Fibromyalgie bringt mich langsam um. Nimm teil an mir, meiner Kraft, meinem Stolz und meiner Seele.
Die Diagnose Fibromyalgie ist die Todesstrafe, also war es einmal ein normales Leben. Ich lebe seit sieben Jahren damit und bin nicht fertig mit dem, was ich geplant hatte. Ich sollte mich jetzt darauf vorbereiten, ein Jahr im Ausland zu studieren. Ich sollte fließend in einer anderen Sprache sprechen. Nachdem ich die Nacht mit Freunden verbracht hatte, sollte ich jeden Sonntag einen Kater haben, stattdessen bleibe ich den ganzen Tag und jeden Tag im Bett. Oder ich bleibe auf der Couch. Ich gehe zu einem anderen Haus und liege auf seinem Bett oder auf seiner Couch. Fibromyalgie ist ein vereidigter, eifersüchtiger Feind.
Er ist immer da, um mich zu besiegen. Es ist wie der Bösewicht in einem alten Stummfilm. Anstatt zu wissen, dass der Bösewicht da ist und der Protagonist es nicht erkennt, bin ich in diesem Fall der einzige, der es sehen kann und mein Publikum ist blind.
Es ist, als ob meine körperliche und emotionale Stärke aus kleinen Explosionen bestand. Jedes Missgeschick nimmt dir einen weg. Ich weiß nicht, wie lange es dauern wird, bis alles in mir zusammenbricht. Die Fibromyalgie hat die Fundamente beseitigt, die ich seit mehr als zwanzig Jahren aufgebaut habe und mein ganzes Leben gelebt habe. Ich fühle mich wie ein Jenga-Spiel . Jedes Mal, wenn Fibromyalgie mich trifft, mache ich einen weiteren Schritt, um zu Boden zu fallen. Vielleicht bin ich schon abgestürzt und habe getroffen. Vielleicht bin ich im Hintergrund. Wenn ich nicht wüsste, wie dieser Zustand war, würde ich sagen, er ist wahrscheinlich da. Ich denke es könnte das niedrigste sein. Ich konnte die heftigsten Schmerzen spüren, die ich hatte, und meine Fibromyalgie hält es für eine Herausforderung, weil ich weiß, dass es beim nächsten Mal schlimmer werden wird. Einige Ausbrüche sind besser als andere, aber sie testen meine körperliche und emotionale Stärke mehr, als ich mir je hätte vorstellen können. Fibromyalgie ist keine imaginäre Ausrede, ich hätte dieses Leben niemals für mich gewählt, und wenn ich die Möglichkeit hätte, den Dämon, der mich unterstützt, loszuwerden, würde ich es ohne zu zögern tun. Das ist mein Leben. Es ist wirklich. Ich bin und werde zu jedem Zeitpunkt des Tages mit mir sein, für den Rest meines Lebens. Der Teufel flüsterte mir gestern ins Ohr: “Du bist nicht stark genug, um dem Sturm standzuhalten.” Heute flüsterte ich dem Teufel ins Ohr: “Ich bin der Sturm” . Ich bin ein Krieger der Fibromyalgie. Jessica stredd pudicombe
Es gibt auch Nächte wie diese, in denen ich mich verloren fühle. Verloren in den Emotionen, in den Gedanken, in den Schmerzen und in dem was kommt. Wir verstehen perfekt das Auf und Ab unserer Gefühle, glücklich für eine Minute, dann wütend, dann traurig, dann nervös, usw. usw. Es ist eine Achterbahn von Höhen und Tiefen. Fügen Sie andere chronische Krankheiten hinzu und es ist die Hölle! Mann, Frau, die Last chronischer Krankheiten lässt unsere Welt zusammenbrechen. Manchmal haben wir das Gefühl, dass die Dinge unter Kontrolle sind. Wir sind uns mit unserer Realität einig, wir wissen, dass die Dinge nie so sein werden wie zuvor, und wir passen uns an und lernen zu leben, was unser Leben geworden ist. Aber manchmal, manchmal öffnet sich die Realität des Kommens und triumphiert über unser Leben. Wir wissen, dass unser Leben, wie wir es wussten, nie wieder dasselbe sein wird.
Das Leben, das wir einst genossen haben, wurde durch diese perverse Kraft zerstört, die bestimmt, was wir tun und was wir nicht tun können. Es gibt gute und schlechte Tage, Höhen und Tiefen, Höhen und Tiefen. Wir schauten und planten die Zukunft oder lebten in der Gegenwart mit denen, die wir lieben. Woraus besteht es nun? Auf keinen Fall! Die Pläne, die wir mit Freunden gemacht haben, ist vielleicht ein anderes Mal. Nun, die Party mit unserer Familie wird mich grüßen. Planen ist wie jedes Spiel auf der Messe, es ist nicht vorhersehbar. Wir möchten mehr als alles andere Teil der Pläne sein, die entwickelt wurden, aber wir können nichts garantieren. Wir möchten wirklich Teil dessen sein, was unsere Familien tun. Wir möchten Pläne machen und ihnen folgen können. Wir wollen arbeiten, wir wollen gehen, wir wollen Teil der Welt sein, in die wir einst involviert waren. Manchmal müssen wir nein sagen
Wir können heute nicht nein sagen. Andere Male sagen wir ja, wir werden mit den Plänen fortfahren, wir versuchen, Teil des Lebens zu sein, zumindest können wir zumindest so tun, als ob es Spaß gemacht hätte, es war großartig, es zu verlassen. Aber morgen kommt es. Unsere Körper sagen, dass Sie gedacht haben? Das Leben, das wir kannten, unterschied sich sehr von dem, was wir dachten. Wir versuchen wirklich, ein bestimmtes Erscheinungsbild von dem zu behalten, was wir für möglich halten. Aber niemand ist auf das Leben, das wir leben, vorbereitet. Wir werden weiter versuchen, die von uns aufgestellten Pläne aufrechtzuerhalten, aber bitte ärgern Sie sich nicht und beurteilen Sie nicht, ob sie sich ändern. Wir haben jedoch Schwierigkeiten, ein “normales” Leben zu führen, das zurückgezogen wurde. Was haben wir noch? Jetzt können wir nur noch positiv, demütig und vor allem geduldig mit uns selbst sein.
Nehmen Sie sich Zeit für uns, nehmen Sie sich Zeit, mit uns zu trauern, nehmen Sie sich Zeit zum Nachdenken, nehmen Sie sich Zeit, um mit uns zu lernen, was unsere neue Normalität ist. Und am wichtigsten, nehmen Sie sich eine Minute Zeit, um sich auf uns zu konzentrieren, was für uns funktioniert und was uns glücklich macht. Lerne, dieses neue Leben zu leben, lerne zu schätzen, was wir jeden Tag noch leben und lieben können. Nehmen Sie es einen Tag nach dem anderen, leben Sie von Tag zu Tag, von Stunde zu Stunde oder von Minute zu Minute. Lernen Sie zu schätzen, was wir jeden Tag noch leben und lieben können. Nehmen Sie es einen Tag nach dem anderen, leben Sie von Tag zu Tag, von Stunde zu Stunde oder von Minute zu Minute. Lernen Sie zu schätzen, was wir jeden Tag noch leben und lieben können.
Umfassen Sie, was Sie haben und lernen Sie, das Leben zu leben und zu lieben, wie Sie können!
Danke fürs Lesen!
Teilen, verteilen!
Schwab Intelligent Portfolios invests in Schwab ETFs.
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