Fibromyalgie: la douleur que la société ne voit pas ou ne comprend pas

La fibromyalgie a été reconnue comme maladie par l’Organisation mondiale de la santé (OMS) en 1992. Aujourd’hui, la  fibromyalgie touche 4% de la population  et la plupart, près de 90%, sont des femmes.

Elle est connue sous le nom de “maladie invisible” car elle affecte toutes les parties molles du système locomoteur et ne peut pas être facilement diagnostiquée par des tests médicaux. La fibromyalgie ne se voit pas, ne laisse pas de traces sur la peau et ne provoque pas de blessures que d’autres peuvent voir  pour l’identifier. C’est une douleur solitaire et exaspérante.

La fibromyalgie est très dure: je ne sais pas comment je vais me réveiller aujourd’hui, si je peux bouger, si je peux rire ou si je veux juste pleurer … Ce que je sais, c’est que je ne prétends pas: je souffre d’une maladie chronique

À l’heure actuelle, l’étiologie de cette maladie est encore inconnue . Cependant, nous savons que chaque année, de plus en plus de personnes sont diagnostiquées, cherchant ainsi à donner une intervention aussi globale que possible, notamment en ce qui concerne l’aspect biopsychosocial.

C’est pourquoi, aujourd’hui, dans notre espace, nous souhaitons vous donner quelques directives de base afin que vous puissiez affronter la maladie avec force et améliorer votre qualité de vie autant que possible.

femme avec des papillons dans le dos

Fibromyalgie: la vraie maladie qui ne peut être vue

Quand une personne ne peut pas sortir du lit parce qu’elle a le sentiment que les «aiguilles brûlantes» lui font mal aux articulations, elle ne fait pas semblant et ne cherche pas une excuse pour ne pas aller au travail.

Ceux qui souffrent de fibromyalgie doivent ajouter leur propre maladie d’incompréhension sociale , avec le sentiment d’être invisible dans un monde qui ne croit que ce qu’ils voient.

Le principal problème de la fibromyalgie est dans la controverse de savoir si son origine est psychologique ou organique.  Telles seraient les principales conclusions que les experts indiquent:

Origine possible de la fibromyalgie

Il est nécessaire de préciser d’abord qu’il  n’existe aucune preuve médicale établissant un  lien entre la fibromyalgie et une maladie psychiatrique .

  • Certains auteurs affirment qu’environ 47% des patients souffrent d’anxiété. Cependant, nous devons également garder à l’esprit que cette dimension psychologique peut être une réponse à sa douleur, à sa  propre maladie.
  • Selon une étude publiée dans la revue ” Arthritis & Rheumatology “, les  personnes souffrant de fibromyalgie présentent une hypersensibilité accrue à la stimulation sensorielle quotidienne.
  • En utilisant l’imagerie par résonance magnétique, les chercheurs ont découvert qu’en présence d’un stimulus visuel, tactile, olfactif ou auditif,  les régions d’intégration sensorielle dans le cerveau subissaient une stimulation excessive supérieure à la normale .
  • Les personnes atteintes de fibromyalgie ont  un plus grand nombre de fibres nerveuses sensorielles dans leurs vaisseaux sanguins , de sorte que tout stimulus ou changement de température entraîne une douleur intense.
douleur dans la fibromyalgie

Il convient de garder à l’esprit que  tout facteur émotionnel augmentera la sensation de douleur  dans les fibres nerveuses. Une situation de stress spécifique entraînera une surstimulation et une douleur et, à son tour, une sensation de douleur et une fatigue chronique conduiront le patient à un sentiment d’impuissance et même à une dépression.

Nous tombons donc dans un cercle vicieux où une maladie d’origine organique est aggravée par le facteur psychologique. Par conséquent, il  est utile de contrôler la dimension émotionnelle pour atténuer ou au moins “contrôler” l’origine étiologique.

La dépression, la maladie de l'âme

Stratégies psychologiques pour traiter la fibromyalgie

La douleur chronique fait partie de notre réalité sociale, la fibromyalgie étant l’une de ses principales causes.  Maintenant que nous savons que des facteurs tels que le  stress  ou la tristesse augmenteront le sentiment de souffrance, il est important de mettre en place une stratégie d’adaptation de base qui puisse nous aider.

Aujourd’hui, vous vous êtes levé, vous vous êtes habillé et vous avez pu sortir dans la rue. Personne d’autre ne comprendra ce que vous avez accompli, mais ces petits succès sont importants pour vous et doivent vous donner la force: vous pouvez être plus fort que votre maladie

femme rétrécie avec des papillons

5 clés pour une meilleure qualité de vie

Tout d’abord, nous devons être clairs sur le fait que les mêmes dimensions ne vont pas nous servir tous.  Vous devez trouver ces stratégies qui fonctionnent bien pour vous en fonction de vos particularités et de vos besoins. Pour ce faire, essayez de choisir vous-même ceux qui vous procurent le plus grand soulagement.

  • Comprenez votre maladie Cela implique d’être en contact avec des spécialistes, des médecins et des psychologues. Nous avons besoin de traitements multidisciplinaires et chacun vous donnera toutes les connaissances sur cette maladie pour que vous “compreniez” votre ennemi. De cette façon, vous serez plus en sécurité et prévenu.
  • Établissez une attitude positive dans votre vie. Nous savons que ce n’est pas simple, mais  au lieu de réagir à la douleur, il est préférable de l’accepter et de la traiter, de ne pas être  déprimé .  N’hésitez pas à parler à des personnes qui souffrent de la même façon que vous, ne vous isolez pas et ne gardez pas rancune envers ceux qui vous entourent.
  • Recherchez des activités qui vous permettent de faire face au stress et à l’anxiété : il existe des techniques de relaxation très appropriées qui peuvent vous aider. Le  yoga , quant à lui, peut aussi être très bénéfique.
  • Ne perdez jamais le contrôle de votre vie, ne laissez pas la douleur vous contrôler . Pour cela, il instaure des moments de loisirs quotidiens, aussi petits soient-ils. Allez vous promener et n’évitez pas les contacts sociaux.
  • Adressez-vous à vos émotions, à vos pensées et à votre langage. Ce que nous pensons et ressentons a une influence directe sur la maladie. Si nous disons des phrases telles que “je ne pourrai pas me lever”, “cela n’a pas de solution” ou “je n’ai pas de force”, vous augmenterez vos souffrances.

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