’m assuming having a blog
like yours would cost a pretty penny? I’m not very internet savvy so I’m not 100% certain. Any tips or
advice would be greatly appreciated. Cheers
Remarkable! Its genuinely awesome post, I have got much clear
idea on the topic of from this piece of writing.
Woah! I’m really loving the template/theme of this site.
It’s simple, yet effective. A lot of times it’s
difficult to get that “perfect balance” between usability
and appearance. I must say you’ve done a awesome job with this.
In addition, the blog loads super fast for me on Opera.
Exceptional Blog!
Greetings! Very useful advice in this particular post! It’s the little changes which will make the most important changes.
Thanks for sharing!
Thank you to your interest in Funding Advice.
Financial advisors business is folks enterprise.
I am sure this piece of writing has touched all the internet people,
its really really fastidious post on building up new weblog.
I’m truly enjoying the design and layout of your site.
It’s a very easy on the eyes which makes it much more
pleasant for me to come here and visit more often. Did you hire out a designer to create your
theme? Great work!
I know this if off topic but I’m looking into starting my own weblog and was wondering what all is required to get setup?
I’m assuming having a blog like yours would cost a pretty penny?
I’m not very internet smart so I’m not 100% sure. Any tips or advice would be greatly appreciated.
Thanks
Heya! I’m at work surfing around your blog from my new
apple iphone! Just wanted to say I love reading your blog and look forward to all
your posts! Keep up the excellent work!
I was able to find good info from your blog posts.
Very nice post. I simply stumbled upon your weblog
and wanted to mention that I’ve really enjoyed browsing your weblog
posts. After all I’ll be subscribing for your rss feed and I hope
you write once more soon!
Financial advisors business is individuals business.
Very energetic blog, I liked that bit. Will
there be a part 2?
This is my first time go to see at here and i am genuinely
pleassant to read all at alone place.
Wow! After all I got a web site from where I be able
to truly take useful data regarding my study and knowledge.
Very nice post. I just stumbled upon your weblog
and wished to say that I have really enjoyed surfing around your blog posts.
After all I’ll be subscribing to your rss feed and I hope you
write again soon!
Yes! Finally someone writes about ig.
Hi i am kavin, its my first time to commenting anyplace, when i read
this paragraph i thought i could also create comment due to this
good post.
Hi this is kinda of off topic but I was wanting to know if blogs use WYSIWYG editors or if you have to manually code with HTML.
I’m starting a blog soon but have no coding expertise so I wanted to get guidance from someone with experience.
Any help would be enormously appreciated!
All types of investments come with sure dangers.
It’s appropriate time to make some plans for the future and it is time
to be happy. I’ve read this post and if I could I want to suggest you some interesting things or tips.
Perhaps you can write next articles referring to this article.
I wish to read even more things about it!
Schwab Clever Portfolios invests in Schwab ETFs.
Hey there! I know this is somewhat off topic but I was
wondering which blog platform are you using for this website?
I’m getting tired of WordPress because I’ve had
problems with hackers and I’m looking at alternatives for another platform.
I would be great if you could point me in the direction of
a good platform.
And that is an funding risk value taking.
That is true for funding advice as effectively.
Aw, this was a very good post. Finding the time and
actual effort to generate a top notch article… but what can I
say… I put things off a lot and never seem to get anything done.
Hi mates, how is everything, and what you wish for to say on the
topic of this paragraph, in my view its actually remarkable in support of me.
A financial advisor is your planning companion.
I’m very happy to discover this web site. I need to to thank you for ones time for this particularly wonderful read!!
I definitely enjoyed every bit of it and I have you book marked to see new things in your blog.
Think about investments that supply quick annuities.
Schwab Intelligent Portfolios invests in Schwab ETFs.
I like the helpful info you provide in your articles.
I will bookmark your weblog and check again here regularly.
I am quite certain I’ll learn many new stuff right here!
Good luck for the next!
There’s certainly a lot to learn about this
topic. I like all of the points you’ve made.
Excellent website. Lots of helpful information here. I am sending it to some friends ans additionally sharing in delicious.
And of course, thank you to your effort!
Thanks for your interest in Funding Advice.
And that is an funding danger price taking.
Financial advisors enterprise is folks enterprise.
Thanks in your interest in Investment Advice.
Spot on with this write-up, I seriously believe that this
amazing site needs much more attention. I’ll probably be
returning to see more, thanks for the advice!
Hey! I realize this is somewhat off-topic however I needed to ask.
Does operating a well-established blog such as yours take a massive amount work?
I’m completely new to writing a blog but I do write in my diary
daily. I’d like to start a blog so I can easily share my
personal experience and views online. Please let me know if you
have any recommendations or tips for brand new aspiring bloggers.
Thankyou!
Yes! Finally someone writes about ig.
Greetings! Quick question that’s entirely off topic. Do you know how to make your site mobile friendly?
My web site looks weird when viewing from my iphone 4.
I’m trying to find a template or plugin that might
be able to resolve this problem. If you have any recommendations,
please share. Thank you!
Hi there! I’m at work surfing around your blog from my new iphone!
Just wanted to say I love reading your blog and look forward to all your posts!
Carry on the fantastic work!
Why visitors still make use of to read news papers when in this
technological world the whole thing is accessible on net?
If some one wishes to be updated with hottest technologies therefore
he must be pay a quick visit this website
and be up to date every day.
Keep this going please, great job!
Hello mates, how is the whole thing, and what you would like to say on the
topic of this post, in my view its actually amazing for me.
Yes! Finally someone writes about ig.
Great delivery. Great arguments. Keep up the amazing spirit.
Hello my friend! I wish to say that this article is amazing, nice written and include approximately all important infos.
I would like to peer more posts like this .
I believe everything published made a lot of sense.
However, what about this? suppose you added a little information? I mean, I
don’t wish to tell you how to run your website, however suppose
you added something that grabbed a person’s attention? I mean Finally Fibromyalgia to be Recognised as Long-Term Condition – HEALTHY LIVING AT HOME is kinda plain. You should peek at
Yahoo’s front page and see how they create news titles to grab viewers interested.
You might add a related video or a pic or two to get people interested about everything’ve got to say.
In my opinion, it would make your website a little bit more interesting.
You could definitely see your enthusiasm in the article
you write. The sector hopes for more passionate writers like you who aren’t afraid to
mention how they believe. All the time follow your heart.
I will right away snatch your rss as I can’t
in finding your e-mail subscription link or e-newsletter service.
Do you have any? Please allow me realize so that I could subscribe.
Thanks.
Hello there! Do you know if they make any plugins to safeguard against hackers?
I’m kinda paranoid about losing everything I’ve worked
hard on. Any recommendations?
Do you have a spam problem on this blog; I also am a blogger, and I was curious about your situation; we have created some nice procedures and
we are looking to exchange methods with others, please shoot me an e-mail if interested.
Hi there to every one, the contents existing at this site are genuinely
awesome for people knowledge, well, keep up the good work
fellows.
Monetary advisors business is people business.
Excellent blog here! Also your site loads
up fast! What web host are you using? Can I get your affiliate link to your host?
I wish my site loaded up as quickly as yours lol
Wow, that’s what I was searching for, what
a data! existing here at this website, thanks admin of this web page.
This is a great tip especially to those new to the blogosphere.
Brief but very accurate info… Thanks for sharing this one.
A must read article!
A monetary advisor is your planning companion.
Having read this I thought it was rather informative.
I appreciate you finding the time and energy to put this information together.
I once again find myself personally spending a lot of time both reading and leaving comments.
But so what, it was still worthwhile!
You are so interesting! I do not suppose I’ve read through a
single thing like that before. So good to discover somebody with
genuine thoughts on this issue. Really.. thanks for starting
this up. This web site is something that is needed on the internet, someone with a bit of originality!
Hello, Neat post. There’s a problem together with your
site in internet explorer, would check this? IE still
is the marketplace leader and a large element of folks will omit
your wonderful writing because of this problem.
Oh my goodness! Incredible article dude! Thank you, However I am going through troubles with your RSS.
I don’t know why I can’t subscribe to it.
Is there anyone else having the same RSS problems? Anybody who
knows the answer will you kindly respond? Thanx!!
Great blog! Do you have any tips for aspiring writers? I’m planning to start my
own site soon but I’m a little lost on everything.
Would you recommend starting with a free platform like WordPress
or go for a paid option? There are so many options out there
that I’m totally overwhelmed .. Any recommendations? Cheers!
If some one needs to be updated with newest technologies
afterward he must be visit this website and be up to
date everyday.
Financial advisors enterprise is people business.
Monetary advisors business is individuals business.
Thank you on your curiosity in Investment Recommendation.
Now it’s time to choose your specific investments.
Now it’s time to pick your particular investments.
It’s a pity you don’t have a donate button! I’d
most certainly donate to this excellent blog!
I guess for now i’ll settle for bookmarking and adding your RSS feed to my Google account.
I look forward to brand new updates and will talk about this
blog with my Facebook group. Talk soon!
Howdy just wanted to give you a quick heads up.
The words in your post seem to be running off the screen in Chrome.
I’m not sure if this is a format issue or something to do
with browser compatibility but I figured I’d post to let you know.
The design look great though! Hope you get the problem resolved soon. Thanks
I love it when individuals get together and share opinions.
Great blog, continue the good work!
Hey There. I found your blog using msn. This is a very
well written article. I will make sure to bookmark it
and come back to read more of your useful info. Thanks for the post.
I will definitely comeback.
Hmm is anyone else experiencing problems with the images on this blog loading?
I’m trying to determine if its a problem on my end or if it’s the blog.
Any suggestions would be greatly appreciated.
I’m not that much of a internet reader to be honest
but your sites really nice, keep it up! I’ll go ahead
and bookmark your website to come back in the future.
Cheers
Woah! I’m really digging the template/theme of this site.
It’s simple, yet effective. A lot of times it’s
very hard to get that “perfect balance” between superb usability and appearance.
I must say that you’ve done a awesome job with this.
Also, the blog loads extremely fast for me on Firefox.
Outstanding Blog!
Hey there! Someone in my Myspace group shared this website
with us so I came to take a look. I’m definitely enjoying
the information. I’m book-marking and will be tweeting this to my followers!
Wonderful blog and brilliant style and design.
I don’t even understand how I ended up here, but I thought this put
up was good. I do not know who you are but definitely
you are going to a famous blogger for those who are not already.
Cheers!
I have to thank you for the efforts you have put in writing this site.
I’m hoping to see the same high-grade content by you in the future as well.
In fact, your creative writing abilities has inspired me to
get my very own site now 😉
After looking into a handful of the blog posts on your site, I seriously like
your way of writing a blog. I book marked it to my bookmark site list and will be checking back soon. Please check out my
web site as well and tell me what you think. natalielise plenty of fish
It’s hard to find educated people for this subject, however, you seem like you know what
you’re talking about! Thanks
I do not even know how I finished up here, however I thought this publish was great.
I do not know who you might be however definitely you are
going to a famous blogger when you aren’t already.
Cheers!
When I initially commented I appear to have clicked the -Notify me when new comments are
added- checkbox and from now on every time a comment is added I get four emails with the exact same comment.
Perhaps there is an easy method you can remove me from
that service? Thank you!
I’m not that much of a online reader to be honest but your blogs really nice, keep it up!
I’ll go ahead and bookmark your site to come back later.
Many thanks
Just desire to say your article is as astonishing. The clearness in your post is simply nice and i can assume you’re an expert on this
subject. Fine with your permission allow me to grab
your RSS feed to keep up to date with forthcoming post.
Thanks a million and please carry on the gratifying work.
They are certified arborists and staff are insured.
I need services for my industrial property.
They offer pruning, shaping, cabling and tree care.
A tree care service can help to get this handled.
Hi, i think that i noticed you visited my blog thus i came to go back the want?.I’m attempting to in finding issues to improve my site!I guess its ok to make use of some of your
concepts!!
I’ve been exploring for a little for any high quality articles or weblog posts
on this kind of house . Exploring in Yahoo I finally stumbled upon this website.
Reading this info So i’m happy to exhibit that I’ve a very good
uncanny feeling I discovered exactly what I needed.
I such a lot no doubt will make sure to do not omit this website and give it a
look regularly.
My partner and I absolutely love your blog and find almost
all of your post’s to be precisely what I’m looking for.
Do you offer guest writers to write content to suit your
needs? I wouldn’t mind producing a post or elaborating on many of the subjects you write
related to here. Again, awesome site!
Hi there, I found your site by the use of Google even as looking for a related topic, your site got here up,
it looks good. I have bookmarked it in my google bookmarks.
Hello there, just become alert to your weblog through Google, and located that it’s truly informative.
I’m going to watch out for brussels. I will be grateful
in case you proceed this in future. Numerous folks
shall be benefited from your writing. Cheers!
I am no longer sure where you are getting your
info, however good topic. I must spend some time studying much more or figuring out more.
Thanks for great information I used to be
looking for this information for my mission.
Hello! I could have sworn I’ve been to this blog before but after browsing through some of the post I realized it’s new to me.
Anyhow, I’m definitely delighted I found it and I’ll be book-marking and checking back often!
Keep on working, great job!
My brother recommended I may like this web site. He was entirely
right. This publish actually made my day. You can not imagine simply how much time I had spent
for this info! Thank you!
When I initially left a comment I appear to have clicked on the -Notify
me when new comments are added- checkbox and from now on every
time a comment is added I get 4 emails with the same comment.
Is there a way you can remove me from that service? Thanks a lot!
Appreciating the time and effort you put into your blog and in depth
information you offer. It’s awesome to come across a
blog every once in a while that isn’t the same out of date
rehashed material. Excellent read! I’ve bookmarked
your site and I’m including your RSS feeds to my Google account.
These are genuinely impressive ideas in about blogging. You have touched some pleasant factors here.
Any way keep up wrinting.
Everything is very open with a clear clarification of the issues.
It was really informative. Your site is very useful.
Many thanks for sharing!
Hello, this weekend is pleasant designed for me, as this point in time i am reading this enormous informative article
here at my house.
Stunning quest there. What happened after? Good luck!
They permit you to play and have enjoyable without betting too high and not enjoying the game. Each nation has the credit of originating figures of video games and sports each indoor and outside.