De nombreux gènes ont été identifiés au cours des cinq dernières années qui peuvent être responsables de déséquilibre neurotransmetteur chez les personnes atteintes de fibromyalgie.
Quand quelqu’un nous dit qu’ils ont une maladie chronique, nous (peut – être inconsciemment) a commencé à chercher des « signes » que la personne a un problème médical ou non se sentir bien. Comme pour de nombreux problèmes de santé et des incapacités, la fibromyalgie n’a aucun symptôme nécessairement quelqu’un remarqueraient.
Dans des conditions comme l’arthrose, les médecins peuvent voir les dommages internes avec des tests tels que X-ray Fibromyalgie ne modifie pas l’apparence du corps interne et professionnels de la santé souvent diagnostiquer cette condition basée sur la douleur généralisée et d’autres symptômes dans le corps.
Est-ce que la fibromyalgie a tout visible pour d’autres symptômes?
Extérieurement, la plupart des personnes atteintes de fibromyalgie sont « normaux ». Les personnes atteintes de cette condition trouvent cela frustrant parce que parfois le sentiment que diminue la légitimité de leur maladie; Ils peuvent trouver aussi comme une bénédiction, car ils semblent modérément en bonne santé.
Actrice AJ Langer, qui a interviewé pour Maux et gains sur leurs luttes et leur succès final avec la fibromyalgie, m’a dit qu’il était à l’hôpital presque tous les week-end pour une période de temps pour les symptômes de la fibromyalgie et la douleur principalement. AJ dit que personne ne connaissait sa performance de travail de son état: fixerait ses cheveux et le maquillage, qu’elle appelait son masque.
En termes de « test » la profondeur de la douleur ressentie par les personnes atteintes de fibromyalgie, AJ a partagé que son masseuse a dit qu’il valait mieux.
« Si quelqu’un remet en question la fibromyalgie, tout ce que vous avez à faire est de mettre mes mains sur quelqu’un qui le fait. » Le thérapeute fait référence à un épaississement et le durcissement du fascia autour des muscles, ce qui entrave le mouvement des muscles. , Causant la raideur et la douleur profonde, deux caractéristiques principales de cette condition douloureuse.
Comme nous l’avons mentionné dans notre dernier blog, l’expert dans la fibromyalgie Université du Michigan, le Dr Daniel Clauw, a dit la douleur de la fibromyalgie peut être causée par un déséquilibre des neurotransmetteurs qui conduit à une non contrôlée « réglage du volume », qui cela signifie que le seuil de la douleur du corps du système nerveux est très faible
Le traitement de la fibromyalgie
Comme de nombreux patients atteints de fibromyalgie, AJ a constaté qu’une combinaison de médicaments, l’exercice et les traitements alternatifs était la meilleure façon de contrôler votre douleur et vous aider à reprendre le contrôle de votre vie.
« Lorsque vous arrivez à un point où vous battre et votre corps ne fonctionne pas et il semble impossible de prendre soin de vous, vous avez parfois besoin du soutien de médicaments pour surmonter la barrière. »
AJ dijo que toma una “dosis para bebés” de Cymbalta (duloxetina), que es un antidepresivo usado para el tratamiento de la fibromialgia. Este medicamento junto con Lyrica (pregabalina) y Savella (milnacipran) están aprobados por la FDA para tratar esta afección. Además, comenzó a explorar actividades que la hicieron feliz y la distrajo del dolor: comenzó a surfear más y más, y notó que algo sobre el agua la hacía sentir bien, al igual que las caminatas suaves y las clases de yoga de curación. Los pacientes míos se han beneficiado del ejercicio, la terapia cognitiva conductual y la acupuntura también.
Aunque AJ dijo que todavía siente dolor, especialmente en el cuello y la espalda, estas prácticas que adoptó la calman mental y físicamente, permitiéndole vivir su vida más plenamente.
J’ai demandé AJ ce qu’il avait appris à être dans ce lieu d’impuissance quand il était à son pire.
« Il enseigne un niveau de compassion pour toute autre personne sur cette terre d’une manière que les gens qui n’ont pas connu la douleur ne sont pas en mesure de le faire », at-il dit.
Puissant, un site dédié à l’amélioration de la vie des personnes confrontées à des maladies, troubles et handicaps, a récemment publié un article sur une femme qui dit que les gens réagissent souvent avec incrédulité quand elle dit qu’elle a une condition médicale sérieuse parce qu’il est ” invisible ».
La femme a posté une photo sur Facebook de quelqu’un a laissé une note dans sa voiture, en réponse à la bannière désactivée sur votre carte. La note disait: “FAKER”. Maintenant, elle encourage les autres à partager leur message « dans l’espoir que les gens devinant ceux qui » ne semblons pas désactivé « va le voir et d’avoir un changement d’esprit ».
Dans cet article BuzzFeed, quelqu’un qui lutte contre la maladie de Lyme chronique décrit comment il est quand personne ne croit que vous êtes malade. Cette femme a été diagnostiqué avec la maladie de Lyme en Août 2014, après être malade pendant deux ans et demi et la visite 13 médecins.
liens à l’information sur les traitements de la fibromyalgie et d’autres de la douleur comprennent:
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