Es ist nie gut zu sagen, “meine Krankheit ist schlimmer als deine” oder “ich fühle mich schlimmer als du” , denn für jeden von ihnen ist seine Krankheit sein persönlicher Kalvarienberg.
Bei Personen, die an Fibromyalgie leiden, sei es primär oder sekundär, leicht, mittelschwer oder schwer , können die Symptome für jeden Menschen unerträglich werden, da bei chronischen Schmerzen die Schmerzskala subjektiv ist, da die Toleranzschwelle zu hoch ist Schmerz ist für jeden Menschen etwas Besonderes.
Daher kann eine Person mit leichter oder mittelschwerer Fibromyalgie das Gefühl haben, dass sie an Schmerzen stirbt, genauso viel oder mehr als eine Person mit schwerer Fibromyalgie. Es ist wichtig, dass diese Konzepte klar sind, und obwohl wir sicher sind, dass einige Fälle schwerwiegender sein können als andere, sollten Sie niemals Vergleiche zwischen unseren Unannehmlichkeiten und denen anderer machen, da dies dazu führen könnte, dass Sie sich mit Recht schlechter fühlen, aber trotzdem hilft nicht, die andere Person besser zu fühlen.
Primäre Fibromyalgie ist eine, die von selbst auftritt, während sekundäre Fibromyalgie eine andere Krankheit ist, normalerweise autoimmune oder chronische Schmerzen. Es scheint klar, dass sich der zweite Fall schlechter anhört, da Beschwerden und Schmerzen durch zwei oder drei verschiedene Zustände auftreten, die unseren Körper und unsere Psyche stärker belasten. Aber auch hier ist alles subjektiv.
Zum Beispiel kann sich eine Person mit leichter bis mittelschwerer primärer Fibromyalgie mit einem sehr anstrengenden Job, die mehr als die üblichen acht Stunden täglich arbeiten muss, als schlecht oder schlechter fühlen als eine Person mit schwerer sekundärer Fibromyalgie. mehr eine Art von Arthropathie und / oder Bandscheibenvorfall, aber das funktioniert nicht und niemand, der sie zu Hause besucht.
Sie sehen ihn? Es ist für jeden Fall sehr subjektiv und besonders. Aber in jedem Fall sind wir in anderen Bereichen unseres Körpers gesund, auch wenn der Schmerz schwer zu handhaben ist, und wir verlassen diese Welt nicht.
Selbst diejenigen unter uns, die an einem gewissen kognitiven Defizit leiden , bleiben wir selbst, wir können klar über die wichtigen Dinge im Leben nachdenken, wir können ein Gespräch mit anderen Menschen führen und unsere Identität als intakte Menschen bewahren. Wir sind im Hier und Jetzt .
Unser Geist wandert nicht ohne Kontrolle. Ich erwähne das alles, weil ich kürzlich den Film Still Alice gesehen habe , in dem es sich um eine 50-jährige Frau handelt, die an Alzheimer-Alzheimer leidet , die mich in die Lebensqualität zurückversetzt einer Person mit Alzheimer im Vergleich zur Lebensqualität. Leben einer Person mit chronischen Schmerzkrankheiten und / oder zentraler Empfindlichkeit, und obwohl mir bewusst ist, dass meine Meinungen manche Menschen stören können, möchte ich sie trotzdem ausdrücken.
Nur um zu verstehen, dass ich weiß, wovon ich spreche, abgesehen von einer mittelschweren Fibromyalgie, habe ich eine Psoriasis-Arthritis, zwei Bandscheibenvorfälle zwischen den Lenden- und Sakralwirbeln, die neuropathischen Schmerz in beiden Beinen und eine dauerhafte Rektifikation des Halses verursachen. unter anderem.
Ich bin zwar aufgrund einer Behinderung in Rente und habe nicht den Stress, den ich bei meiner Arbeit hatte, aber ich bin auch durch die verschiedenen Probleme, die unser tägliches Leben mit sich bringen, gestresst, abgesehen davon, dass ich nicht viel habe Hilfe zu Hause. Als ich diesen Film sah, konnte ich nicht anders als zu denken, ich würde es vorziehen, so zu sein wie ich, Alzheimer zu bekommen .
Ich war sehr beeindruckt zu sehen, wie die Person, die sie war, so intelligent und intelligent, völlig verschwunden war, als sie die Kontrolle über sich selbst verlor, bis sie schließlich sogar die Kontrolle über ihre eigenen Gedanken verlor. Es ist schrecklich zu glauben, dass so etwas mit jemandem passieren könnte, und ich fühlte mich so gesegnet , denn meine Tage sind ein bisschen elender als andere, mein Geist ist immer noch mein und ich halte ihn unverletzt und unverändert . und selbst wenn ich furchtbare Schmerzen erleiden muss und meine Tage im Bett verbringen muss, kann ich darüber reden, was ich will, fragen, was ich brauche, sagen, was ich fühle oder um Hilfe bitten, Dinge, die wir als selbstverständlich betrachten, aber das sind nicht in der Reichweite einer Person mit einer solchen Krankheit.
Deshalb sollten wir niemals sagen: „Meine Krankheit ist schlimmer als Ihre eigene“, denn Fibromyalgie ist zwar schrecklich und kann außer Gefecht gesetzt werden, es wird jedoch immer schlimmeres geben. Deshalb heißt mein Blog ” Fibromyalgie ist nicht das Ende des Lebens “.
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